NORD National Organization for Rare Diseases

[Tina]

Came across this site...https://rarediseases.org/rare-diseases/myalgic-encephalomyelitis/

The opening sentence:

Myalgic encephalomyelitis (ME) is an acquired complex disorder characterized by a variety of symptoms and physical findings potentially affecting multiple systems of the body.

They also have some clinician links. One is link is "Physician Guides." There is no guide for ME/CFS. It says,

"These guides are made possible by educational grants from patient organizations, foundations, and companies. NORD is solely responsible for the content."

I wonder who provides this information?

 

[Cort]

Came across this site...https://rarediseases.org/rare-diseases/myalgic-encephalomyelitis/

The opening sentence:


They also have some clinician links. One is link is "Physician Guides." There is no guide for ME/CFS. It says,

I wonder who provides this information?

I think Lenny Jason got it in there there! If memory serves that's what I heard. I have no idea how.