Cort,
I read your post about your lumbar puncture pressure being high ?? !! Gee, I think it is almost a given that the cranial pressure is high when the lumbar pressure is high ? Have you had a CINE flow study with an experienced neurosurgeon ? Even I can see the jets ( series of black dots) indicating CSF flow in my CINE study - jets around the cerebellum and down into the mid- cervical spine. I was offered surgery, but that seemed like a sledge hammer approach back in 2005. A brain MRI in about 2008 reported shrinkage of my cerebellum. Oh geez. But this would be an expected consequence of high CSF pressure.
I read Diana Driscoll's book - she eloquently explains the dilemma of the arterial/venous blood flow and CSF flow problems. The only thing I might add is that the sacrum is an important part of the system, and also needs to be looked at in individuals.
Diana explained that she and her children had symptoms after a virus. So, now I appreciate that certain viruses must be able to raise intracranial pressure in some manor, just as neck injury can. She also discussed low pressure, and so that could be a problem, too.
Feels like mine is up and down.
So, I am totally convinced that CFS and fibro are basically a problem of blood and/or CSF flow in the brain and cervical cord. Scoliosis is a total set up and I expect much, much more common in CFS/FM people.
But how to 'fix 'it ????
Please try to get these books and read them :
1. The Downside of Upright Posture by Michael Flanagan, DC.
2. Scoliosis and Spinal Pain Syndrome by Valentyn Serdyuk.
3. Chiropractic: The Anatomy and Physiology of Sacro-Occipital Technique by Jonathan Howat, DC, DICS at the SORSI site.
If you are seriously interested I will make a major contribution to the cost, as the last two are over $100.
Thank you so much for the site. It has been amazing - found such important information from the great info and discussions.