Search results
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Dr. David Bell Talks - In Seattle
Leela Play posted on Facebook Katrina Berne's notes on David Bell's talk in Seattle. Dr Bell Seattle June 2015 June 14, 2015 at 9:30pm Katrina has graciously shared her notes of Dr Bell's lecture. David Bell, M.D. June 6, 2015 Swedish Hospital, Seattle, WA drdsbmd@gmail.com Lyndonville, NY...- Merry
- Post #12
- Forum: ME/CFS and FM News
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Weird: claim XMRV causes "chronic fatigue"
In the Yahoo news feed this morning I saw the headline "Getting to the Bottom of Chronic Fatigue" for a Newsmax article. Ordinarily I wouldn't look at a Newsmax article. From their headlines alone I long ago decided that Newsmax is not a reputable news source. But today I clicked and found an...- Merry
- Thread
- Replies: 3
- Forum: ME/CFS and FM News
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Vacation Inquiry #2: If You Could Go Somewhere Where Would You Go?
My memory of how wretched I felt traveling remains so intense that the idea of travel no longer appeals to me. Nonetheless, I can think of places I might, in another life, venture to. Rustem Pasha Mosque, Turkey It is possible to tour the mosque online...- Merry
- Post #14
- Forum: General Discussion
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Resource "Test unravels history of infection" By Jonathan Ball BBC News
More interesting details on the research are provided in this post at Virology Blog: http://www.virology.ws/2015/06/04/your-viral-past/ "This method was used to assay samples from 569 humans. The results show that each person had been exposed to an average of 10 viruses, with a range from a...- Merry
- Post #4
- Forum: Other Research
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Resource "Test unravels history of infection" By Jonathan Ball BBC News
Suzanne Vernon has posted on her facebook page that she contributed to this research by providing blood samples from ME/CFS patients in the Solve ME/CFS Initiative biobank: "It was so fun to work with this remarkable team on this really cool approach to test for more than 200 viruses (and more...- Merry
- Post #3
- Forum: Other Research
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Trigger for autoimmune diseases discovered?
"Australian researchers believe they have discovered a group of cells that trigger autoimmune disease, as well as the molecular 'trigger guard' that normally holds them in check." http://medicalxpress.com/news/2015-05-trigger-unleashes-autoimmune-disease.html The research paper was published...- Merry
- Thread
- Replies: 1
- Forum: Other Research
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"Post-Infective Measles Syndrome" :) Measles Significantly Weakens the Immune System for Years
Measles was the most acute illness I've ever had. I don't know if "acute" as a medical term implies severity, but that's what I mean to convey. I was out of my head with high fever. I must've been about 5 years old. Although I date my falling chronically ill to when I was 16, I have thought...- Merry
- Post #2
- Forum: Other Research
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Post Ebola Syndrome or ME/CFS?
Dr. Abdul El-Sayed discusses the news that a doctor thought cured of Ebola now has vision problems because the virus is in his eye. The virus may be cleared from the blood but remain in the eye, ear, and testes. I had not known that some parts of the body the immune system does not have access...- Merry
- Post #2
- Forum: Health News
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Yahoo Health Dr. Recommends GET for CFS
Thanks to anyone who commented on the article. I just had another go.- Merry
- Post #12
- Forum: ME/CFS and FM News
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Yahoo Health Dr. Recommends GET for CFS
Hi, Minx. I don't know who deleted the comment or why. Yahoo, like other websites, most likely employs people to monitor the comments. Other negative comments had been posted when I posted mine, and they are still there. Perhaps my inclusion of a link (to the IOM report) was not allowed. I...- Merry
- Post #10
- Forum: ME/CFS and FM News
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Yahoo Health Dr. Recommends GET for CFS
Hi, Hello! Yes, maybe I should try again. Thanks for the encouragement. I did send two messages to the email address at Dr. Agarwal's blog, the first after I posted a comment at the article and the second after I discovered that my comment had been deleted.- Merry
- Post #8
- Forum: ME/CFS and FM News
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Seven Signs You're Not Getting Enough Magnesium
Why should chocolate consumption be kept at 1 ounce or less? I don't eat chocolate because of the sugar, but I do drink cocoa powder in milk with stevia. Is that cocoa powder a problem? -
Yahoo Health Dr. Recommends GET for CFS
Yesterday I commented on the article telling Dr. Agarwal that recommending GET to CFS patients could potentially harm them and told her she needs to educate herself about the illness. I gave her the link to the IOM report. This morning I see that my comment has been deleted.- Merry
- Post #5
- Forum: ME/CFS and FM News
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Yahoo Health Dr. Recommends GET for CFS
Shilpi Agarwal, MD, in "4 Natural Ways to Fight Chronic Fatigue," which appeared May 2nd in Yahoo Health news, recommends Graded Exercise Therapy. She writes: "Studies have repeatedly shown that graded exercise therapy helps those with CFS. This type of therapy allows you to start exercising...- Merry
- Thread
- Replies: 11
- Forum: ME/CFS and FM News
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Contest Help National ME/FM Action Network Win $2000
The National MEFM Action Network is now in second place, with the Powassen Agricultural Society in first. Vote daily. http://www.karmacanada.ca/contest/organizations/national-mefm-action-network/?search=helen- Merry
- Post #3
- Forum: Advocacy, Contests and Events
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Contest Help National ME/FM Action Network Win $2000
Because some people remained confused about whether or not registration is required to vote (it isn't), Facebook ME (ME/CFS) Fundraising group administrator Helen posted a link that takes you directly to her registration where everyone can cast a daily vote...- Merry
- Post #2
- Forum: Advocacy, Contests and Events
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Bulk Purchase/Membership lab tests?
I looked for information on the legality of consumers ordering tests in the US and found an article on new legislation to allow this in Arizona. The final paragraph stated: "Arizona and nine other states allow consumers limited access testing without a doctor or other health practitioner's...- Merry
- Post #4
- Forum: General Discussion
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Bulk Purchase/Membership lab tests?
Perhaps this article about labs in the US offering tests directly to patients would be of interest to you, @Penenelope Else. Advocate Tina Tidmore posted this on Facebook. She wondered if this is legal in Alabama where she lives...- Merry
- Post #2
- Forum: General Discussion
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Poll The ME/CFS/FM Parking Pass Poll: Are you leery of getting one or using it if you have one?
When I requested a disability parking pass from a doctor (the last one I saw, seven or eight years ago), he said, "What makes you think you need one?" I had already told him at the first appointment months earlier of my CFS diagnosis by other doctors, but I explained to him how limited my...- Merry
- Post #4
- Forum: General Discussion
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New Method to Screen Brain Inflammation Identified
First paragraph of the article: "In a new study, National Institutes of Health (NIH) researchers suggest a less invasive method to identify brain inflammation in people with neurological diseases like multiple sclerosis. While the standard procedure can require taking a tissue biopsy or...- Merry
- Thread
- Replies: 1
- Forum: Other Research
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![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
