Search results
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Common Abbreviations 1.0
It's Shyest Of Flies (used to go by shy fly but that name is commonly taken)- ShyestofFlies
- Post #2
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Common Abbreviations 1.0
ShyestofFlies submitted a new resource: Common Abbreviations 1.0 - Abbreviations you will commonly see used on the forums and on other chronic Illness sites. Read more about this resource...- ShyestofFlies
- Thread
- Replies: 1
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Common Abbreviations 1.0
Condition and Symptom Abbreviations Common Names: ME - Myalgic Encephalomyelitis CFS - Chronic Fatigue Syndrome SEID - Systemic Exertion Intolerance Disease PVFS - Post-Viral Fatigue Syndrome CFIDS - Chronic Fatigue and Immune Dysfunction Syndrome FM - Fibromyalgia FMS - Fibromyalgia Syndrome...- ShyestofFlies
- Resource
- Category: ME/CFS Overviews
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Recovery Story Survey Suggests Some Commonalities
I have to admit I am not a big believer in life style changes as effective reliable treatment in disorders where populations and lifestyles prior to the start of disease or illness begining are so varied. Seems like a good topic to start a survey about- I'll begin working on one tonight. Let's...- ShyestofFlies
- Post #15
- Forum: Others
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Quell (wearable TENS device)
I still can't figure out how to edit reviews! So I found out about this on inspire's eds site- my partner has hypermobile eds so I follow the forums over there. The thread I found is here but there is another thread I will link as well about it...- ShyestofFlies
- Post #3
- Forum: Relieving Pain
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Two Day Cognitive Test?
I think a few days of mental testing to map the decline between your average healthy person and people with me/cfs could be excellent data. A whole week of testing and mapping cognitive fatigue recovery times after that would be very useful to demonstrate the impact of cognitive energy stores.- ShyestofFlies
- Post #7
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Poll How long did it take you to get a diagnosis?
I had symptoms from a young age for fibro, impossible to tell when exactly they began. I started seeing my rheumatologist and within a year or two had a diagnosis of fibro. Me/cfs (or other mysterious post viral fatigue and malaise) wise my symptoms started in september 2015 and I still have no...- ShyestofFlies
- Post #2
- Forum: General
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Poll How long did it take you to get a diagnosis?
If you have both fm and me/cfs please post specifics. Please consider the start of seeking a diagnosis as the first time you saw a doctor for your symptoms, not just the onset of the symptoms.- ShyestofFlies
- Thread
- Replies: 4
- Forum: General
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Poll What type(s) of doctor gave you your diagnosis for ME/CFS?
Thank you so much everyone for sharing your stories, I cannot possible express how helpful this is to me. After my rheumatologist appointment I broke down and cried in the car because I felt hopeless and didn't know where to go next. Thanks to your experiences I now feel like I can forumulate...- ShyestofFlies
- Post #17
- Forum: General
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Novel Finding Sparks NIH Chronic Fatigue Syndrome (ME/CFS) Gut Study
Have you looked into a low fodmap diet? https://stanfordhealthcare.org/content/dam/SHC/for-patients-component/programs-services/clinical-nutrition-services/docs/pdf-lowfodmapdiet.pdf- ShyestofFlies
- Post #27
- Forum: ME/CFS and FM News
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Nuvigil (Armodafin
Dose: 100 (a 200 cut in half), name brand, sample pack Okay this is day one's summary: Physical energy increase? nope Mental energy increase? Maybe a little Brain fog? maybe a little Daytime sleepiness? I didn't take a nap today, but that's not completely atypical Side effects? A small amount...- ShyestofFlies
- Post #4
- Forum: Energy! Mitochondria, Methylation, B-12, etc.
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Poll Thinking of starting a series of small surveys...
Would anyone be interested in participating in a series of small (maybe 10 multiple choice) surveys about your experiences with cfs/me and fibro? Is it easier to answer questions one poll at a time and elaborate in the thread, or would you find it easier to answ a set of related questions in...- ShyestofFlies
- Thread
- Replies: 6
- Forum: General Discussion
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Poll Alcohol: How Well Do You Tolerate It?
Alcohol is basically poison to my body, I tried one hard lemonade at 16, one at 18, some passover wine at 21, and two varieties of beer since. I cannot tolerate the smell or taste of any alcohol, but when I did power through with the hard lemonades I felt so sick. Worst migraine of my life...- ShyestofFlies
- Post #26
- Forum: Symptoms
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Younger Pain and Fatigue Lab Expands: Live YouTube Event on Thursday (March 3rd)
Thanks for the notes Cort. If I were old enough I might consider that alcohol study, but I think I'd have to turn it down. Alcohol just ruins me. I think I'll make a post about that symptom.- ShyestofFlies
- Post #17
- Forum: Advocacy, Contests and Events
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Poll Were You Ever Prescribed Antidepressants for ME/CFS or Fibromyalgia?
I've been prescribed ADs for my fibro and mental health issues (mdd, gad, ptsd, ocd, others) Effexor is well documented as an aid for nerve pain in peripheal neuropathy... It did not help my fibro, my pn, or my mental health issues. It gave me bad side effects. Cymbalta was prescribed dor...- ShyestofFlies
- Post #32
- Forum: General
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All The Drugs And Supplements You Have At Home
A lot of multis seem to have PABA in them that I have found... My mom is allergic, so I am hesitant as well- ShyestofFlies
- Post #26
- Forum: General
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Novel Finding Sparks NIH Chronic Fatigue Syndrome (ME/CFS) Gut Study
Prior to my wastebasket ibs diagnosis, we did a bunch of tests... Gluten blood test, Colonoscopy, endoscopy, upper gi and small bowel follow thru, small bowel mri with contrast, and elimination diets for gluten, soy, dairy (I already don't eat dairy because I know it makes me ill), and acidic...- ShyestofFlies
- Post #14
- Forum: ME/CFS and FM News
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All The Drugs And Supplements You Have At Home
You sure those things aren't uhhh suppositories?- ShyestofFlies
- Post #16
- Forum: General
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All The Drugs And Supplements You Have At Home
* = currently take daily or regularly enough to mention Assume generic except plaquenil and Nuvigil. Drugs______________ Plaquenil 200 * Nuvigil 200 * Effexor Cymbalta 30, 50 * Abilify 2, 5, 10 Viibryd 50 Zoloft 50, 100 Wellbutrin 100 Trilafon 4 * OTC_______________ Pepcid * Tums Prilosec...- ShyestofFlies
- Post #15
- Forum: General
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Poll What type(s) of doctor gave you your diagnoses for Fibromyalgia?
If you would take the poll, then consider posting about: What type of doctor diagnosed you? Rheumatologist What type of doctor primarily manages your fibromyalgia condition? Rheumatologist How long did it take to get a diagnosis from your early symptoms? I'm 24 and I've had symptoms since...- ShyestofFlies
- Post #2
- Forum: General
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Breakthrough: cutting out long chain fatty acids and taking Medium Chain Triglyceride oil.- Started by Nicolaas
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![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
