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Jen Breas Ted talk is up!
Yeah, that was moving. And she summarized the current state of affairs nicely: Mainly with the help of communities (like this one) we piece together bits of information and experience that maybe help us five percent here, five percent there. And, meanwhile, we learn to say, "I don't know" to...- Paw
- Post #10
- Forum: Advocacy, Contests and Events
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'Contrary to decades of hype, curcumin alone is unlikely to boost health'
Hard to say for sure @Lissa, but I do believe my recovery this time was faster than usual. I took a lot of oral curcumin and rubbed my topical mix on the wrist a couple times per day. That was after just one night of almost unbearable pain, which, as I recall, usually leads to about a week of... -
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Possible Mechanism Identified for 'Chronic Fatigue Syndrome'
Sort of like a slow-motion form of Leigh's disease? Which, I see, is treated by Alpha Lipoic Acid, ALCAR, and, most importantly, large doses of B1.- Paw
- Post #2
- Forum: Health News
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Brain Activity Tied to Stress, Inflammation and Heart Problems
I don't want to jinx myself, since it's only been a few weeks that I've been experimenting with DHEA/pregnenolone, but it's the first time in a long time I've been getting relatively solid sleep without the help of Lunesta or Ambien. (I have to take vacations from them anyway, or they stop...- Paw
- Post #18
- Forum: Other Research
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'Contrary to decades of hype, curcumin alone is unlikely to boost health'
Got a wicked sudden case of something like carpal tunnel in my wrist (ironically, from loading supplement capsules). Been rubbing with CBD oil and turmeric -- and I do think that has reduced the intensity and longevity of the attack, based on past experiences. I started by using the contents... -
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Brain Activity Tied to Stress, Inflammation and Heart Problems
Thanks for all the great ideas and info, @AquaFit! My cardiologist keeps suggesting I explore POTS, but I certainly don't fit the typical POTS profile. I do think it's about time I try 23AndMe. Could be interesting. I don't remember which blood test caused my PCP to rule out EDS, but it was...- Paw
- Post #16
- Forum: Other Research
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Brain Activity Tied to Stress, Inflammation and Heart Problems
This opinion piece by Jamison Hill helps me better understand the strong reactions I get from some in our community when I discuss my own past stress. It's a hard thing to talk about because it's so easy to conflate brain involvement with "psychosomatic" conclusions. (My own brother likes to...- Paw
- Post #14
- Forum: Other Research
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Brain Activity Tied to Stress, Inflammation and Heart Problems
Yes, this would be ideal. I may get there eventually, but, so far, I've been trading off the ideal for the sure-thing: walking. Since it's convenient and I enjoy it, it's easy for me to stick to it. When I tried swimming it was such a hassle I couldn't keep up with it. I do have very flat...- Paw
- Post #13
- Forum: Other Research
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'Contrary to decades of hype, curcumin alone is unlikely to boost health'
Thanks! Great ideas. Will try. -
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Brain Activity Tied to Stress, Inflammation and Heart Problems
That seems very likely to me. After pretty extensive testing my neurologist declared my neuropathies ideopathic. (He said that's about 50% of the cases he sees.) He was the first one to diagnosis me with FM, because he believes small-fiber neuropathy is what FM "really" is (I don't necessarily...- Paw
- Post #11
- Forum: Other Research
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Brain Activity Tied to Stress, Inflammation and Heart Problems
I'm among the minority with high BP -- mostly unresponsive to meds due to autonomic neuropathy (according to my cardiologist and neurologist). Amazing how many paths there are to nearly identical conditions and symptoms. Even MG (an autoimmune condition for which I have tested negative) is...- Paw
- Post #8
- Forum: Other Research
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'Contrary to decades of hype, curcumin alone is unlikely to boost health'
Good to know. Maybe I should stop using it daily and save it for gout attacks. What dosage works for your gout? I've been using 750mg high absorption (with pepper extract) once daily. -
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Brain Activity Tied to Stress, Inflammation and Heart Problems
I'm not too concerned about what is and isn't fashionable. I just want to investigate my own illness as clear-eyed as possible. The reason stress is a recurring agenda item for me is that it's seemingly relevant to my onset (and, as I've said, plays little role in my current life, yet my disease...- Paw
- Post #4
- Forum: Other Research
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Centrophenoxine to boost acetylcholine?
Intranasal Noopept?? That stuff is like cat pee! All the racetams (and cholinergics for that matter) are tricky for me. Like stimulants, they can easily trigger flu-like states. Occasional small doses for temporary boosts aren't too bad. -
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Brain Activity Tied to Stress, Inflammation and Heart Problems
Seems the order of causality is still in question. Lancet suggests chronic stress could directly impact the brain, leading to a chain of physiological responses --- including chronic inflammation and cellular activity. While this study focuses on cardiovascular implications, I still have...- Paw
- Post #2
- Forum: Other Research
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Theories on CFS/ME
Well, it means that stress had nothing to do with their disease. It doesn't prove anything universal unless one is convinced that "the disease" is necessarily caused by identical factors in all cases. From what I've seen and read, I tend to think the opposite is true.- Paw
- Post #14
- Forum: General Discussion
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Preparing TENS Leads to Use in Vagus Nerve Stimulation of Ear
That sounds good. GABA is my friend if I don't overdo it. A lot of (healthier) people use theanine in stimulative stacks to keep the jitters down. I use it more at night. -
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Preparing TENS Leads to Use in Vagus Nerve Stimulation of Ear
Sorry, a nootropics term -- combining supplements strategically for synergistic effects. -
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
"Stimulating downward (efferent), while blocking upward (afferent) vagus nerve activity keeps the good effect while preventing possible bad effects." Sounds good. But Patel says this degree of control is usually not possible. Wondering how to achieve it with the vagus. Expensive equipment? -
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Preparing TENS Leads to Use in Vagus Nerve Stimulation of Ear
Powder City's works well for me. Theanine is one of the few supplements that actually tastes pretty good, so it's easy to just swallow a quarter teaspoon in bulk. I also use it as a capsule filler in certain stacks.
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![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
