Probably all of us with ME/CFS are familiar with notions such as pacing, getting plenty of rest etc. But I'm really curious as to what the word "rest" really means. When I got ME 20 years ago, as well as having many symptoms, I also lost the ability to sleep. After 5 years of awful insomnia, I was prescribed sleeping pills. They allow me to sleep at night reasonably well most of the time (though not always) ... but I have not had a nap for almost 20 years. No matter how fatigued I am, or if I do have a bad night or string of bad nights, I am totally unable to snooze by day. I vaguely remember how, in my healthy youth, a nice quick afternoon nap (40 winks!) restored me. How when I lay down for a quick nap, I'd get that lovely drowsy feeling and drift off. That's a feeling I never experience.
So, what does "rest" mean? Is it staring into space, fatigued but bored out of my mind? How do you rest? Do you read? Deep breathe? What exactly is "rest"??? I'd love to hear what people here mean by this word and what you actually and specifically do when you are "resting".
So, what does "rest" mean? Is it staring into space, fatigued but bored out of my mind? How do you rest? Do you read? Deep breathe? What exactly is "rest"??? I'd love to hear what people here mean by this word and what you actually and specifically do when you are "resting".