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Theories on CFS/ME
I'm not as well read as Weyland when it comes to the literature, but my personal experience leads me to include stress as a possible trigger -- for some of us. While I am aware of possible infection events and even injuries going back decades, my long-term symptoms (neurological, digestive...- Paw
- Post #6
- Forum: General Discussion
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
Petra, I bought this TENS unit. I haven't had it long, so I'm still experimenting with placement. But I've used it every evening for about an hour before bed, and there's no doubt it's significantly reduced RLS. Best results come from putting electrodes on both feet -- usually the sides or top... -
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Is dystonia common with CFS/ME people?
Yeah, I deal with this too -- although not as severely as you. I'm constantly working to relax my posture (whether standing, lying down, or seated) after discovering it has become distorted by neurological impulses. Cramps, jerks, zaps, RLS -- all seem related. The key question I have is... -
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
All I've seen are people using little clips that go on the earlobes -- which doesn't seem like a very direct path to the vagus (although I don't know). -
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
Good to know about the holiday savings, thanks. I mention the Nervana critiques hoping other users might confirm or reject them. Of all the complaints I've been reading, the one that gives me the most pause is its supposed lack of power. I'm kind of reading between the lines here, but it seems... -
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
I was just about to pull the trigger after I saw nervana lowered the price to $289. (I've also been recently impressed with how well my new TENS unit is helping my RLS.) But after reading through Reddit reviews I'm now thinking it might be better to wait for Nervana's next version. A lot of... -
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'New DEA Rule Says CBD Oil is Really, Truly, No-Joke Illegal'
Yeah, it's troubling. We seem to have been in a sort of transition state, with "temporary safeguards" preventing federal intrusions on state cannabis laws. With Jeff Sessions coming in as attorney general I fear all forward progress will be wiped away. Things could get nasty. California, at... -
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Listen to this free musical piece to reduce anxiety!
Well I see you pried open the box, so that's a good start! Maybe one of the reasons they let you hook it up to music is to fool you into thinking you're not messing around with your vagus nerve. This conversation prompted me to order a TENs unit, but that's just hoping it'll help with my RLS...- Paw
- Post #4
- Forum: Stress Reduction, Pacing and Exercise
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Listen to this free musical piece to reduce anxiety!
Worked okay for me. Although it's hard to beat Brian Eno's old ambient series. Did you try listening while hooked up to your new Christmas present? Still anticipating your review!- Paw
- Post #2
- Forum: Stress Reduction, Pacing and Exercise
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
I will try that. You now have me wondering about whether my beloved traction/inversion table affects the vagus nerve in some similar way. I think of it mainly for my legs and hips, but it does significantly reduce all symptoms (and is energizing) for an hour or so -- as well as keeping chronic... -
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Non-invasive Vagus Nerve Stimulating Devices
Interesting that the FisherWallace product does not use the term "vagus nerve" anywhere that I can find. Maybe it's better build quality than the Nervana? However the Nervana looks more fun. I like the idea of it syncing its vibrations to local ambient sounds. FisherWallace instructs more... -
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
Remy, I can't wait to hear your reportage re your Christmas present. Cort, thanks for the thorough write-up, not only on your experiences with the Cerbomed, but also your general profile. You say you're atypical, but you might as well be describing me in almost every detail. (My achy tendons... -
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Dental problems related to Fibro
Yeah, all of the above. My TMJ has gotten significantly worse in recent years, with over-elastic joints (lots of popping) that seem to allow my jaw to mis-align while I sleep (it just falls to the side), which can lead to serious upper-jaw aches during the day. Plus I never feel that my jaw fits...- Paw
- Post #5
- Forum: General Discussion
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Myelophil for CFS?
Thanks Remy. Maybe worth a try. I'll check into availability of both. Although I've not noticed much effect from other adaptogens, maybe this particularly combo is magical fairy dust.- Paw
- Post #3
- Forum: Energy! Mitochondria, Methylation, B-12, etc.
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Myelophil for CFS?
Anyone tried it? Or know how to get it? (Astragali Radix and Salviae Radix) I see some old-ish reports on it, and then ProHealth today posted this summary as if it were new research, but as far as I can tell they're just recycling old news. Still it piqued my interest, since I'd never heard of it.- Paw
- Thread
- Replies: 3
- Forum: Energy! Mitochondria, Methylation, B-12, etc.
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Teal Swan- CFS abuse
Great idea, and find an administrator skilled at search engine optimization so that this page pops up first for all casual queries! (I think that might cost a little money.) Let's see someone like Sadhguru keep working 9-9 with a full-blown case of the flu. Ain't gonna happen. I believe...- Paw
- Post #28
- Forum: General Discussion
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Teal Swan- CFS abuse
Well, sounds like you're on the right path. We can check with Teal, but surely supplements are merely a sign of our hopeless desperation to connect with others. :smug: Yeah, I can't watch again either, but I too was struck by Teal's callousness toward the woman wanting to care for her child...- Paw
- Post #16
- Forum: General Discussion
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Teal Swan- CFS abuse
Ugh. What an unhelpful dialogue. She does seem to have some knowledge (in the new-age tradition) but her arrogance prevents her from questioning the incompleteness of that knowledge. Which renders her cruel and lacking empathy. She fails to consider why the vast majority of personalities she...- Paw
- Post #8
- Forum: General Discussion
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NAC for Neuroinflammation in ME/CFS and Fibromyalgia?
I've been taking 750mg twice a day for at least a year, without thinking much about it. (Occasionally I'd notice maybe not feeling quite as well when I missed a dose.) Then I ran out, re-ordered, but didn't connect my week of "flu days" to its absence until I resumed taking it.Yesterday I...- Paw
- Post #15
- Forum: Energy! Mitochondria, Methylation, B-12, etc.
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Relax-Eze
No doubt. I"ll try to isolate the affect of larger doses another time, when I'm more stabilized. For now, I'm doing much better with 1/8 tsp a couple hours before bed. Haven't tried it during the day yet.- Paw
- Post #12
- Forum: Stress Reduction, Pacing and Exercise
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