A 30 Year Learning Curve: A Naturopathic Doctor on Treating Chronic Fatigue Syndrome

ScottTriGuy

Active Member
Quoting Luke:
"got well over time due to your genetics and the scientific fact that every ones body's body has different and varying abilities to deal with and fight off pathogens and illness"

You just made the argument that some people would get better with naturopath treatment - precisely because we are all different.

Its not an 'either / or' question, its allo and naturopath approaches - they are not mutually exclusive but elements of an overall, holistic approach. Google 'systems biology' to learn more.

Do not discount or invalidate or judge what has worked for others. It is not helpful.

Focus on what works for you. And then share that if you so desire.
 

GracieJ

Active Member
My ideal world includes the best of all approaches.

It would mean the recognition of valid science across the spectrum, and not the denial and burial of perfectly good, working remedies and cures - from any approach. It would mean that if something really is not working and is damaging people, there would not be a paternalist mythology protecting and defending its use.
 

GracieJ

Active Member
It would mean living in a world where my allopathic physician could suggest the use of an essential oil or herb and monitor the progress without fear of losing his license.

It would mean an herbalist could also qualify as a physician, hold a drug license, and know when to suggest an allopathic approach.

There have been many times when @Cort has fielded a lot of flak from differing viewpoints. I know I have personally been guilty of spouting off a bit much in opposition from time to time. He has been criticized for including articles from all approaches. Overall, though, as a patient population, we owe him a lot. Thank you, Cort, for your enduring courage and attitude about exploring the entire spectrum of this disease from many perspectives.
 

Hari

Active Member
Luke,

I want to be straight on few points. I see you are fixed to a view and live by that no matter what, just like I was during my 20s.

Unless you explore or study other alternatives methods to treat CFS, your comment is not valid.

You said that there is no scientific study in naturopati, and commented on it and pushed it aside.

My question to you is: Have you studied the same and concluded that naturopathy does not work?

At some point of time in the history it was the only way of healing. The knowledge was lost in time. Indian government established a body AYUSH to review the subject(s). In China medical colleges provide Chinese Traditional Medicine courses for 6 years like regular medicine courses in the rest of the world.

As I see mainstream medicine has no cure for any disorder. It is only management. That too with side effects.

Let me point you to the study conducting by our most famous Dr. Bateman, who is renowned for FMS / CFS treatment and study. And I will highlight my views on the same. You make the final choice.

Before we continue, I want to state my view and opinion on modern medicine: It is great, really great. I love the medical procedures they perform to save life. But not the medicine that kills our body half.

With due respect to Dr. Bateman, and every one in the scientific community I am giving my views.

https://batemanhornecenter.org/how-to-participate/ (please click on clinical trails link on this page). The below official link is first under Current Trails.

https://clinicaltrials.gov/ct2/show/study/NCT02187159?term=Ds5565&rank=3#locn

Also please read about the drug they are using in the study: http://www.drugs.com/cdi/pregabalin.html

The one point from the above link captured my attention immediately is - "Exactly how pregabalin works is not known"

Then how can you call it as scientific study? On the other hand, you do not know how naturapthy works, then you also do not know how the modern medicine works. And you are passionately looking for a solution from modern medicine!

Let me take another word from Drugs.Com pregabalin page: anticonvulsants

Let us look at the description from Wikipedia: https://en.wikipedia.org/wiki/Anticonvulsant

"Anticonvulsants suppress rapid and excessive firing of neurons during a seizure". This is a life saving act, neither healing nor health building act. The underlying cause for firing the neurons is not being addressed or not even known. We all know that the scientists and doctors do not even know the underlying cause.

Now again please go to Clinical Trails link and look at the exclusions criteria / list for the study. The list is bigger than the included. Then after the study, if the results are satisfactory, they may give the drug to everyone in the FMS / CFS group. Again we call this scientific approach to treat CFS / FMS?

Please wake up to the reality of our modern medicine, not the popularity and hype.

Please search on the internet with the words similar to 'recovery from fibromyalgia'. Those who completely restored used the combination of drugs and dietary supplements, physical activity along with balancing emotional well being.

**** ****

For the first time in your life please take my advice, speak with a specialist and take natural treatment. You will thank Cort for this forum and thank yourself for taking that step. When you take the step, give yourself ample time and approach in holistic manner (meaning look at all the things you need to do to restore your health).

Please be open and explore. You never know what is ahead for you when you are exploring.

Have fun,

Hari

PS: I wish someone who can contact Dr. Bateman points her to this post. I heard she loves to take on controversy. A 16 year real FMS / CFS sufferer and expert commented something against her approach. With due respect to her, I love to hear from her. Or even the entire medical community for their paradigm.

For sure they say we save lives: I salute them for the same. I am looking a solution that gives life apart from saving lives.

I believe the combination of modern medicine and alternate methods would save lives and give life as needed.
 
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Hari

Active Member
Luke, I agree with every word you wrote. Fortunately for us, there are more scientists than ever working on unraveling this terrible disease, and more government funding too. Whoever unlocks this thing is going to be world-famous, so there is a huge incentive in the scientific community, and perhaps in the pharmaceutical world as well, to get to the bottom of this. So I'm hopeful for effective treatment within the next 2-3 years.

Dear KeepingHopeAlive,

You have a solution for your disorder right now if you are open and willing to explore. Your hope may turn into faith that you recover quicker than you imagined.

You need not suffer for the next 2-3 years for some miracle drug to save you. I assure you even if they find a drug, you will have lots of side effects.

Have fun,

Hari
 

Hari

Active Member
Luke,

To have a clear picture of how sadly low the survivor rate of cancer patients please see the report by American Cancer Society. They estimate even by 2022 the survival rate remains the same (very, very sad). For men prostate cancer survival rate is over 40%, for others the rate is less than 8% and even sadly less than 3% for some. Please see the PDF report for complete details.

Do you know what is happening to the remaining 92% or 97% of the families? Can you even imagine the quality of life of those who survived? Please see if you can find out the same when you have more energy.

This is after spending billions of dollars and few decades in research. This is the pathetic treatment method we have.

I hope now for all of those who strongly believe modern medicine is the only approach I provided enough scientific evidence on our scientific community's work on cancer treatment end result.

Cancer Survial rate in USA.PNG

Have fun,

Hari

PS: I very strongly believe, very, very strongly believe, individuals like me and groups like us must join hands. Then demand and voice that the treatments must be life giving and enhancing, not life saving or extending. Otherwise the SEID situation will also become THE same as that of cancer even after a decade or two of scientific study and approach with billions of dollars investment. On the other hand, once we bring a paradigm shift (or transformed thinking) in SEID community, the same will spread to others and indirectly we will help every other life style related disease fighting individual on planet earth to lead a good life :) :)
 

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Suella Postles

New Member
Dr. Wayne Anderson has been puzzling over and treating chronic fatigue syndrome (ME/CFS) for over 30 years. A couple of years ago he took a refreshingly honest look back at what he’s learned in an article "The New Era of the Virus: A Personal Learning Curve of the Etiology of CFS/ME". ME/CFS is too often treated by practitioners in online articles as a relatively easy to treat illness. That's clearly not so and Anderson's many different (and often failed) attempts to use emerging treatments over time reflects that.

In the article Anderson traced many of the treatments (fads?) the alternative medicine movement has focused on with regard to this disease.

Epstein-Barr Virus

[fright]View attachment 619 [/fright]ME/CFS first showed up for Dr. Anderson, as it did for many practitioners in the 1980s as a chronic Epstein-Barr virus infection. With the treatment remedies available unable to significantly impact the infection, Dr. Anderson reported that the attention shifted to yeast (Candida) and the gut. (Anti-candida treatments may have been the first (unsuccessful) treatments I received for my ME/CFS).

The rise of functional medicine in the 1990’s brought a focus on issues like gluten intolerance, food allergies, heavy metals and hormones. They certainly helped some people but when they weren't the answer, the emphasis shifted, particularly in some parts of the country, to Lyme disease. At one point, Anderson noted, he believed everyone with chronic fatigue syndrome probably had a tick borne illness but antibiotics only worked for a few. Ultimately for the non-Lyme patients, Anderson returned back to the viruses, particularly noting strangely high Epstein-Barr virus titers (high early antigens (> 1:640)) he found in many of his patients.

Antiviral Drugs

This time, however, he had a new tool - alpha-N-acetylgalactosaminidase or nagalase - an enzyme produced by viruses that is able to halt macrophage functioning in its tracks. Dr. Anderson reported that he’s found high nagalase levels virtually every ME/CFS patient he believes has viral issues. Every time he’s successfully treated one of those patients their Nagalase levels have dropped as well.

Anderson’s return to a viral conception of difficult to treat ME/CFS patients coincided with new hypotheses suggesting how Epstein-Barr virus causes chronic illnesses. Queensland researcher Dr. Michael Pender has posited two factors are necessary - both of which may be present in ME/CFS: pour cytotoxic T and NK cell functioning. Yale researcher Dr. David Dreyfuss believes EBV infected B cells are driving autoimmunity.

Both Pender and Anderson, however, have had marginal success with anti-herpes virus drugs. Anderson reported that they can reduce symptoms, but believes they could take decades to eliminate the virus hiding in the B cells. Anderson does not state how long his treatment protocols were but does acknowledge they may not have been long enough. (Dr. Lerner has had success with very long treatment protocols. Other doctors such as Dr. Dantini have reported success using anti-herpes drugs. Still, it’s not that difficult to find ME/CFS patients who have not responded or who have only responded moderately to these drugs.)

XMRV brought up the possibility of using retroviral drugs. Dreyfus’ belief that an endogenous retrovirus may be triggering an autoimmune reaction suggested that antiretroviral drugs that targeted both retroviruses and herpesviruses could be helpful, and indeed in some patients some miraculous recoveries were reported. (I know of one person who did better on antiretroviral drugs than anything else she’s tried, but the side effects in the end proved to be too much.) The side effects, expense, and otherwise not particularly significant effects most kept these drugs for the most part off limits.

Antiviral Herbs

In the end, Anderson reported that aside from antiviral drugs (that were helpful only for a few patients) he found little in the pharmaceutical drug world to help his ME/CFS patients. Instead Anderson reported much better success with herbal extracts developed by Byron White. White has developed many extracts he asserts that “energetically” neutralize specific viruses and other pathogens. He uses Chinese concepts of energy meridians to help explain how the energetic process works.

[fleft]View attachment 620 [/fleft]Anderson lauds White on the front page of Anderson’s website stating that he has found them “indispensable” for treating Lyme disease and other neurodegenerative disorders and that he’s used them in thousands of patients. He predicted they will quickly “become an essential therapeutic tool in the treatment of Chronic Lyme disease and the other chronic fatigue-like illnesses”.
Anderson reported that he finds the A-V combination very beneficial for ME/CFS patients with viral issues particularly those with central nervous system symptoms such as brain fog, cognitive problems, headache and dizziness. An immune adaptogenic formula he finds A-V both “provoking and regenerative”.

Could herbal extracts be more powerful than antiviral drugs? Anderson’s report is intriguing because he has tried both and has clearly had more success with herbal treatments. A recent study Health Rising reported on suggested that antiviral treatments could be as effective as antibiotics in treating irritable bowel syndrome.

The catch with White’s formulas is that they are only provided to physicians; i.e. you have to see a physician who is using them to get access to them. (Check out White’s website here. The website has the kind of dated and amateurish presentation that does not help its credibility.)

Anderson loves the Byron White extracts but even they don't necessarily provide a straightforward treatment path. There is no cookie-cutter approach with these extracts. There is no set dose and the dosing schedules vary depending on an individuals response. Furthermore, Anderson states that as many as 85% of his patients with unresolved infections and neurotoxic problems have other conditions that have developed over time. Often some sort of catastrophic event throws their immune system into further disarray. These are, in the end, complex diseases.

Hormones

In a 2014 interview focusing mostly on Lyme disease but which is clearly relevant to ME/CFS Anderson talked about another important facet in functional medicine – bio identical hormones. Bio-identical hormones form the backbone of many functional practitioner’s treatment protocols. Anderson believes that people with adequate hormonal levels can deal with the chronic inflammation brought on by infections. Knock those hormonal levels down, though, and they’ll have significant problems. Women entering menopause, in particular, can experience debilitating symptoms.

Anderson often finds evidence of hormone dysregulation in chronic fatigue syndrome, but unless their hormonal levels are significantly out of range, does not begin hormone replacement early. (Other practitioners will prescribe hormones based on symptoms.) As with the viral issues he’s found that bio- identical hormones don’t always work in some patients with clear hormonal problems. Even when improvement is made it’s usually followed over time by a return to baseline. Anderson’s general thesis is that an underlying infection is probably present in patients who respond poorly or unusually to a generally effective therapy.
Anderson practices at the Gordon Medical Center in Santa Rosa, Ca.
You may want to look at this chapter in Dr. Sarah Myhill's 2015 book about how we get into and get out of ME. Written by one of her patiients who is a mathermetician, it makes it clear how we can recover and then relapse. This keeps me using those techniques which lower or remove my symptoms and gives me hope.
http://www.drmyhill.co.uk/wiki/CFS_-_Catastrophe_theory:_why_we_get_into_and_how_we_get_out_of_CFS
 

Hari

Active Member
@Suella Postles ,

Thanks a lot for the PDF from Dr. Myhill web site on CFS Catastrophe theory. I followed the same protocol on natural dietary supplements by not knowing all the details, through self study. I took most of the steps through gut feeling after some research.

The more I read on what others did my confidence level on my judgement is increasing as others in the other parts of the world followed exactly the same process / protocol as.

Thanks a lot once again.

Have fun,

Hari
 

Scotty81

Member
Hi Cort,

Thanks for the interesting article. I do have a tangential question. Do you know what lab that Dr. Anderson uses, or used, to measure nagalase levels? The reason I ask is that I once had a conversation with a world famous CFS doc (who I will not name), and he mentioned that nagalase levels can detect whether one has a viral component to this illness or not. That is, he felt that if one was exposed to a virus, their immune system would likely be up-regulated and that they would be good candidates for certain treatments. And, he felt that viral illness was a root cause for practically all the cases he treated. In my humble opinion, I think this might true for many, but certainly not all such cases.

My reall issue with his statement was that he also said he never found any lab in the United States that he felt was good in producing reliable nagalase level lab results. Therefore, he suggested I not bother to get my daughter tested at all for nagalase level. I challenged him when he said that and he said that . He guaranteed me that if he took 3 different blood samples from the same person, labeled them with 3 different names, and then sent them into a laboratory (which I know has been mentioned on this or the Phoenix Rising site at providing a lab test for methylation status), he would get test results with 3 different levels of nagalase. I had no way to counter that, but have also not had my daughter tested either just yet.

I would think that laboratories must have some sort of internal quality control so they know the reliability of their own testing methods. But, I doubt they would reveal that to the general public. Since the CFS doc also mentioned that nagalase levels are high when you either have 1) immune response to viral exposure or 2) cancer, I would think/hope that the cancer researchers would have figured out how to measure this level reliability. So, knowing what lab Dr. Anderson used, or can recommend, might help providing supporting evidence (or not) whether my daughter's particular issues are viral related or not.

Feel free to send Dr. Anderson this email. If you also need to edit it - in case I have provided too much detail about docs and labs, please do.

Regards,
Scotty81
 

Merida

Well-Known Member
I don't think we can ignore the possibility of the placebo effect in any of these therapeutic modalities. The power of the mind -body complex seems poorly understood and appreciated. But, this may be the most important 'new' therapy of the future? To appreciate what is possible read Spirit Talkers by William Lyon - a retired professor of anthropology and religion. It sure seems that there is a new virus among us - one that a certain group of us can't seem to clear?
 

GracieJ

Active Member
Then don't be ignoring the placebo effect in any of the 8,000 drugs now pushed on people.

Medicine is medicine - or not.
 
You may want to look at this chapter in Dr. Sarah Myhill's 2015 book about how we get into and get out of ME. Written by one of her patiients who is a mathermetician, it makes it clear how we can recover and then relapse. This keeps me using those techniques which lower or remove my symptoms and gives me hope.
http://www.drmyhill.co.uk/wiki/CFS_-_Catastrophe_theory:_why_we_get_into_and_how_we_get_out_of_CFS
@SuellaPostles, thank you for the link. I was hoping the chapter link had a paragraph at the end to summarize the Catastrophe theory and brief description of steps to get out of it. It does not. :(
If anyone is able to focus to read it and share a brief summary it would be much appreciated. Thank you:)
 

Hari

Active Member
@GratefulWarrior, Wow, I liked your display name. Your display name put a smile in my face.

I just copied from catastrophe theory what I feel is most important. I hope this is brief enough and you can read comfortably and understand.

***** *****

CFS - Catastrophy theory of treatment protocol, recovery and relapse  - Figure 17.PNG

Complying with the individualised treatment protocol will yield results in the form of decreasing levels of fatigue and this will be sustained but perhaps not very marked initially.

At a certain point of compliance with the treatment protocol, the patient arrives at a ‘tipping point’ and will suddenly move from a CFS state to a non-CFS state – this is the drop from A to A’ on the graph.

After arriving at a non-CFS state, the patient can see further improvements in his/her health by continuing to comply with the protocol and will eventually arrive at a very comfortable state – point Y on the graph.

If the patient lapses on the protocol then s/he can ‘get away’ with this for quite some time. In fact, s/he can stay in a non-CFS state with less compliance to the treatment protocol than it originally took to ‘flip’ him/her out of the CFS state – that is, point B is to the left (and therefore less protocol compliant) than point A.

However, eventually, continuing reductions in compliance with the protocol will bring the patient to point B and s/he will ‘flip’ back into a CFS state. This is the ‘flip’ from B to B’. Having reached point B’, the patient will then require renewed vigour in protocol compliance in order to get to the point (that is, point A) where s/he will ‘flip’ back into a non-CFS state.

We should all be putting in place the measures to improve health, and to stay well clear of the tipping point B so as not to risk the devastating ‘flip’ into CFS

Figure 18 - those who had been having CFS for long time, they may take more time to reach "tipping point" and non-CFS state.
CFS - Catastrophy theory of treatment protocol, recovery and relapse  - long term CFS.PNG


Some people may have quantum leaps progress, in that case the progress may look like in Figure 20.

CFS - Catastrophy theory of treatment protocol, recovery and relapse  - stepped graph levels.PNG


I see my recovery process is as per Figure 20.

Have fun,

Hari
 
@GratefulWarrior, Wow, I liked your display name. Your display name put a smile in my face.
Thank you so much for the summary of The Catastrophe Theory, @Hari. Very kind of you:)
Unless I am interpreting Dr. Myhill' s Catastrophe theory wrong, my two cents perspective / response to Dr. Myhill's Catastrophe Theory would be that the theory is 1. a bit 'premature' and unmeasurable due to many factors. It hits 2. I sum the catastrophe theory up as "duh!". After all of the treatment protocols I have been compliant with thru physicians of all kinds over the years to no avail and now often on my own, I am a hard sell. 3. Unless dr. Myhill is actually talking about exacerbation and remission of cfs symptoms when she speaks of going 'in and out' of cfs in her Catastrophe Theory, she must be talking only about people with cfs less than 3 years in this day and age . And what magical treatment protocol that if compliant does she know of that actually takes any of us with multifacted, multi complicated , comorbidity, conifection, uniwue to each individusl supposed cfs? I have to question many facets of this catastrophe theory. If one could come "out" of cfs, I ' d question correct patient diagnosis to start. I ve read Dr Myhill's works in the past. I appreciate her dedication. I am really hoping I have misinterpreted The Catastrophe Theory.
 

Hari

Active Member
@GratefulWarrior

I completely see from you are coming and understood your pain as well.

After several years of slow and steady progress, based on my personal experience, the catastrophe theory is valid and correct, provided the following pre-conditions are met by the SEID individual:

1. The SIED individual is on right treatment protocol towards recovery
2. The recovery actually started (or started to have sense of well being)

The question is what is the right treatment protocol to each SEID individual?

**** ****

On a side note, being new to any CFS community, with excitement, I communicated and posted a lot on my recovery and in very long posts. Many reacted to my posts in disbelief. I asked Cort for feedback on what aspects of my communication provoked disbelief. He is kind enough to say that people tried many aspects with no avail and if some says they achieved success it is hard to believe, plus you asserted on the result.

Now I consider to re-post in different categories and under different threads / blog / polls by distinguishing various aspects. Before that if you can read whatever you can, please do so.

I developed a frame work for myself as mind map and I keep on looking for various treatment techniques based on the same. Over a period of time (say 6 yeas as of 2015) I started to get into right protocol inside a frame work. I am still correcting myself as I learn more. Please see if it makes sense.

Please post your comments.

What to Consider for SEID recovery.jpeg
 
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Hari

Active Member
@GratefulWarrior

Am I safe to say the FMS / CFS (SEID) treatment protocol must:
Enhance body’s health building capability and build health without any side effects for long enough until completely recovery.

If you agree with the above statement, could you please check if the protocols you followed matches the same?
If you do not agree, then could you please share your views?
 
@GratefulWarrior

I completely see from you are coming and understood your pain as well.

After several years of slow and steady progress, based on my personal experience, the catastrophe theory is valid and correct, provided the following pre-conditions are met by the SEID individual:

1. The SIED individual is on right treatment protocol towards recovery
2. The recovery actually started (or started to have sense of well being)

The question is what is the right treatment protocol to each SEID individual?

**** ****

On a side note, being new to any CFS community, with excitement, I communicated and posted a lot on my recovery and in very long posts. Many reacted to my posts in disbelief. I asked Cort for feedback on what aspects of my communication provoked disbelief. He is kind enough to say that people tried many aspects with no avail and if some says they achieved success it is hard to believe, plus you asserted on the result.

Now I consider to re-post in different categories and under different threads / blog / polls by distinguishing various aspects. Before that if you can read whatever you can, please do so.

I developed a frame work for myself as mind map and I keep on looking for various treatment techniques based on the same. Over a period of time (say 6 yeas as of 2015) I started to get into right protocol inside a frame work. I am still correcting myself as I learn more. Please see if it makes sense.

Please post your comments.

View attachment 674
@GratefulWarrior

I completely see from you are coming and understood your pain as well.

After several years of slow and steady progress, based on my personal experience, the catastrophe theory is valid and correct, provided the following pre-conditions are met by the SEID individual:

1. The SIED individual is on right treatment protocol towards recovery
2. The recovery actually started (or started to have sense of well being)

The question is what is the right treatment protocol to each SEID individual?

**** ****

On a side note, being new to any CFS community, with excitement, I communicated and posted a lot on my recovery and in very long posts. Many reacted to my posts in disbelief. I asked Cort for feedback on what aspects of my communication provoked disbelief. He is kind enough to say that people tried many aspects with no avail and if some says they achieved success it is hard to believe, plus you asserted on the result.

Now I consider to re-post in different categories and under different threads / blog / polls by distinguishing various aspects. Before that if you can read whatever you can, please do so.

I developed a frame work for myself as mind map and I keep on looking for various treatment techniques based on the same. Over a period of time (say 6 yeas as of 2015) I started to get into right protocol inside a frame work. I am still correcting myself as I learn more. Please see if it makes sense.

Please post your comments.

View attachment 674
@Hari. Thank you for your reply. I absolutely agree with your #1&#2 as it pertains to the Catastrophe Theory and/or my "compliance" with any treatment. Very well said.

Your algorithm looks great for you. :)

It looks similar to a nursing care plan
I did many times while obtaining my BSN in the 80s.
When I graduated and was on the job as a BSN, RN at a large hospital, we hated these nursing care plans. Lol. Because they were just mandated required busy work of minimal to no value in patient care.

I like that your 'Care plan' is individualized for you. Valuable to you.

Writing out a care plan to keep yourself on track is excellent.
I love your excitement in wanting to share and help others:) And i am so very happy when anyone feels even a little bit better. Yea!:)
Yet I can see why you may not be getting the warmest response or buy in on your treatment plan.
You asked me to comment so please know I mean no disrespect. :
Based on the algorithm you shared and without going into detail nor asking for a debate , I ' d question if our diagnosis were even similar based on the treatments that work for you.
Who knows, I could be the one with the misdiagnosis not you.
My body's response to many of your algorithm treatments that work best for you elicit/ed zero improvements and/or horrific exacerbations in my body symptoms.
As i read the treatments in your algorithm a " been there done that" response came to mind.

I 'm sure the above is not news to you as you indicated Cort's kind feedback pointed in this same direction.
You stay excited and keep that spirit of paying it forward, @Hari!
This is a multi system, multi faceted, many mutli misdiagnoses and wrong diagnoses.

It always helps to know others effective treatments. Even to make a mental note that " I don't think I have what @ Hari( or insert any name here) has."

Have a great day and thanks again:)
 

Hari

Active Member
Thanks @GratefulWarrior for your feedback.

Now I started to see the background of relatedness that each and every individual may be coming from while reading any post or any solution.

The more feedback I get, the more I am learning about others. I almost worked in isolation with little interaction with the normal society and also other FMS / CFS individuals. But I had lot of interaction those who could be of some help to me.

You mean to say you did you did most from my protocol, and still did not obtain the desired result, instead it was opposite – exacerbations.

Did you try all / most of them at a time, or one by one?
 

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