Search results
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Recommendation: Researcher Dr. Amy Proal's Solve ME/CFS Initiative's sponsored talk 11/14/2019
Today I happened upon this talk, ""ME/CFS in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms by Interfering with Host Metabolism, Gene Expression, and Immunity", by Dr. Amy Proal, a member of a team that won a Ramsay Grant. It was live on Facebook. The talk was...- Merry
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- Replies: 0
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Mast cells, neuroinflammation, and pain in FM
This is a new research paper fromTheoharis C. Theoharides, Irene Tsilioni, and Mona Bawazeer published 2 August 2019 in Frontiers in Cellular Neuroscience.- Merry
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- Replies: 1
- Forum: FIbromyalgia and Pain Research
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IgG neutralizes adverse effects of GWI serum on neural culture
Tsilibary, Souto, James, Engdahl, Georgopoulos (2018) Human Immunoglobulin G (IgG) Neutralizes Adverse Effects of Gulf War Illness (GWI) Serum in Neural Cultures: Paving the Way to Immunotherapy for GWI. Journal of neurology & neuromedicine 3(5) 23-28 Abstract Gulf War Illness (GWI) is a...- Merry
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- Replies: 0
- Forum: Other Research
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Adverse effects of GWI serum on neural culture
Georgopoulos, Tsilibary, Souto, James, Engdahl, Georgopoulos (2018) Adverse effects of Gulf War Illness (GWI) serum on neural cultures and their prevention by healthy serum. Journal of neurology & neuromedicine 3(2) 19-27 Abstract Gulf War Illness (GWI) is a chronic debilitating disease of...- Merry
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- Replies: 0
- Forum: Other Research
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Donate to Buy Fabric for PandoraOrg Covered in Love Quilts
Donna Nowak Roblillard, who, along with other volunteers, makes quilts for PandoraOrg's "Covered in Love Quilts" project, is trying to raise $270 for backing fabric for nine quilts. PandoraOrg gives quilts to ME/CFS patients. You can donate at Donna's Facebook page. See her post today...- Merry
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- Replies: 0
- Forum: Advocacy, Contests and Events
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Autopsies
@Tina, your report of how very ill you are now is sobering. I'm sorry. I regret that I don't have any professional -- legal, medical -- expertise to offer you. Several years ago I told my son that I'd like an autopsy, but I never looked into the details, such as price, and I appreciate the...- Merry
- Post #2
- Forum: General Discussion
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Dear Abby says, May be time to leave ill partner
Today in her column Dear Abby advises a healthy partner that ending the relationship with a boyfriend who has fibromyalgia and rheumatoid arthritis may be for the best.- Merry
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- Replies: 0
- Forum: General Discussion
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Do I have CFS?
I'm sorry to hear what you've been going through. Perhaps you and your doctor would find useful the documents that the Institute of Medicine produced to explain and diagnose ME/CFS: http://nationalacademies.org/hmd/Reports/2015/ME-CFS.aspx Best of luck to you. -
"Thoughts on Reaching 40" by Naomi Whittingham
Naomi Whittingham reflects on a life with severe ME since age 12 in her guest post at the blog of Anil van der Zee.- Merry
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- Replies: 0
- Forum: General Discussion
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Why males get MS less often than females
The article had this to say:- Merry
- Post #8
- Forum: Other Research
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Why males get MS less often than females
An article published in Neuroscience News two days ago describes a discovery by scientists at Northwestern University that explains the mechanism that protects male mice from developing the lab mouse version of multiple sclerosis. I liked this little detail about how a mistake led to...- Merry
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- Replies: 8
- Forum: Other Research
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Powerful NY Times Op Ed on the Disenfranchisement Experienced by ME/CFS and Other Patients
I'm with you, @Farmgirl. James Coyne reports: More doctors in tears, please.- Merry
- Post #6
- Forum: ME/CFS and FM News
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Local PBS changes its showing time of "Unrest". ARGH
Through the 23rd you can stream the video from the Independent Lens website: http://www.pbs.org/independentlens/videos/unrest/- Merry
- Post #5
- Forum: General Discussion
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ME/CFS in pop culture
Ah, teenage girls in the house. That must be both fun for you and exhausting. Seems like in the 1990s many references to CFS appeared, some of the comments disparaging. People were reacting to the novelty of the term "chronic fatigue syndrome." Rumor had it at the time that big names in...- Merry
- Post #4
- Forum: General Discussion
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ME/CFS in pop culture
I don't know enough about what is going on in pop culture. I do follow the news closely but mostly politics and science. Everyday I see headlines for articles about people in the entertainment industry, and I have no idea who these people are. So-and-so is getting a divorce, and I didn't even...- Merry
- Post #2
- Forum: General Discussion
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Over the bed contraptions for computer screens / ipads
Hello, @Not dead yet! . For years I've been using the Laptop Laidback: https://www.laptop-laidback.com/ . At first I used it lying flat with one ordinary pillow under my head, and now I lie propped up a bit on a foam wedge pillow.- Merry
- Post #2
- Forum: General Discussion
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One Time Vote in Rare Artist Competition
Correction: the artist is Alison Montalvo. Andre Montanez must be the person who submitted the entry. Alison has moved up to fifth place. Voting continues through the 21st of December.- Merry
- Post #2
- Forum: Advocacy, Contests and Events
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One Time Vote in Rare Artist Competition
Helen, an administrator of the Facebook ME (ME/CFS) Fundraising Group, has posted that a young artist with ME, Andre Montanez, is competing in the Rare Artist Contest. Please vote for Andre's work. Andre is presently in sixth place in her age group.- Merry
- Thread
- Replies: 2
- Forum: Advocacy, Contests and Events
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Triple Your OMF Donation Through November 28th
The total raised on this campaign was $457,536! The original goal was $150,000. Thanks, everyone.- Merry
- Post #34
- Forum: Advocacy, Contests and Events
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Triple Your OMF Donation Through November 28th
This is the final day of the campaign. Today the Gates Foundation will match donations. Please donate.- Merry
- Post #33
- Forum: Advocacy, Contests and Events
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