Founder of Health Rising and Phoenix Rising
More good press! This time aimed right at doctors. This Medpage article "2015 Recap: Call for Real Answers to Chronic Fatigue Syndrome" on ME/CFS continues a long run of excellent articles that started with IOM report early last year.
[fright][/fright] It adds one bit of news; the FDA says six open new drug applications for ME/CFS are under review at the FDA. That news came from the CFSAC meeting. I'm not sure what "under review" means.
More importantly, the IOM report validated the message patient and advocacy groups had been pushing for decades -- that ME/CFS is a debilitating, multisystemic, medical illness.
It also noted that as many as 2.5 million people in the U.S. may have the disease, but 84% to 91% of patients go undiagnosed.
Both the IOM report and the CFSAC recommendations emphasized the dearth of federal investment in the disease.
The economic burden of ME/CFS to society -- based on lost productivity and medical expenses -- stands somewhere from $17 to 24 billion annually, according to the IOM.
Yet NIH spent only $5 million on the disease in fiscal year 2015. An agency report ranks funding for the condition at 231 out of 244 disease research categories, noted a patient's open letter to Francis Collins, MD, PhD, director of the NIH, in the Washington Post.