Valerie Madison
New Member
In the last month I have been feeling like my whole body is trembling inside. It is especially noticeable when I am laying down. Has anyone else had this symptom?
Welcome to the forums!In the last month I have been feeling like my whole body is trembling inside. It is especially noticeable when I am laying down. Has anyone else had this symptom?
In the last month I have been feeling like my whole body is trembling inside. It is especially noticeable when I am laying down. Has anyone else had this symptom?
Yes, have had this on/ off for many years. I was told by neurosurgeon expert on Tethered spinal cord that when I lie down the spinal column can ‘stretch out’ and put tension on an already tight spinal cord. Sometimes I can actually feel the tension and downward pull at the high neck and occiput. Do you have neck and/or pelvis pain / issues?In the last month I have been feeling like my whole body is trembling inside. It is especially noticeable when I am laying down. Has anyone else had this symptom?
In the last month I have been feeling like my whole body is trembling inside.
These areas can be affected by an upper neck, C1/C2 misalignment which blocks spinal fluid drainage and causes intracranial pressure.
But the strange quivering I have experienced does not seem temp. related, as it always occurs when I first lie down
I wouldn't rule out that it is related to low body temperature if you didn't check it. With it I mean a bit lower average body temperature then a few months before. When you first lie down your blood pressure and blood flow both likely drop. That effects both how much energy cells get and much of that energy gets finally converted into waste heat. Less energy means less waste heat or cooling down. The disruption of blood flow also disrupts the transportation of heat. The cooling down won't happen that fast, but I did found my body to anticipate from time to time events to come after I do something. At least it looked that way (that the body learned from repeated events).
Also, shivering can be a means to modify the local blood flow in my opinion. We all did shake with a near empty bottle of shampoo in order to get the last bit of it quicker out of the bottle. I don't say blood and capillaries are the same, but at the very least muscle contraction is a known mechanism to reduce blood pooling. And reducing blood pooling is done by repetitive squeezing of ?veins/arteries? (I always forget what is the name for the returning blood vessels) and especially the returning capillaries. Think about the leg blood pump as an example.
This mechanism of shivering to increase local blood pooling also has a temperature related component: blood at lower then normal temperature becomes thicker and hence flows less good then blood at ideal temperature. So blood flow in the capillaries will stall easier when body temperature is too low.
Would your skin color be more pale then a few months ago (excluding sun tan effect)? Don't take the head skin color, but that of belly, chest, legs or arms.
Thank you, Zapped. Valuable info. No benzodiazepines here. Yes, I think I have a significant cardiovascular thing going on. Trying to find a cardiologist who understands dysautonomia.I got tremors this year after titrating off klonopin for 1 year (after 30 years use) and switching over to Valium for 6 months then stopping too soon. PCP thought it was Parkinson’s (egads) but follow up with neurologist said not so, probably medication related; he concurred with KL withdrawal syndrome. I’m back on Valium and re-titrating slowly.
So, if you’ve used benzodiazepines or other addictive rxs it may be re relative to check benzo.com/uk and the Aston Manual from that site for details re causes, symptoms, cures et al.
BTW, doc said rx use of Inderall (propranolol) can stop the tremors; MD advice needed.
You mentioned you have dysautonomia. I also experienced trembling when my dysautonomia (POTS) symptoms started. Felt like I was sitting in an idling vehicle. I was put on a very very low dosage of beta blockers and it stopped my trembling and helped with my other POTS symptoms too. I don't know the science of it but figured I had too much amped up adrenaline as beta blockers will block adrenaline.
When I had to push my one hand firmly into the other in order to not injure myself, I'd say it was a lot more trembling then shiveringAnd I don’t really shiver, it is a trembling.
I do not doubt that. But I strongly believe that problems in neck and craniocervical junction do have a strong impact on blood flow and temperature, not only locally but with fallout spread over the body if it really gets bad. I even believe that part of the symptoms of neck and cranial problems are symptoms of the blood flow and body temperature disruption caused by the neck and cranial problems. Of coarse many other things come into play too.But, dejurgen, the source of these problems have become less of a mystery. It is my craniocervical junction that is the problem
Now adrenaline has a very strong impact on blood flow and blood flow to the head in particular. I also believe that high adrenaline and likewise hormones like nor-adrenaline play a strong role in body temperature regulation in some cases. I think that my nightly sweating is pretty well correlated with increased amounts of these hormones.So, long story short, could also try antihistamines for trembling if it's adrenaline related.
If it would be adrenal type POTS then the above would fit into this picture.I also experienced trembling when my dysautonomia (POTS) symptoms started.
Cortisol has some of the properties adrenaline has, but more long term and less violently then adrenaline.It seems to be associated with cortisol level for me.
Yes, I think your ideas are right on and may well apply. I have not taken my temp when first lying down, but my blood pressure can drop 30 or so points - ha ! A great freak out for the doc. But I now have episodes of Orthostatic hypertension which normalize with lying down. Think my autonomic system is trying to keep me from fainting, so it spikes my blood pressure?
Thank you for your important comments. Yes my blood pressure spikes way up when I stand up. I do not faint. It is much better in the evening, as if my biological clock is broken. And interesting in the evening my heart rate can fall very low - 50 beats / minute or even less. Better Understanding of cardiovascular and dysfunction of the autonomic system may help a lot if us.When I had to push my one hand firmly into the other in order to not injure myself, I'd say it was a lot more trembling then shivering. But that one morning I "felt" how similar in function it was for me as shivering: getting blood flow up and increasing body temperature. Compared to shivering, trembling seems to be able to be better at raising temperature locally where most needed rather then for the entire body.
I do not doubt that. But I strongly believe that problems in neck and craniocervical junction do have a strong impact on blood flow and temperature, not only locally but with fallout spread over the body if it really gets bad. I even believe that part of the symptoms of neck and cranial problems are symptoms of the blood flow and body temperature disruption caused by the neck and cranial problems. Of coarse many other things come into play too.
Now adrenaline has a very strong impact on blood flow and blood flow to the head in particular. I also believe that high adrenaline and likewise hormones like nor-adrenaline play a strong role in body temperature regulation in some cases. I think that my nightly sweating is pretty well correlated with increased amounts of these hormones.
If it would be adrenal type POTS then the above would fit into this picture.
Cortisol has some of the properties adrenaline has, but more long term and less violently then adrenaline.
I don't want to "push" these ideas, but just try to make a case for "If you did find a cause, that doesn't exclude that it's compounded with more trouble". This compounding may be part of what makes ME so hard a nut to crack. I do believe that thinking this way has helped me get a better grip on my health more then once.
Temperature won't rise instantly, just as you can't make a cold bath hot in seconds neither. Heating a large body goes slowly. It's the low average/background temperature I'm talking about.
I have no idea how much 30 points of American units is, but you make it sound a lot.
I wouldn't be surprised if your blood pressure spikes high when standing up AND drops significantly below what is normal when you get lying down. The first part would protect you against fainting. The last part would protect your brain against a "pressure spike" due to changes in effect of gravity that would combine with the probably already high CSF pressure into something quite nasty. As you're obviously quite ill, adjusting may be slow so you get a strong spike getting up and a strong spike getting down.
In order to (try and) reduce this spiking, I very rarely get up in a single go. I slowly transfer from lying down to sitting for half a minute and then slowly stand up. It surely helps me. When lying down I used to do the reverse thing when I was worse. Now I tend to skip that one.