Poll Having you ever been accused of "faking it"

Having you ever been accused of "faking it"?

  • Yes, often

    Votes: 13 17.1%
  • Yes, sometimes

    Votes: 32 42.1%
  • Yes, maybe once

    Votes: 15 19.7%
  • No

    Votes: 13 17.1%
  • I don't know

    Votes: 3 3.9%

  • Total voters
    76

TJ_in_UT

Well-Known Member
I've only had one person, a social worker, ever come out and say that there was nothing wrong with me and that I just basically needed to suck it up. I've had others who were more delicate and only implied that I was malingering, and even more than that who seemed to be thinking that (including my own family) but wouldn't comment to that effect.
 

RKB

Member
I fell ill just a few months before my third birthday. Meningitic infection which left me with multiple disabilities and with the characteristic pattern of relapse/"remitting" (never full remission) return or worsening of symptoms following any attempt to be physically or cognitively active, or minimal sensory input exposure (light/sound). My story of the abuse I've endured for having contracted that virus when I was two years old is actually too painful to even write about here. What a stupid little twit I was - clearly I shouldn't have done that. Then I wouldn't have DESERVED how people have treated me since then :/. Honest to god, you would not believe the things people have said and done to me over the years. I am now 35 years old.

I've written a series of articles about the science of this disease, about the cruelty both intentional and unintended, about what it feels like to live with Myalgic Encephalomyelitis, and why it is not appropriate or accurate to refer to this disease as "CFS" or as "M.E./CFS". Anyone who's interested can find the articles here:
www.riverby.wixsite.com/riverby/atypical-ms-about

And specifically re why "M.E./CFS" is not correct can be found here:
www.riverby.wixsite.com/riverby/sound-the-trumpets
 

Lettie

New Member
I had a auto accident and did not recover within the timeline i was told I would. (I didn't know yet that i had Fibro and CFIDS yet.) So, innocently, i went to the referred doctor asking about the fatigue and slow healing; And a request to sign some health insurance paperwork.

I was shocked when he raised his voice and in an agitated state informed me that my complaints were made up. That i was taking advantage of my employer and health provider by filing a false claim against the person who hit me and his insurance company. He alluded that the issue was my lack of integrity.

Well, I was self-employed, honest, and hard working. Paid for my own limited health care. The kid who hit me was drunk, driving without a license, uninsured, and dead. I was a passenger in my friend's vehicle (token ins. coverage) returning from my birthday celebration. And i certainly was very ill from the day of that accident onward for the next 20+ years. He was wrong on all scores. These were his projections, i realized. Not mine.

It was an important lesson that would serve me over the coming years when more would question, accuse, imply or just be recalcitrant in attitude or treatment. True caring professionals don't project their own issues or judge you for yours. They serve and do no harm.
 

TJ_in_UT

Well-Known Member
I think part of the problem we have with medical doctors is that the process of becoming an MD attracts tough, aggressive people, and weeds out the more sensitive and compassionate souls. It's hard to empathize if you've never suffered yourself. I've had much better experiences with nurse practitioners than with MDs.
 
Thank goodness I have never been accused by a doctor of faking it. Even when my primary didn’t know why I was sick and running fevers all the time, my general IgM tested extremely high so she knew I was sick and I was then just referred to the best doctors. My huge problem is in my personal life. I never see my sister who I used to be close with...I really don’t think she can grasp that when I’m tired it’s much different or how very serious the totality of my health is. My husband goes back and forth. He is an insulin dependent diabetic (he’s thin/Type 1) and sometimes I feel like saying sure live like insulin was never found and then maybe you will get it. I have a couple of friends who do understand it but have very busy lives or out of state. I lost my mom in 2010 right before I was diagnosed. I could have never imagined living so incredibly alone. I was very independent before and did fine living alone, doing things alone. This is entirely different. I don’t even talk to anyone anymore hardly about what’s going on with my health...it’s easier than to give someone a chance to invalidate you. If it was for my faith in Jesus, I can say I would never get through this. I also of course have fibromyalgia but also Hashimoto’s Encephalopathy. Premature ovarian failure at 34 ensuing bone problems now which I already have a spine and body full of past injuries. It has not been a good year and I’m doing the worst I have ever been. So if you have supportive people, hug them, tell them and be ever so grateful for them.
 

ponypanic

Active Member
My primary care doctor, who diagnosed me, and who is someone I like and respect - actually told me he "cannot commit insurance fraud" as he was preparing to sign papers supporting my disability. I felt horrified.... Belittled... Confused.... What what???!!! How could he say that to me? He did believe in me, he did sign the papers, he did understand the reality of ME/CFS. So why did he have to say such a thing?! I left his office feeling terribly confused, and dismayed that it had even entered his mind.
He needs reporting to medical board!!!
 

New Threads

Forum Tips

Support Our Work

DO IT MONTHLY

HEALTH RISING IS NOT A 501 (c) 3 NON-PROFIT

Shopping on Amazon.com For HR

Latest Resources

Top