Search results
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James Coyne: No to video gaming treatment research!
Katia Ferrar, Ashleigh Smith, and Kade Davison are clueless.- Merry
- Post #5
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Is cleanliness next to... sickliness?
Research on the hygiene hypothesis is really intriguing, and I hope to see more. The hypothesis, however, doesn't jibe with my own experience of -- because my mother was ill with ME/CFS and asleep much of the time -- having grown up in a dirty house. I also spent lots of time outside in the...- Merry
- Post #2
- Forum: General Discussion
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James Coyne: No to video gaming treatment research!
James called these "active" video games, which I understood to mean that players would be standing up and moving about in response to the games. Is that right? I have not played video games (unless a few goes at Pong and Pacman in the late seventies counts).- Merry
- Post #3
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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James Coyne: No to video gaming treatment research!
At his blog Quick Thoughts, James Coyne today called on Australian patients to refuse to register for a study using dance and sports video games as treatment for ME/CFS. In a long post he details what is wrong with the study (let's start with the study's premise that exercise is just what...- Merry
- Thread
- Replies: 29
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Forbes contributor includes Ron Davis/ Whitney Dafoe story
In a opinion piece in Forbes, a business and finance magazine, physician Paul Hsieh points to three recent news stories about "patients and families seeking the best health care values for themselves and their loved ones through science and technology." The story of geneticist Dr. Ron Davis's...- Merry
- Thread
- Replies: 2
- Forum: ME/CFS and FM News
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NIH Request for Information: Soliciting Input for New Research Strategies for Myalgic Encephalomyeli
Ok. I will stop worrying about this.- Merry
- Post #7
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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NIH Request for Information: Soliciting Input for New Research Strategies for Myalgic Encephalomyeli
Oh. This is what Jenny wrote:- Merry
- Post #5
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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NIH Request for Information: Soliciting Input for New Research Strategies for Myalgic Encephalomyeli
Jennie Spotila wrote about this request for information at her blog published May 30th: http://www.occupycfs.com/ . Jennie says it's important to respond, and I might be willing to write something, but I hardly feel qualified to advise NIH on research strategies.- Merry
- Post #3
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Losing my voice
Hi, Fritz. During telephone conversations I sometimes begin to lose my voice, and at that point I say goodbye. I have never lost my voice completely. I have just assumed that the muscles that produce sound become fatigued like any other muscles. As the years of illness have gone on, I have... -
Chalder Meets Truth
Yes, it is upsetting. As you wrote, I was editing my post to add a similar sentiment about missing the point of the story.- Merry
- Post #8
- Forum: General Discussion
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Chalder Meets Truth
I was put off by the PR members who criticized him for throwing the cup. Someone said throwing the cup undercut his moral authority. I don't agree. Throwing the cup is such a very minor part of the story of the harm done to patients by Trudie Chalder and her research colleagues.- Merry
- Post #6
- Forum: General Discussion
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Chalder Meets Truth
I see, @Empty, on Phoenix Rising, that the university where Trudie Chalder spoke has decided to file charges against Marky90 for interrupting her speech. If I understand correctly, they are also filing charges against him for throwing to the floor a coffee cup, which shattered and broke a glass...- Merry
- Post #3
- Forum: General Discussion
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In IBS zombie bacteria wreak havoc
In this rather long article in Nature, Sujata Gupta writes about researchers who are trying to figure out why some intestinal infections become the chronic disorder Irritable Bowel Syndrome. The section on the research of pathophysiologist Andre Buret at the University of Calgary, Canada, I...- Merry
- Thread
- Replies: 0
- Forum: Other Research
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Blue Ribbon meets with Sen. Cassidy and healthcare aide
After the MillionsMissing protest in Washington, DC, Ryan Prior and other members of the Blue Ribbon Foundation met with Pranay Udtha, healthcare aide to Senator Bill Cassidy, and with the Senator himself. Junior senator of Louisiana, Bill Cassidy is also a physician who would like to reform...- Merry
- Thread
- Replies: 1
- Forum: Advocacy, Contests and Events
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Rivka Solomon's STAT article picked up by other news outlets
Business Insider often publishes health stories.- Merry
- Post #6
- Forum: Advocacy, Contests and Events
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Rivka Solomon's STAT article picked up by other news outlets
Thanks, @Remy. I wondered about the spelling. Her surname appears as "Solomon" in other sources, so I will go with that and correct the thread title.- Merry
- Post #5
- Forum: Advocacy, Contests and Events
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Congressional Pack Offer Extended Through May 31st
bump- Merry
- Post #3
- Forum: Advocacy, Contests and Events
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Rivka Solomon's STAT article picked up by other news outlets
The article that Rivka Solomon wrote about her life with ME for Awareness Month, which first appeared in STAT, was republished in Business Insider last week and has now been published in The Week. Both republications appeared in the Yahoo News feed...- Merry
- Thread
- Replies: 5
- Forum: Advocacy, Contests and Events
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Are Alzheimer's (and other Neuroimmune Diseases) Caused by Infection?
I liked this article in Scientific American on the subject: http://www.scientificamerican.com/article/antimicrobial-mechanism-gone-rogue-may-play-role-in-alzheimer-s-disease/ The article mentions that as we age the blood brain barrier becomes more permeable. But what causes the barrier in...- Merry
- Post #4
- Forum: Other Research
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Congressional Pack Offer Extended Through May 31st
bump- Merry
- Post #2
- Forum: Advocacy, Contests and Events
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![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
