Search results
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Science is Broken...'Scientific Regress'.
And this article, "The Unintended Consequences of the New Focus on Replicating Scientific Research," appeared in Slate yesterday. http://www.slate.com/articles/technology/future_tense/2016/04/the_unintended_consequences_of_trying_to_replicate_scientific_research.html I have only read a few...- Merry
- Post #4
- Forum: General Discussion
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Morning Research Headlines: Benadryl, Psoriasis
The doctor who diagnosed my CFS in 1990 recommended Benadryl at bedtime for sleep (and it helped the stuffy nose and postnasal drip). A few years later I asked another doctor about the safety of taking Benadryl every night. He said it was safe for long-term use. So I've been on it almost...- Merry
- Post #2
- Forum: General Discussion
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A Dating / Get Together Site for ME/CFS and FM ?
A friend mentioned a month or so ago that she had joined an ME/CFS/FM singles group on Facebook. I don't know the details and have emailed her to ask about the group. It might be this: https://www.facebook.com/groups/242414882495980/- Merry
- Post #13
- Forum: General Discussion
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PostSecret features ME/CFS card
Frank Warren asks: "What's a secret about your invisible illness you wish you could reveal to the world?" He says to write a short note and include, if you like, a photo. Your secret may be published at The Mighty, http://themighty.com/ . I think he means to post your secret about your...- Merry
- Post #2
- Forum: General Discussion
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PostSecret features ME/CFS card
PostSecret, "an ongoing community art project" curated by Frank Warren, includes in today's collection a postcard by someone with ME/CFS. If you'd like to see the other postcards or find out more about the project, the website address is http://postsecret.com/ . But please understand that...- Merry
- Thread
- Replies: 2
- Forum: General Discussion
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Put Yourself on the ME/CFS and/or Fibromyalgia Disease Maps
I created an account and gave my location, but although I can see my location on a map at my profile, I don't show up on the Chronic Fatigue Syndrome ME map. Next day: Never mind. Another member kindly helped me get on the map.- Merry
- Post #13
- Forum: General Discussion
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Put Yourself on the ME/CFS and/or Fibromyalgia Disease Maps
Several years ago I was asked to put myself on another ME/CFS map. Maybe the same website. The instructions for that one were to enter the location where I first became ill. Do I understand correctly that for this one I'm to enter my present location?- Merry
- Post #8
- Forum: General Discussion
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Fibromyalgia Doctor Touts Ketamine for Pain and Depression
I don't have an opinion about use of ketamine (and I have no reason to seek the drug for myself), but last week Rosemary Lee wrote in her blog Seeking Equilibrium warning people not to use the drug. http://rosemaryl.blogspot.com/2016/04/ketamine-for-fibromyalgia-not-yet.html- Merry
- Post #6
- Forum: Relieving Pain
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Zika linked to autoimmune disorder of the CNS
Julie Steenhuysen reports for Reuters Health on new research in Brazil that links yet another disorder to Zika infection. https://www.yahoo.com/news/brazilian-scientists-zika-linked-brain-disorder-adults-201228829.html- Merry
- Thread
- Replies: 0
- Forum: Other Research
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A "Forgotten Plague" Film Survey
Whitney's last name is Dafoe, not Davis.- Merry
- Post #6
- Forum: ME/CFS and FM News
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Civil rights lawyer takes Karina Hansen's case
British attorney and ME patient Valerie Eliot Smith also writes in her blog today about Karina Hansen's case. It is a long post, which recounts the history of the case and the complicated legal points, and I have just skimmed it...- Merry
- Post #2
- Forum: Advocacy, Contests and Events
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Civil rights lawyer takes Karina Hansen's case
Bente Stenfalk posted at the Justice for Karina Hansen Facebook page that the Civil Rights Movement (a Danish organization?) has found a lawyer to represent Karina Hansen. The post includes links I didn't quote. For more information go to the Facebook page...- Merry
- Thread
- Replies: 1
- Forum: Advocacy, Contests and Events
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Cort Johnson is ProHealth's ME/CFS Advocate of the Year!!
Congratulations, @Cort!- Merry
- Post #12
- Forum: ME/CFS and FM News
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James Coyne explains: "The limits of empathy"
@Empty, thank you for your kind words. Don't worry about having tagged me; I enjoy talking to you.- Merry
- Post #29
- Forum: General Discussion
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James Coyne explains: "The limits of empathy"
Do I understand the situation correctly that you are a friend of Angela Kennedy, and you are angry at James Coyne and Cort Johnson and are here to harass me?- Merry
- Post #26
- Forum: General Discussion
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James Coyne explains: "The limits of empathy"
I meant that I had not seen any tweets by Angela in James Coyne's feed a few days ago, before I answered @Empty's question. Look, I was just making conversation with Empty. I qualified my post by saying I have trouble following conversations on Twitter. I qualified my sentence on Angela...- Merry
- Post #25
- Forum: General Discussion
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James Coyne explains: "The limits of empathy"
Now that I've looked at the link Dx Revision Watch provided to Angela Kennedy's Twitter account I see that she complained about me spreading misinformation about her. This is bizarre.- Merry
- Post #22
- Forum: General Discussion
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James Coyne explains: "The limits of empathy"
I may be mistaken, but I think Angela Kennedy is a British academic whose child is or was ill with ME. I also have in my mind -- and, once again, I may be mistaken -- that "Angela Kennedy" is a pseudonym. I just thought it was odd that the record that Angela wanted set straight, here in...- Merry
- Post #21
- Forum: General Discussion
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![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
