Not dead yet!
Well-Known Member
I was looking at why I got so nauseous (a lot) when I got an MRI. It led me to "bilateral vestibular hypofunction (BVH)." Really seems relevant to ME/CFS if postural bp is an issue you're dealing with. There seems to be a physical therapy / electrostimulation treatment.
www.ncbi.nlm.nih.gov
I have never been able to tolerate an MRI without total panic because I was "about to throw up." The phrase "labyrinthine function" came up when I tried to look into it also.
Has anyone had therapy for inner ear issues and did it help with ME/CFS? I frequently can get a dizzy spell without even getting up from a chair. Just sitting, and then wham, room spinning.
![www.ncbi.nlm.nih.gov](/forums/proxy.php?image=https%3A%2F%2Fwww.ncbi.nlm.nih.gov%2Fcorehtml%2Fpmc%2Fpmcgifs%2Fpmc-card-share.jpg%3F_%3D0&hash=824cca5b33052aa867efd6b5bcaf03b9&return_error=1)
Compensation Following Bilateral Vestibular Damage
Bilateral loss of vestibular inputs affects far fewer patients than unilateral inner ear damage, and thus has been understudied. In both animal subjects and human patients, bilateral vestibular hypofunction (BVH) produces a variety of clinical problems, ...
![www.ncbi.nlm.nih.gov](/forums/proxy.php?image=https%3A%2F%2Fwww.ncbi.nlm.nih.gov%2Fcoreutils%2Fnwds%2Fimg%2Ffavicons%2Ffavicon.png&hash=05dbe48eaacc86c44c7faaadc555c049&return_error=1)
Current concepts of the compensatory mechanisms in humans with BVH are largely inferential, as there is a lack of data from patients early in the disease process. Translation of animal studies of compensation for BVH into therapeutic strategies and subsequent application in the clinic is the most likely route to improve treatment. In addition to physical therapy, two types of prosthetic devices have been proposed to treat individuals with bilateral loss of vestibular inputs: those that provide tactile stimulation to indicate body position in space, and those that deliver electrical stimuli to branches of the vestibular nerve in accordance with head movements. The relative efficacy of these two treatment paradigms, and whether they can be combined to facilitate recovery, is yet to be ascertained.
I have never been able to tolerate an MRI without total panic because I was "about to throw up." The phrase "labyrinthine function" came up when I tried to look into it also.
Has anyone had therapy for inner ear issues and did it help with ME/CFS? I frequently can get a dizzy spell without even getting up from a chair. Just sitting, and then wham, room spinning.