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NIH Stumbles: Asks ME/CFS Denier to Speak on Chronic Fatigue Syndrome
Grumpy Ed, Pretentious human-hemorrhoid Disease :hilarious:- ShyestofFlies
- Post #34
- Forum: ME/CFS and FM News
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NIH Stumbles: Asks ME/CFS Denier to Speak on Chronic Fatigue Syndrome
http://occupyme.net/2016/11/04/dr-koroshetz-responds/ The Professor mentioned in your letter was initially incorrectly listed as part of the ME/CFS Special Interest Group, which was corrected. The speakers that have come to the ME/CFS investigators are listed on the website at...- ShyestofFlies
- Post #18
- Forum: ME/CFS and FM News
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Increased Body Hair?
I'm a 25 y/o female with something similar- they suspected it was hormonal, but have yet to find evidence. It predates the ME/CFS for me. It may be unrelated, it's certainly not a common symptom for ME/CFS that I have heard of. It could be related to medications you take, but since it's been...- ShyestofFlies
- Post #3
- Forum: Symptoms
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NIH Stumbles: Asks ME/CFS Denier to Speak on Chronic Fatigue Syndrome
The best way to not look like an idiot in that case is to stop talking or apologize and move on, not dig your heels in further to your ignorance! You know? No this guy strikes me as one- even when proven wrong, he will claim the studies were bogus, he will say we all (from our income lol) paid...- ShyestofFlies
- Post #17
- Forum: ME/CFS and FM News
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NIH Stumbles: Asks ME/CFS Denier to Speak on Chronic Fatigue Syndrome
Exactly: this would be a breach of ethical practice and considered abuse of power towards psychiatric patients alone. Just because psych patients have "mental health" issues doesn't mean it's not a real medical problem or a brain and chemical disorder- not just behavioral silliness. People who...- ShyestofFlies
- Post #15
- Forum: ME/CFS and FM News
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NIH Stumbles: Asks ME/CFS Denier to Speak on Chronic Fatigue Syndrome
That's a whole lot of "feelings" for a guy who thinks we're overly emotional hysterical wimps! In my experience psychiatrists are very little monitored, very little reported when they cross ethical lines, and very likely to have god complexes and power and control issues. They often get away...- ShyestofFlies
- Post #14
- Forum: ME/CFS and FM News
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NIH Stumbles: Asks ME/CFS Denier to Speak on Chronic Fatigue Syndrome
So I don't have an answer for this myself, but something ALWAYS strikes me as interesting when these - 9/10 psychiatric or psychology type nay-sayers voice their opinion. While I know 100% for certain that ME/CFS is not depression, if I were to "play along" with these people and say it were...- ShyestofFlies
- Post #12
- Forum: ME/CFS and FM News
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Resource Core and Additional Symptoms of Chronic Fatigue Syndrome
While not perfect, there are things I do really like about the IOM report. This page is very much a summary, but it's easy to read and indicates some common symptoms not all reports acknowledge.- ShyestofFlies
- Post #2
- Forum: Symptoms
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Bateman Webinar - GLobal Report of Progress - 11/2
The livestream was a bit delayed due to technical issues. It ended up online around 20 mins later than intended. They said a recording will be posted soon, complete with visuals which the livestream wasn't able to deliver (the powerpoint). It was mostly a summary of a lot of stuff going on...- ShyestofFlies
- Post #2
- Forum: ME/CFS and FM News
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NAC for Neuroinflammation in ME/CFS and Fibromyalgia?
I took this before I got ME or CFS. It didn't do anything noticeable for my fibro, nor anything else. Still I'd give it a chance again, the only reason I stopped was the amount of large pills I had to take (6) for the reason I was taking it felt ridiculous.- ShyestofFlies
- Post #4
- Forum: Energy! Mitochondria, Methylation, B-12, etc.
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POTS and ME/CFS Same etiology?
I do not think that ME/CFS and POTS will end up being the disease any more than FM and ME/CFS will- but the same cause(s)? Possible. However, I think it is also possible that given all the bio issues we have found some evidence for in ME/CFS research, that ME/CFS may be a distinct form of...- ShyestofFlies
- Post #3
- Forum: Dysautonomia - Problems Standing, POTS, NMH, etc
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info about ME CFS research carried out in Canada
You might want to check out this website if you haven't already: http://mefmaction.com/ Not Canadian so that's the only resource I know of off hand. Good luck!- ShyestofFlies
- Post #2
- Forum: General Discussion
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Resource Recommended POTS / Dysautonomia Doctors
Some places certainly seem to have more than others. I've always wondered what the exact cause for the plethora of doctors in some areas, despite other areas having higher populations- etc. Is it just luck, the weather, research facilities, or something else? Thanks for the resource, hadn't...- ShyestofFlies
- Post #2
- Forum: General
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Urinary symptoms, anyone? [ME/CFS]
From your kidneys, ureters, bladder, and beyond- What's ME/CFS doing to your ability to pee? If you're having urinary symptoms, feel free to answer what you're comfortable with: * New with or after ME/CFS onset? * How troublesome or severe? * How often? * Seeking treatment? Who- PCP/GP...- ShyestofFlies
- Thread
- bladder problems me/cfs pee poll symptom poll urinary issues urine
- Replies: 13
- Forum: Symptoms
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Valcyte, Valtrex, and Famvir experiences -- Let's talk
Has anyone experienced blood test levels for HHV6 to go up (they were high before, now they've tripled) while you're on treatment? I'm on valcyte (generic) 450 mg twice a day. Gonna ask my doc at my next appointment, she doesn't seem concerned- but that's a few months off.- ShyestofFlies
- Post #39
- Forum: Antivirals and Immune Health
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What's in a name? Or should I say code?
That's excellent to know! Might be silly, but I've been crossing my fingers we'll get added onto the blue book at some point, but no dice yet (there's a few "TBA" blank condition spaces in the neurological category).- ShyestofFlies
- Post #9
- Forum: General Discussion
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What's in a name? Or should I say code?
It has been my experience that most doctors (who are not specialists in the illness, and may not even be aware of it) don't want to touch diagnosis with a 10 foot pole in this category. Part of it is they just simply don't know how or what to do, and many don't even seem to know who to refer you...- ShyestofFlies
- Post #8
- Forum: General Discussion
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What's in a name? Or should I say code?
My diagnosis on paper is R53.82 from my specialist. She's been at this for a few decades now, so I presume she's had some first hand experience with patients reporting what tests get covered and what don't depending on codes. ME appears no where in my charts or billing that I know of at this...- ShyestofFlies
- Post #5
- Forum: General Discussion
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One Gene Many Disorders: Genetic Finding Could Help Explain POTS, EDS, IBS, FM, ME/CFS and Others
The RCCX theory has been around for a little while now and I've read about it recently - I admit a lot of the science stuff goes well beyond my ability to comprehend right now. I am interested in RCCX and similar theories that include genetic research because I feel strongly thereis a genetic...- ShyestofFlies
- Post #22
- Forum: Other Research
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are heart rate monitors really a bust?
I never really quite got how a wrist device could get a sound reading of your heart rate when it wasn't on super tight? I mean there's cell phone apps I've tried that read your heart rate by you touching your finger to a part of it but that also seems fairly silly (at least until they came out...- ShyestofFlies
- Post #8
- Forum: Health News
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