Snow to Eskimo's: Fatigue to ME/CFS/FM and Sjogren's - the 13 Types of Fatigue in Sjogrens

[Cort]

This writer talks about 13 different kinds of fatigue she experiences with Sjogren's Syndrome - an autoimmune disease. I'll bet that other autoimmune diseases produce similar kinds of fatigue. Several of them are the same type of fatigue found in ME/CFS and FM.

• http://info.sjogrens.org/conquering-sjogrens/bid/342548/13-Types-of-Sjogren-s-Fatigue

Tired-wired (Wired Tired)
Tired-wired is a feeling that comes from certain medications, such as prednisone, too much caffeine, or too much excitement or perhaps it is just a function of Sjögren’s. My body is tired but my mind wants to keep going and won’t let my body rest.

What she calls "Rebound Fatigue" appears to be a lesser form of post-exertional malaise

Rebound fatigue

If I push myself too far and ignore the cues my body is sending me to stop and rest, my body will fight back. When I do more than I should, the result is an immobilizing fatigue. It comes on after the fact, i.e., do too much one day and feel it the next. If I push myself today, I very likely will have to cancel everything tomorrow. An extended period of doing more than I should will almost certainly cause a flare.

There's also brain-fog and the heavy legs feeling. She does not say flu-like fatigue but these are so close to ME/CFS that I imagine you could distinguish between the two diseases using symptoms of fatigue! Maybe the degree of fatigue would help...

 

[Cort]

This writer talks about 13 different kinds of fatigue she experiences with Sjogren's Syndrome - an autoimmune disease. I'll bet that other autoimmune diseases produce similar kinds of fatigue. Several of them are the same type of fatigue found in ME/CFS and FM.

• http://info.sjogrens.org/conquering-sjogrens/bid/342548/13-Types-of-Sjogren-s-Fatigue

What she calls "Rebound Fatigue" appears to be a lesser form of post-exertional malaise



There's also brain-fog and the heavy legs feeling. She does not say flu-like fatigue but these are so close to ME/CFS that I imagine you could distinguish between the two diseases using symptoms of fatigue! Maybe the degree of fatigue would help...

It certainly indicates why we need a biomarker. SEID or Jason's empiric definition includes PEM, fatigue, sleep and cognitive issues - all of these are found in Sjogren's! It's why we need exclusionary factors.

 

[Karen PT]

Sjogren's doesn't have biomarkers yet, but it can be diagnosed by doing a biopsy of a salivary gland. See:
Identification of autoantibody biomarkers for primary Sjögren's syndrome using protein microarrays

Shen Hu,1,2 Arjan Vissink,3 Martha Arellano,1 Caroline Roozendaal,4 Hui Zhou,1 Cees G. M. Kallenberg,4 and David T. Wong1,2,*

Sorry about the crazy text formatting. I cut & pasted from a website. I'm not sure how it will show when posted.

 

[Cort]

Sjogren's doesn't have biomarkers yet, but it can be diagnosed by doing a biopsy of a salivary gland. See:
Identification of autoantibody biomarkers for primary Sjögren's syndrome using protein microarrays

Shen Hu,1,2 Arjan Vissink,3 Martha Arellano,1 Caroline Roozendaal,4 Hui Zhou,1 Cees G. M. Kallenberg,4 and David T. Wong1,2,*

Sorry about the crazy text formatting. I cut & pasted from a website. I'm not sure how it will show when posted.

Thanks....It's the only sure way of identifying Sjogren's. Lots of doctors, though, rely on the not so accurate blood tests - and therefore could be misdiagnosing SS patients as having fibromyalgia.

 

[Abrin]

I've only just seen this now. It was a very interesting read

 

[Ultimated]

After 30 years of ME/CFS, I began testing positive for Sjogren's antibody A after my latest severe relapse earlier this year. Apparently Sjogren's is often found in conjunction with other autoimmune diseases like lupus and rheumatoid arthritis.