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  1. Merry

    petition: Retract Misleading PACE Claims

    The #BlackLivesMatter petition was at the Color of Change website. If that's what you mean when you ask about Care2 petitions. Yes, I wish I knew how to get members of the general public to sign. I asked my son to sign, but I am not comfortable asking other family members or non-ME friends...
  2. Merry

    OMF Giving Tuesday campaign

    Beginning today, Tuesday, 3 November, give to the Open Medicine Foundation, and your donation will be matched three to one. https://app.etapestry.com/onlineforms/OMF/GivingTuesday.html This campaign continues through the first Tuesday of December, 1 December.
  3. Merry

    petition: Retract Misleading PACE Claims

    6551 I just received a request from #BlackLivesMatterNetwork that I sign a petition, and their petition generated 100,000 signatures in the first 24 hours. Edit: The email said 100,000, but when I went to the petition itself, the counter said 50,000. I mention this other petition only as a...
  4. Merry

    Uninterpretable: Fatal flaws in PACE Chronic Fatigue Syndrome follow-up study

    Yes, this is really good, Beth from Oz. Beyond this article James Coyne in the past week has, astonishingly, taken on UK journalists and editors over stupid articles about ME/CFS and PACE and has even gone around with Simon Wessely...
  5. Merry

    Former NHS employee who has ME loses faith in NHS

    Former NHS employee, academic, and clinician Lindy, in her blog Disabled in Tory Britain, writes about PACE and her disillusionment with the British healthcare system...
  6. Merry

    Mayo Clinic/other big institution work-up

    Maybe you, or some other reader of this thread, can tell me what happened to the doctor directory at ProHealth. I emailed ProHealth to ask (what happened to it and is it ever coming back?) many weeks ago and didn't receive a response.
  7. Merry

    ME/CFS gets new home within NINDS

    Ok, But until Monday's blog I can lie here in ignorant bliss.:cool:
  8. Merry

    petition: Retract Misleading PACE Claims

    I think Christian Godbout was kidding. This is what he said:" Not sure if my sources are reliable, but apparently Donald Trump made a comment on the Pace Trial controversy: 'Yeah the Pace Trial, I'm all for it, I just love this trial, cause it's HUUUUGE, 600 patients, 8 million bucks, that's...
  9. Merry

    petition: Retract Misleading PACE Claims

    Thank you, @Empty, for going to the trouble of looking this up. I will read the thread later when my head clears.
  10. Merry

    petition: Retract Misleading PACE Claims

    I've only seen links to the petition. What is your source of information about Donald Trump commenting on PACE? I wouldn't think that the general public, especially outside the UK, would be interested in PACE. If journalists in the UK understood what PACE represents and were willing to...
  11. Merry

    petition: Retract Misleading PACE Claims

    Whatever you think will help. I meant to bump this thread early this morning. Thanks for your post, @Empty.
  12. Merry

    ME/CFS gets new home within NINDS

    Carol Head, Solve ME/CFS Initiative president, has just announced in an email that the National Institutes of Health has moved ME/CFS research to a new "home" at the National Institute of Neurological Disorders and Stroke (NINDS). Read about this at the Solve ME/CFS initiative website...

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