May I ask what symptoms were helped by Gastrochrom? Thanks.
I'm not getting my messages when I'm tagged.
If I don't use it, I'll have terrible flushing and hot flashes with sweats. I will have naseau and trouble eating foods (one time react other time not).
I have had Kounis Syndrome where mast cells attacked my heart. Wound up in ER And the intensive care cardiac unit overnight. I have to carry an epipen with me. I can have swelling and edema.
Mast cell degranulation can cause all symptoms connected to POTS. Including severe tachycardia.
When there is an issue usually for me my first sign something is happening is I get a headache and anxiety. Then comes the feeling of choking and can't breathe. And then the hot flash along with tachycardia. Sometimes there are mild tremors. I get really flushed and red all over. Weakness that wears you out. It totally affects your brain function and ability to have thought. Gives a feeling of being completely out of control of your body and your thought process. Severe anxiety and panic.
When I had the Kounis Syndrome attack, the treatment was massive antihistamines, and nitroglycerin. It's better to try to prevent an episode than try to deal with it while it's happening. I have to be careful of known triggers. That included certain foods, getting too hot, strong emotion, chemicals and smells, etc.
I have tried many times to get off my meds, but have always had to go back on them. GastroCrom keeps me more level and steady. It has been one of my best meds, along with Tramadol and Bentyl. Both of which tweak neurotransmitters and have a calming effect. They also help the pain I have from the connective tissue issues with Ehlers Danlos. Calms my HyperPOTS down nicely too.
There's more, but that should give you an idea. With MCAS, I tell people - it's an allergic reaction to no true allergy. You can be fine one time and have anaphylaxis the next. It's really not fun.
We all tend to be hypersensitive to smells, chemicals and many things others don't notice. It is truly a type of Canary response. Maybe everyone else should be so sensitive - then there wouldn't be so many toxic things to deal with. Everyone wouldn't want the reactions and would be trying to rid the earth of the poisons.