Tina
Well-Known Member
I saw an article today about this beautiful 21 year old girl who died from ME/CFS. Evidently her family will be fighting to get that designation. It got me thinking how much say might someone have in what gets put on their death certificate?
I have had ME/CFS since 2008 (or 2007), but like many long term sufferers, about 5 to 6 years in the illness begin to morph into more severe symptoms. I developed lung and muscle issues that were ultimately diagnosed as Antisynthetase Syndrome.
I consider this a comorbid illness. My feeling is that the ME/CFS primed me for the Antisynthetase Syndrome. I do not believe I simply had Antisynthetase Syndrome for 10 years before they figured it out.
But reading about Merryn Croft got me thinking when it comes down to it, who decides what goes on the death certificate. I very much want ME/CFS on mine.
Thoughts?????
Here is the article:
http://www.dailymail.co.uk/news/art...-weighing-just-six-stone-wasting-away-ME.html
I have had ME/CFS since 2008 (or 2007), but like many long term sufferers, about 5 to 6 years in the illness begin to morph into more severe symptoms. I developed lung and muscle issues that were ultimately diagnosed as Antisynthetase Syndrome.
I consider this a comorbid illness. My feeling is that the ME/CFS primed me for the Antisynthetase Syndrome. I do not believe I simply had Antisynthetase Syndrome for 10 years before they figured it out.
But reading about Merryn Croft got me thinking when it comes down to it, who decides what goes on the death certificate. I very much want ME/CFS on mine.
Thoughts?????
Here is the article:
http://www.dailymail.co.uk/news/art...-weighing-just-six-stone-wasting-away-ME.html
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
