James Coyne hammers PACE researcher's claim of protecting patient privacy

Merry

Well-Known Member
In his latest blog post on the PACE researchers' refusal to hand over data, James Coyne goes after them for their claim that they are trying to protect patients' privacy.

To summarize my analysis of the PACE investigators citing “protecting patient privacy” as a reason for continuing to withhold the data:
  • The larger PACE investigator group recklessly endangered patient privacy with careless practices, that at least in the United States, could subject them to harsh penalties and legal action by participants in the PACE trial.
  • The claim that PACE investigators have already shared data with “independent” investigators refers to a situation in which they share data with close cronies in a manner in which they could control presentation and interpretation of the data consistent with their previously stated objective of protecting their reputations from scrutiny of their work.
 

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