Cort, I just want to say how much I appreciate you bringing awareness to this subject. When I had my first ruptured endometrioma in 2004 at age 24, there was hardly anything in the way of resources. They basically said we can do surgery but we might not find anything, or you can go on continuous birth control to prevent it.Only three studies have been done in 30 years. It's kind of both scary and exciting. If it wasn't for a female CDC researcher - Dr. Boneva - who told me she pushed for these studies - they wouldn't have been done. Look at what they showed up though. One wonders what else hasn't been done that open up other insights? Probably lots of things.
So for 8 years I was on continuous birth control while gradually getting sicker and sicker to the point I was nearly bedridden. I started looking for information and there was nothing. No one had ever done a study on the long term effects of continuous birth control. They still don't know what causes endometriosis and the treatments are basically the same. It just astounds me over and over how little research is done on female gynecological problems with the exception of breast cancer and infertility.
Now that I know things like endometriosis is associated with defects in NK cells, and continuous birth control suppresses the cell-mediated immune system, and who knows what else- I really wonder what has happened in my body and what the implications are for women in general.
Anyway, its great to see men who are willing to advocate for this subject. I can imagine it must be hard to be a male who is affected by a disease that has a larger percentage of female sufferers and is associated with gynecological problems. But the more we look into all aspects of this disease, the better chance we'll have of figuring it out. So anyway, a big thank you