Greg Zanchelli
Member
Hi all,
None of the docs who I've seen seem to care much about probing deeper with blood/lab tests beyond the standard panels. And it's been a very long a winding road thru naturopaths, endo's, infections disease docs, etc. etc. I have high IgG's for CMV, EBV, and a few other viruses along with some minor hormone imbalances. I'm currently working with a functional med. chiropractor who's doing a good job, but none of my test results have been indicative enough to diagnose me with anything. So, every type of treatment/supplementation seems to just be a shot in the dark and my money's about to be depleted.
I was wondering if anyone's had a good experience with the Mayo Clinic, the Cleveland clinic, or any other major medical institution in their being evaluated comprehensively. I'm on the east coast in Virginia, so I was thinking John's Hopkins might be the logical place to start. However, there is little information on their respective websites about how they might test and treat ME/CFS. Might they accept patients who have evaded a diagnosis and run a comprehensive work-up, ideally utilizing a team of doctors? Does anyone have any guidance of how that process might work and/or recommendations of places to go? That might be too good to be true.
Thanks for taking the time to read this, and I appreciate any advice you all might have.
None of the docs who I've seen seem to care much about probing deeper with blood/lab tests beyond the standard panels. And it's been a very long a winding road thru naturopaths, endo's, infections disease docs, etc. etc. I have high IgG's for CMV, EBV, and a few other viruses along with some minor hormone imbalances. I'm currently working with a functional med. chiropractor who's doing a good job, but none of my test results have been indicative enough to diagnose me with anything. So, every type of treatment/supplementation seems to just be a shot in the dark and my money's about to be depleted.
I was wondering if anyone's had a good experience with the Mayo Clinic, the Cleveland clinic, or any other major medical institution in their being evaluated comprehensively. I'm on the east coast in Virginia, so I was thinking John's Hopkins might be the logical place to start. However, there is little information on their respective websites about how they might test and treat ME/CFS. Might they accept patients who have evaded a diagnosis and run a comprehensive work-up, ideally utilizing a team of doctors? Does anyone have any guidance of how that process might work and/or recommendations of places to go? That might be too good to be true.
Thanks for taking the time to read this, and I appreciate any advice you all might have.