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Statin News
I hadn't fully realized that statin intolerance was still considered "controversial" by some in the medical community, but apparently it provides yet another opportunity to write off severe symptoms as merely psychological. When my latest attempt to go back to statins crippled me for months I...- Paw
- Thread
- Replies: 5
- Forum: ME/CFS and FM News
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Cause & Cure
One of my several oddball symptoms (which docs describe as "interesting") is a grinding in my neck. If my head were a big ball bearing, it would be as though the "socket" of the neck was lined with grit, sand, and pebbles. Gentle rotation of the head, side to side, has been producing grinding...- Paw
- Post #16
- Forum: General Discussion
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Fibromyalgia Drugs Miss the Mark in Large Survey
I find muscle relaxants to be some of the most reliable forms of relief. Been using sublingual cyclobenzaprine (3 mg), but my FM and RLS seem to need full dosing (for better sleep). Anyone know whether long-term regular use is safe and effective? My favorite is baclofen.- Paw
- Post #5
- Forum: FIbromyalgia and Pain Research
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What is ME ?
Thanks for the perspective Weyland. Makes perfect sense. I just have have trouble when people start declaring absolute truths based on their individual experiences. Since the disease is, as yet, multifaceted and mysterious, I think such statements wind up adding to the confusion, rather than...- Paw
- Post #34
- Forum: General Discussion
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What is ME ?
No, no, no. That's just another of several attempts to agree upon a menu of symptom patterns. It does not identify specific concrete lab tests or viral causes, etc. So it's qualitatively no different from SEID: evaluating patient symptom history. Eyaklle has been suggesting ME identification...- Paw
- Post #32
- Forum: General Discussion
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What is ME ?
Hmm. That doesn't really answer my question about the passion here. Again, I'm all for science achieving more specific findings, but if there's been a consensus on consistent ME criteria I haven't seen it. So SEID was an attempt to get as specific (and constructive) as possible -- as of last...- Paw
- Post #26
- Forum: General Discussion
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What is ME ?
But you've made it clear you think the SEID criteria are insufficient for describing "real/true ME." It's my understanding that SEID criteria were the result of many top researchers incorporating just about all the data they could get their hands on. It was precisely because ME did not...- Paw
- Post #24
- Forum: General Discussion
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Catastrophizing One's Physical Limitations?
Yeah, it seems like lazy research by researchers unable to see beyond their initial biases. However, the findings obliquely confirm some of my own recent experiences -- if I ignore all their psychological references. My interest is entirely in what's happening physically. The severity of my...- Paw
- Post #8
- Forum: FIbromyalgia and Pain Research
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What is ME ?
Interesting thread. But it doesn't do much to make understanding ME/CFS more easy, or diagnosing it more simple, does it? I've never been diagnosed with either (I hadn't realized ME and CFS were necessarily different), but I certainly fit all the broadly agreed-upon criteria. Flu is the best...- Paw
- Post #15
- Forum: General Discussion
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High dose melatonin
I wish someone would come up with the definitive word on melatonin. Not just the dosages, but whether it's harmful, etc. But I've never try that high of a dose. -
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What is ME ?
Sorry, I'm having trouble following, Eyaklle. While your initial description of ME sounds broadly like a syndrome, you then take pains to differentiate "true" ME from a wider spectrum. Am I missing something? Maybe you could elaborate on what an "astute physician" would find when s/he makes an...- Paw
- Post #2
- Forum: General Discussion
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End ME/CFS Severe Patient Study Turns to the Mitochondria
Amen to that. I can't tell you how often I'm awakened from a nap because I'm not taking in a breath, or just breathing very shallowly. But my apneas from physical restrictions are very mild. Meanwhile, Merida's note about inflexible red blood cells causing oxygen shortages makes me shake my...- Paw
- Post #94
- Forum: ME/CFS and FM News
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Autonomic Dysfunction as a Result of LOW SNS/NE.
I would characterize my chronic headaches as migraines, but I get them far less frequently now that I've been taking duloxetine (serotonin) for the past few years. (Hard to tell for sure, though, since I've simultaneously been working on lowering my BP.) As for norepinephrine... strangely... -
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End ME/CFS Severe Patient Study Turns to the Mitochondria
Sounds plausible. And, perhaps, there are various other factors that can screw up the Cori cycle, causing a range of possible symptoms? This is an area where we may some day pinpoint overlapping malfunctions of ME and FM, no? Thanks for your clarifying response to my earlier post. Makes...- Paw
- Post #87
- Forum: ME/CFS and FM News
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End ME/CFS Severe Patient Study Turns to the Mitochondria
IrisRv, we may be splitting hairs here, since we agree that stress sometimes may well be a contributing factor. Not speaking for anyone else, but that's all I've ever been saying. This illness seems way too convoluted to point to any one factor as entirely causal. Even if one can establish a...- Paw
- Post #79
- Forum: ME/CFS and FM News
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End ME/CFS Severe Patient Study Turns to the Mitochondria
This "tipping point" rings true from my experience. Although I had many disparate symptoms for decades, I was churning along as usual until one day I suddenly got systemically sick and never recovered. Thought maybe I'd had a stroke. It's clear to me something physiological just broke that day.- Paw
- Post #75
- Forum: ME/CFS and FM News
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End ME/CFS Severe Patient Study Turns to the Mitochondria
Wow, that's such a moving story, Merida. Amazing. I wonder if the Grandmaster's suggestion brought you some deeper breaths. I could use some of those too. Nice to have someone like that be so accepting of you and your body. Must have helped you accept yourself more. I don't know about gi gong...- Paw
- Post #74
- Forum: ME/CFS and FM News
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End ME/CFS Severe Patient Study Turns to the Mitochondria
I know I've said this, but, again, I'm not invested in persuading others to share my own interest in this. But, as an open forum, anyone who is interested should be able to discuss the topic without it being mischaracterized. I don't recall anyone here advancing the hypothesis that "stress...- Paw
- Post #64
- Forum: ME/CFS and FM News
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End ME/CFS Severe Patient Study Turns to the Mitochondria
Zapped, I know you're mainly responding to the rhetoric and logic of someone's specific post, but I'm interested in why emotions sometimes run so high around a topic like this. Several times I've been surprised when I share my own experiences of my own body, only to have someone angrily say it's...- Paw
- Post #61
- Forum: ME/CFS and FM News
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