Hi, I'm Elysia — a counsellor living with ME/CFS, fibromyalgia, SUNA, autonomic dysfunction, and MCAS
I run The Woods Counselling, an online practice for people navigating chronic illness, chronic pain, and the trauma that comes with them. I'm a Registered Clinical Counsellor (MA, RCC) and...
I'm wondering...where is the limit between stepping out of our comfort zones and pushing too much to make our cfs worse or even getting into vicious circle of pushing-crashing and resting-feeling better-pushing again and never really getting better? Seems like I've done the first and I always...
Probably all of us with ME/CFS are familiar with notions such as pacing, getting plenty of rest etc. But I'm really curious as to what the word "rest" really means. When I got ME 20 years ago, as well as having many symptoms, I also lost the ability to sleep. After 5 years of awful insomnia, I...
I am bed bound and have severe/very severe ME. I believe the main reason I became so ill is because of my inability to stop myself from doing too much activity i.e. not pacing correctly. ME patients are advised to pace their activities carefully throughout each day but as most of you will know...
Counting Your Spoons is a practice devised by lupus sufferer Christine Miserandino to contextualise her illness for able-bodied audiences, and to help her pace more effectively.
She used 12 spoons to indicate her energy levels at the beginning of a typical day and would withdraw one or more...
I like to go out for a walk most days to get in some exercise, but as you know, even walking can bring on PEM. I've found a nice little tool to help me avoid this that I'd like to share here. It's called "EnergyPointer", and it's an upgrade feature you can purchase for the Polar Beat app. Polar...
In reply to Mary Dimmock's comment found here: http://www.healthrising.org/blog/2017/01/11/epic-measures-chronic-fatigue-fibromyalgia/?replytocom=740267#respond
I'm more concerned about the overall pattern of prominent CFS/ME doctors promoting or accepting the idea that our crashes are due to...
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