1. R

    Anticholinergic Syndrome matches our symptoms remarkably. Is CFS/ME a low Acetylcholine issue? 10 Symptoms listed below. Including PEM!

    Anyone supplementing with Phosphatidyl Choline? Symptoms of Anticholinergic Syndrome: From:https://vagusnervesupport.com/top-ten-symptoms-low-acetylcholine/ “1. “Brain Fog”, Poor Short-Term Memory: Acetylcholine is the neurotransmitter needed by the neurons of the brain to communicate with...
  2. J

    Thoughts on Nancy Klimas ‘anti-exercise’ exercise protocol?

    After being couchbound for 6 months, I’ve been on Mestinon for a few weeks now with good results - I am hopeful that I can start slowly (SLOWLY) building back movement & strength. I’ve been reading up on exercising with CFS & POTS, and am curious about the Klimas protocol where you go super slow...
  3. Danesh

    Is Famvir causing worse fatigue?

    After no improvement on Valtrex with Apigenin for three months, I was switched to Famvir and Celebrex---- Pridgen's protocol. Haven't found info I need in the other blog posts or resource center. On the full dose for about 6 weeks but fatigue seems worse. The bottle warns it could cause...
  4. maui_girl

    Hummingbird vs ICES vs PEMF

    Hi all, I'm looking to purchase and try one device (for now) with my little budget, around $400. Brief history: 47 yr old female, was very healthy + athletic until several years ago when I became quickly disabled by severe ME/CFS. I have oodles of symptoms of course but the biggest hurdles are...
  5. C

    Searching for a Doctor

    Hello, I've been diagnosed by several doctors as having fibromyalgia, chronic fatigue syndrome and chronic pain syndrome. Unfortunately, none of these doctors will treat me, they have bounced me around from neurologists, internal medicine, rheumatologists and pain medicine specialists. Either...
  6. Eset Isadore

    Extreme Weather Sensitivity

    Rain and snow tend to be leveling for me. Profoundly leveling - above and beyond the already intense fatigue I manage. And I really do mean profound, and leveling. This has been true for decades - well before my ME became severe enough to be bedbound. Even when my ME was mild and moderate -...
  7. Lycosa

    New here... advice on finding Diagnosis/Treatment?

    Hello, I am new here and I'm not sure if I am in the right place - I haven't been diagnosed with ME/CFS or Fibro or, well, anything specific yet. All I have is an ever increasing list of bizarre symptoms, and medical bills, and frustration. The most recent developments have been POTS and...
  8. Cort

    "Test Your Tired Self" - From Australia

    From Australia. This test is primarily for drivers but does include some interesting reaction and memorization tests. It also has some interesting facts such as poor sleep is equal to a .05 blood alcohol level (!) Check out the test here

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