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Help Dr. Klimas Crowd Source Data
I emailed the project to ask if data files from Genes for Good are acceptable. The advantage of the Genes for Good analysis is that it is free. I have sent in my sample to Genes for Good but not received the results.- Merry
- Post #2
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Resource Worlds Apart: The Doctors Who Treat Chronic Fatigue Syndrome and Fibromyalgia
Thanks, @Cort, but that is the same list that's at Erica's website. -
Resource Worlds Apart: The Doctors Who Treat Chronic Fatigue Syndrome and Fibromyalgia
Thanks, @jsuzor. The page doesn't load on the above link. I'll try again later. I should have mentioned in my post which links worked on the cfstreatmentguide.com doctors page. You are right that the first link, http://www.cfstreatmentguide.com/doctors-and-clinics.html, does bring up a... -
Resource Worlds Apart: The Doctors Who Treat Chronic Fatigue Syndrome and Fibromyalgia
At Erica Verrillo's Chronic Fatigue Syndrome Treatment Guide website is a list of sources of information about doctors. http://www.cfstreatmentguide.com/doctors-and-clinics.html Most of the sources no longer exist. The ProHealth database, which a couple of months ago was available, is now... -
Resource Worlds Apart: The Doctors Who Treat Chronic Fatigue Syndrome and Fibromyalgia
@jsuzor, Dr. Lerner died recently. I asked Tamesin privately for the names of doctors or a doctor in Cleveland, but she couldn't offer any. -
petition: Retract Misleading PACE Claims
Exciting, @Empty!- Merry
- Post #48
- Forum: Advocacy, Contests and Events
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petition: Retract Misleading PACE Claims
9927. So close!- Merry
- Post #46
- Forum: Advocacy, Contests and Events
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Julie Rehmeyer writes about PACE in Slate
Yahoo News has picked up the story. Now I've googled and see that other websites have links to the story. I'm not familiar with the websites so can't say if they are news aggregators or what.- Merry
- Post #5
- Forum: ME/CFS and FM News
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Julie Rehmeyer writes about PACE in Slate
Great article. Comprehensive. Straightforward. I notice, however, that the caption on the first photo, one of Jennifer Brea writing at a white board (with an explanation that she's making a documentary), describes her condition as severe, and then the caption of the third photo, this of the...- Merry
- Post #2
- Forum: ME/CFS and FM News
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Julie Rehmeyer writes about PACE in Slate
An article by Julie Rehmeyer about CFS and the PACE trial appears in today's Slate: http://www.slate.com/articles/health_and_science/medical_examiner/2015/11/chronic_fatigue_pace_trial_is_flawed_should_be_reanalyzed.html Slate is an important news and opinion website with a wide readership.- Merry
- Thread
- Replies: 6
- Forum: ME/CFS and FM News
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petition: Retract Misleading PACE Claims
8813 Actually, @Empty, I see the numbers on this petition as encouraging. For several years, I've been participating in online contests, trying to raise money for ME/CFS charities, and my impression has been that it's only a few hundred people worldwide who vote. But, slowly, more patients...- Merry
- Post #37
- Forum: Advocacy, Contests and Events
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petition: Retract Misleading PACE Claims
@Empty, I like your reflective nature. I don't know that I made a "good point," but I appreciate your interest. Perhaps the issue is that I've grown cowardly and am afraid of being rebuffed by, or alienating further, the few people I still have contact with. I agree that the PACE petition...- Merry
- Post #36
- Forum: Advocacy, Contests and Events
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![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
