Julie Rehmeyer writes about PACE in Slate

[Merry]

An article by Julie Rehmeyer about CFS and the PACE trial appears in today's Slate:

http://www.slate.com/articles/healt...ace_trial_is_flawed_should_be_reanalyzed.html

Slate is an important news and opinion website with a wide readership.

 

[Merry]

Great article. Comprehensive. Straightforward.

I notice, however, that the caption on the first photo, one of Jennifer Brea writing at a white board (with an explanation that she's making a documentary), describes her condition as severe, and then the caption of the third photo, this of the bedbound, emaciated Whitney Dafoe, says his CFS is severe. Calling both "severe" will be a problem for readers unfamiliar with the illness or with a bias against patients. Jen Brea recently described her condition (in a Facebook post?) as moderate.

 

[Tina]

@Merry , thank you for posting this. After reading about Natash in the U.K. I was a bit frustrated (from Cort's post this morning). That is what I love about this site; the only place I can go where people understand what is going on.

 

[Tina]

Music to my ears..

Just a year ago, both the public criticism of the PACE trial and the moves by the NIH were nearly unimaginable. But to me, these events feel like the fruits of change that’s been cultivated over years

 

[Merry]

Yahoo News has picked up the story.

Now I've googled and see that other websites have links to the story. I'm not familiar with the websites so can't say if they are news aggregators or what.

 

[Cort]

An article by Julie Rehmeyer about CFS and the PACE trial appears in today's Slate:

http://www.slate.com/articles/healt...ace_trial_is_flawed_should_be_reanalyzed.html

Slate is an important news and opinion website with a wide readership.

Thanks - what a superb article by Julie. It's great to have a journalist with ME/CFS on our side.

 

[Cort]

Music to my ears..

Just a year ago, both the public criticism of the PACE trial and the moves by the NIH were nearly unimaginable. But to me, these events feel like the fruits of change that’s been cultivated over years

Nothing but encouraging press for us at least on this side of Atlantic.