Who Me?
Well-Known Member
First, I am laying down all the time (that's a discussion for another day).
Tuesday, out of the blue I started having this bizarre symptom. Right in the center of my chest, close to the surface, I would get this wave of sensation. Not pain, but pain, not burning but sort of burning? Like an alien is moving in there. Sometimes the wave will radiate out to my breasteses and I get a sharp pain in my left shoulder blade. It sometimes goes up but only mid chest at most. I was in serious PEM so everything just seemed even "more".
Later in the afternoon it dawned on me that it might be reflux since it seemed better when I was upright, so I started approaching it that way. I drank apple cider vinegar and that seemed to help temporarily. Later i tried baking soda. But by this time I had horrible, painful bloat, which I'm thinking is from the ACV or baking soda. By 9 pm I had all sorts of weird pains, my gut, my knee, I mean WTH?
I slept great, woke at 4 (don't ask me why) and laid on my stomach for about 2 hours when the first wave started. Mild at first. I got up to do a few things and noticed it was gone and when I got back into bed it went away for quite awhile.
I had a very bland breakfast and i did have some sensation right after eating. Again not burning like acid going up into my esophagus. No coughing, no weird taste. That went away shortly. I've been laying on my left side, sort of propped up for about an hour and it just now started happening again.
I'm trying to 1. figure out what this is 2. who would I see 3. would my pcp even have a clue 4. is this some weird ME thing. It IS NOT cardiac. I just had an ECG and labs. Maybe some weird valve thing?
Let me know if you need more info. I may have left something out.
Please don't give me links to a bunch of studies, it's beyond me. I'd just like other's thoughts so I can figure this out.
I am an adult with connected brain cells. I know you are not doctors or diagnosing me.
Tuesday, out of the blue I started having this bizarre symptom. Right in the center of my chest, close to the surface, I would get this wave of sensation. Not pain, but pain, not burning but sort of burning? Like an alien is moving in there. Sometimes the wave will radiate out to my breasteses and I get a sharp pain in my left shoulder blade. It sometimes goes up but only mid chest at most. I was in serious PEM so everything just seemed even "more".
Later in the afternoon it dawned on me that it might be reflux since it seemed better when I was upright, so I started approaching it that way. I drank apple cider vinegar and that seemed to help temporarily. Later i tried baking soda. But by this time I had horrible, painful bloat, which I'm thinking is from the ACV or baking soda. By 9 pm I had all sorts of weird pains, my gut, my knee, I mean WTH?
I slept great, woke at 4 (don't ask me why) and laid on my stomach for about 2 hours when the first wave started. Mild at first. I got up to do a few things and noticed it was gone and when I got back into bed it went away for quite awhile.
I had a very bland breakfast and i did have some sensation right after eating. Again not burning like acid going up into my esophagus. No coughing, no weird taste. That went away shortly. I've been laying on my left side, sort of propped up for about an hour and it just now started happening again.
I'm trying to 1. figure out what this is 2. who would I see 3. would my pcp even have a clue 4. is this some weird ME thing. It IS NOT cardiac. I just had an ECG and labs. Maybe some weird valve thing?
Let me know if you need more info. I may have left something out.
Please don't give me links to a bunch of studies, it's beyond me. I'd just like other's thoughts so I can figure this out.
I am an adult with connected brain cells. I know you are not doctors or diagnosing me.