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  1. Merry

    Video: 2 friends talk about life with ME/CFS

    This week Tom Kindlon shared on Facebook a video of two young women discussing what living with ME/CFS is like. They speak candidly and with good humor. It was uploaded to YouTube in 2008, but this week was the first time I'd seen it. It was produced by artist Dr. Franky Dolan, who is...
  2. Merry

    General Anesthesia

    Good luck, Tina. I can see why this is a difficult decision. I guess you have some time, though, to collect your thoughts and make arrangements. Yes, let us know how you get along.
  3. Merry

    Medical error third leading cause of death in US

    Ariana Eunjung Cha reports today in the Washington Post on a newly-published paper by patient safety researchers in the BMJ that concludes that medical error is the third leading cause of death in the US after cancer and heart disease. And severe injury caused by medical error, the article...
  4. Merry

    CBT for insomnia

    Ha, ha. In an early scene of Mike Leigh's "Another Year," a woman consults a doctor about insomnia. The doctor tells her that insomnia is not a medical condition and refers her to a talk therapist.
  5. Merry

    Why are your gut microbes different from mine?

    There's some speculation in this paragraph: The final paragraph emphasizes just how little we know about the species that populate the gut: Microbiome research, Ed Yong says, is where genetics was a few years ago -- mostly hype.
  6. Merry

    Llewellyn King gears up for Awareness Month

    An article by Llewellyn King about ME/CFS and the "Undies on the Outside" campaign has appeared in both Huffington Post and The San Diego Union-Tribune. http://www.huffingtonpost.com/llewellyn-king/underwear-goes-on-the-out_b_9800712.html...
  7. Merry

    Progressive brain changes in patients with CFS

    Thank you, @TonyL, for the links. The blog post on white matter and the article on white matter disease were both helpful -- and disturbing. I was especially interested to read about the problem with white matter in people with autism and about white matter disease deteriorating into vascular...
  8. Merry

    Stinging nettle is my friend!

    Would it be a problem for us that it is a diuretic?
  9. Merry

    General Anesthesia

    Anesthesia Recommendations for Chronic Fatigue Syndrome and Myalgic Encephalomyelitis: http://www.prohealth.com/me-cfs/me-chronic-fatigue-syndrome-anesthesia-recommendations.cfm Dr. Lapp's advice: http://drlapp.com/resources/advice-for-pwcs-anticipating-anesthesia-or-surgery/ Oh, I think...
  10. Merry

    Progressive brain changes in patients with CFS

    Progressive brain changes in patients with chronic fatigue syndrome: A longitudinal MRI study. Shan ZY1, Kwiatek R2, Burnet R3, Del Fante P4, Staines DR1, Marshall-Gradisnik SM1, Barnden LR1. http://www.ncbi.nlm.nih.gov/pubmed/27123773 What does this change suggest about the functioning...
  11. Merry

    Why are your gut microbes different from mine?

    In an Atlantic article published yesterday, the 28th of April, Ed Yong discusses the findings of two large studies, one Dutch, the other Belgian, comparing the gut microbiomes of individuals. The Dutch study looked at stool samples of 1,135 people, the Belgian, 1,106...
  12. Merry

    International Awareness Day - The 12 Days of May Project

    You can ask your library to order a copy of Forgotten Plague. http://www.forgottenplague.com/shop If the library purchases a copy, you get to see the film free, and you make it available for others in the community. I've had good luck over the years with my requests for libraries to purchase...
  13. Merry

    International Awareness Day - The 12 Days of May Project

    My source of information about this was a post by Tom Kindlon on the Co-Cure list. And he got the information from meaction.net: http://millionsmissing.meaction.net/virtual/ Sorry about your financial problems, @GG. I hope you get your disability soon. Yes, it would be nice to know if...
  14. Merry

    International Awareness Day - The 12 Days of May Project

    Forgotten Plague is offering to send members of Congress a dvd of the film plus a letter from Blue Ribbon through May 19th for $10 per Congressional Pack. http://www.forgottenplague.com/product/congressional-pack/
  15. Merry

    UK Pediatrician Prevented From Working With ME/CFS Kids

    I especially find shocking that a doctor can risk losing a license (is that the threat?) for simply expressing publicly an opinion about the nature of a disease and treatment that differs from -- what? -- another doctor, one with more power? -- the official view at the NHS?
  16. Merry

    UK Pediatrician Prevented From Working With ME/CFS Kids

    If anyone could explain to me why British doctors can be restricted as Dr. Speight has been, I would be most grateful. Does anyone know who complained about him and why?
  17. Merry

    The Mighty publishes invisible illness secrets

    In conjunction with PostSecrets, the disability website The Mighty has published twenty-one secrets submitted by people with invisible illnesses: http://themighty.com/2016/04/postsecret-people-with-invisible-illness-share-secrets/
  18. Merry

    Chalder Meets Truth

    What surprises and disturbs me is how amazed everyone else in the thread was that Marky90 would confront Trudie Chalder. Why has she not been confronted every time she speaks in public? Why, at this point, is she invited to speak anywhere? Months ago I was disturbed to read a post by...
  19. Merry

    Morning Research Headlines: Benadryl, Psoriasis

    Once again, thanks, @Veet. My nose doesn't run except at mealtime. Otherwise the "drip" is down my throat, at times so bad I can hardly swallow fast enough, and I have, during those episodes, imagined that it is my brains liquefying and spilling down my throat. This may indeed be happening...
  20. Merry

    Morning Research Headlines: Benadryl, Psoriasis

    Thank you. I had a negative reaction to quercetin, but I don't remember what exactly, and I don't remember the dosage. I will look up the other supplements you mention. Compared to a lot of people my sleep is not bad. The post-nasal drip ("drip" hardly seems an adequate term) can be bad...

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