Poll The FM and ME/CFS Gynecological History Poll

Discussion in 'Testing and Diagnosis' started by Cort, May 6, 2015.


Which gynecological conditions, if any, have you had?

  1. Hysterectomy

    40 vote(s)
  2. Oophorectomy (removal of ovaries)

    24 vote(s)
  3. Endometriosis

    38 vote(s)
  4. Excessive Bleeding

    61 vote(s)
  5. Abdominal pain not related menstruation

    53 vote(s)
  6. Ovarian cysts

    42 vote(s)
  7. Irregular Periods

    46 vote(s)
  8. Other

    51 vote(s)
  9. None of the above (or below :)

    10 vote(s)
  10. Fibroids

    29 vote(s)
Multiple votes are allowed.
  1. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member


    A recent study found increased rates of gynecological disorders in ME/CFS. Other studies suggest the same may be true for fibromyalgia. Please take the gynecological poll and tell us which, if any of the conditions listed, you've had. Please let us know in the comments section if they preceded ME/CFS/FM or occurred concurrent with it.
  2. Jana g

    Jana g New Member

    All gyno problems except ovarian cysts were after ME/CFS.
  3. serenebeth

    serenebeth New Member

    early menopause (at age 40) --NOT due to hysterectomy, as well as misscarriage & ovarian cysts... all after dx with FM & CFS
  4. Melanie

    Melanie New Member

    You should add fibroids? Also fistula? And ovarian cysts?
    Lissa and soti like this.
  5. Karmin

    Karmin Active Member

    Endometriosis is listed twice (in questions and results). Would be good to have premature menopause included too.
  6. Ruth Efird

    Ruth Efird New Member

    Fibroids and hysterectomy after CFS/fibro dx. Dx at menopause
  7. Thobby

    Thobby Member

    This is an edit of a post I made two years ago. I had a hysterectomy (for a baseball-sized fibroid) eight months after I wrote it. It turned out that my womb could never have produced a child; muscle tissue and lining tissue were intermingled, rather than being in layers as they ought to have been.

    My periods were nearly always regular as clockwork (though beginning in my late thirties I tended to skip a period in the hottest days of summer). So I'm a counterexample there.

    On the other hand, I always had ridiculously heavy periods (an "overnight" pad would last me two hours at most). My periods were agonizingly painful (enough so that all I could do was stay in bed for a week when they hit), and the pain grew even worse as I grew older, but no doctor ever found evidence of endometriosis. I also have a long history of UTIs, cystitis, pyelonephritis, and yeast infections.

    Note, however, that I've never thought that any of it had anything to do with CFS, as I'm a DES daughter, and the heavy periods and pain were present from menarche, a decade before I got CFS.
    Last edited: Feb 4, 2017
  8. pepsilovr

    pepsilovr New Member

    Should include the cancers. I have no doubt my (rare) ovarian CA was caused by CFS.
  9. junib

    junib New Member

    I have had 4 hydatidiform mole pregnancies, a pedunculated parasitic tumor from my uterus, polycystic ovarian and breast disease, extremely heavy periods every 3 1/2 weeks (bleeding through 2 tampons and a maxi pad), a ruptured ovarian cyst that attached to my colon, fibroids, and finally a hysterectomy in my early 30's. All before I was ever diagnosed.
  10. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    I added fibroids and then ran out of options - it limits me to ten questions.
  11. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    Boy do you fit the profile junib.....
  12. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    Got it - cancer is a pretty common reason for hysterectomy. Unfortunately the poll is limited to ten questions. I'm going to try and change that, though.
    junib likes this.
  13. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    Did it again! :banghead: :banghead: :banghead:
    I removed the second and added ovarian cysts...
  14. junib

    junib New Member

    No one has ever connected the dots for me.
  15. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    So many variations on gynecological problems! Look what I'm missing :eek: :eek: :eek:. There are advantages to having a simpler system! :cool: :cool:
    Melanie and Lissa like this.
  16. Cort

    Cort Founder of Health Rising and Phoenix Rising Staff Member

    You must be in the hormonal ME/CFS subset - which looks to be a pretty big one. Only three studies have been done in 30 years. It's kind of both scary and exciting. If it wasn't for a female CDC researcher - Dr. Boneva - who told me she pushed for these studies - they wouldn't have been done. Look at what they showed up though. One wonders what else hasn't been done that open up other insights? Probably lots of things.
    PDXhausted and Lissa like this.
  17. Lissa

    Lissa Well-Known Member

    Heavy and painful periods until on the pill. Cured all my ills and then a doctor took me off the pill at age 30.

    THAT screwed me up royally and I wound up with rapidly growing fibroids. It was so painful I couldn't walk or stand up straight.

    Hysterectomy at age 32, and the surgeon commented he'd never seen so many fibroids in one uterus!

    Didn't get a CFS diagnosis til age 42...
  18. Issie

    Issie Well-Known Member

  19. Issie

    Issie Well-Known Member

    BTW, I wonder if there is an imbalnce in men with the Ratio between testerone and estrogen in those with CFS and/or POTS - would be an interesting study. Or maybe even too low levels of testerone vs normal estrogen levels. Making estrogen too high. Endometrosis is thought to be too high levels of estrogen with to low levels of progesterone.

    Lissa likes this.
  20. Telula

    Telula Member

    I have finally been diagnosed with PCOS that I've obviously had since before my first period (3-4 weeks before my first period I felt a horrible pain in my right side and thought I had appendicitis. All these years later the doc who diagnosed me said it was most likely a cyst bursting with the egg release or something). I even had test results that date back to less than a year into my periods that showed PCOS positive hormonal changes. But, like my cousin, I don't show up with many cysts on ultrasound. From my first period I've had periods that lasted weeks, sometimes months, not counting pms and the cycle would barely give me breathing room. I also had such violent symptoms like debilitating cramps and migraines that could stay for months. My only hope of not becoming too anemic and stay in classes was to go on a pill that made me only have a period every 3 months (that's what it was supposed to do, better than without it though...at least until these scientists figure it out).
    Last edited: May 7, 2015