Dear Community,
I am new to this forum and have been led here by desperation and need.
I have been bedridden for over one and a half year now and I am getting worse by the day.
I have seen and heard a lot of great things of the drug Valcyte (Valganciclovir) and I have been searching for a clinic in Northern Europe that administer it for ME patients and/or patients with clear immunodeficiencies. I am in desperate need of someone who knows about some clinics in Northern Europe who uses Valcyte for patients in my/our situation. I really hope that some of you might know of a clinic or know someone who knows of a clinic that treats with this drug.
If you don't have any clues regarding clinics but have heard about or had personal experience with the drug or similar drugs, I would like to hear about it as well.
ME patient Tine
I am new to this forum and have been led here by desperation and need.
I have been bedridden for over one and a half year now and I am getting worse by the day.
I have seen and heard a lot of great things of the drug Valcyte (Valganciclovir) and I have been searching for a clinic in Northern Europe that administer it for ME patients and/or patients with clear immunodeficiencies. I am in desperate need of someone who knows about some clinics in Northern Europe who uses Valcyte for patients in my/our situation. I really hope that some of you might know of a clinic or know someone who knows of a clinic that treats with this drug.
If you don't have any clues regarding clinics but have heard about or had personal experience with the drug or similar drugs, I would like to hear about it as well.
ME patient Tine