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  1. ShyestofFlies

    Fluge/Mella Take out Patent on Nitric Oxide Treatment for ME/CFS

    The charts you make there are apps now including some free ones for this! One I've tried recently is "nanolume" it is the easiest one because it lets you do lasso loops for your pain areas and have multiple layers. It is free but some features require purchase. I never got into this one...
  2. ShyestofFlies

    Fluge/Mella Take out Patent on Nitric Oxide Treatment for ME/CFS

    Sorry to multi-post, though not flesh per se with my connective tissue disease I regularly feel as though my tissues are ripping from my bones, like tendons/ligaments/possibly muscles? I'm not great with internal anatomy so forgive me if that sounds very inaccurate. Though it probably lends...
  3. ShyestofFlies

    Fluge/Mella Take out Patent on Nitric Oxide Treatment for ME/CFS

    I don't know if anyone has ever done a comprehensive analysis of how many people with ME/CFS or FM have Raynaud's, but I can't imagine it would be lower than the general population at least. I don't have pain I can definately tell is in my blood vessels daily (its more generic so to speak then...
  4. ShyestofFlies

    Mella Finds Hypometabolic State in Chronic Fatigue Syndrome Plus Rituximab and New Drug For ME/CFS?

    Actually a vasodialator would make anyone with the POTS/CFS (subset?) overlap worse wouldn't it? So that could of definately interfered in any study like that. I think POTS is typically treated with vasoconstricters. But it's hard to find doctors who believe in POTS too from what I have heard...
  5. ShyestofFlies

    3rd Q&A Session with Younger Lab on Sept. 2, 2 pm CDT

    As of this week amazon is removing all such reviews supposedly, it will take time though. However- the websites that were setting up these programs now are telling people they have the "choice" to review a product they receive for free or at a steep discount, and they don't have to leave a...
  6. ShyestofFlies

    Why is this still happening?

    Your average decent small-medium study costs a few million, in the US that means we would get probably 3 such studies a year if we used our entire government budget and no private funding. This may not be a US study but just as an example of why we might feel robbed having possible 1/3 - 1/4...
  7. ShyestofFlies

    Apple Cider Vinegar Reduces Dawn Phenomenon

    My girlfriend has EDS and while there is some overlap, there is no way that it is the same disease (at least not hyper-mobility type). It's certainly possible for someone to have both.
  8. ShyestofFlies

    3rd Q&A Session with Younger Lab on Sept. 2, 2 pm CDT

    I've heard "human strain" probiotics work much better than the strains most probiotics on the market use right now. I'm willing to try myself (they're called human strain because the original source for them was in the human gut removed by endoscopy and then bred in a lab many times so it has...
  9. ShyestofFlies

    Anti-seizure/epilepsy/neurontin drugs and mitochondrial toxicity

    Though a different drug and class all together, it is interesting that Cymbalta lawsuits just settled about the withdrawl issues with that drug. "Take these safe (cough non addictive cough) alternatives instead of those nasty addictive drugs we are sure that won't help you anyway" -settles a...
  10. ShyestofFlies

    Anti-seizure/epilepsy/neurontin drugs and mitochondrial toxicity

    I have never heard of this, though I would of bailed the second it veered into therapy about my childhood when the doctor wasn't my actual therapist myself. Ha. Everyone and their mom thinks they can and should be a therapist these days, despite likely making things worse for patients that do...
  11. ShyestofFlies

    Is Antibiotic Overuse Finally Being Addressed?

    There's apparently also an issue of some people "stockpiling" meds (and taking them when they don't know they need them), and also antibiotic courses not being appropriately finished to instructions so that causes issues as well, thouugh I don't know how much it contributes to this issue. I've...
  12. ShyestofFlies

    So, What Happened To The Evaluations of Doctors?

    It almost seems like it'd be just as useful to have a subforum just for reviews with a standard format and one thread per doc/facility. I found the feature useful when it was around, and since many of the other ones for ME/CFS/FM are all defunct or outdated now one is desperately needed...
  13. ShyestofFlies

    UK Study on Obesity in Chronic Fatigue Syndrome Underscores Unimaginative Research Effort

    Medicine: if we don't know the cause, and it can't be blamed on obesity or depression, does it really exist?
  14. ShyestofFlies

    Apple Cider Vinegar Reduces Dawn Phenomenon

    I've seen at least one company produce an apple cider vinegar drink- but it might have stuff in it you don't want to do (I think it has honey in it). Still the principal of making your own mix could be a possibility. I've heard ACV recomended for a variety of health conditions, one being acid...
  15. ShyestofFlies

    Colchicine for ME/CFS? Montoya Patient Reportedly Does Very Well

    I'm so happy for this person, I hope they continue to do well!
  16. ShyestofFlies

    Why dont they try to increase NK function??

    I'm not particularly good at understanding the science behind things with the illness or proposed treatments, but I have wondered this myself. I'm sure it is a much more difficult task then it sounds, but I'm curious to hear how this would be approached even if I can't understand it. I'm sure it...
  17. ShyestofFlies

    US general election absentee ballot voting

    Hey all, (not sure if this is the right sub-forum?) I've been thinking today that I can't imagine if I have a regular/leaning-bad or bad day that I will be able to vote in person. If you are lucky enough to live in a state that allows absentee/mail in/early voting for the general election...
  18. ShyestofFlies

    Is James Coyne really a good advocate for ME/CFS?

    I've been wondering if he might have a personality disorder, or if he is just a jerk. Time will tell. His behavior reminds me of a little saying you might be familiar with... "When he was good, he was very very good, but when he was bad, he was horrid." I remember when I pointed out he was...
  19. ShyestofFlies

    Resource The Case for Exercise Induced Damage in Chronic Fatigue Syndrome

    I know it's not really "medical terminology" but I feel like one could just as easily say "everything is broken!!"
  20. ShyestofFlies

    Researchers Discover Potential Genetic Trigger of Lupus and Sjögren's

    Interesting, my autoimmune disease is possibly going to progress (1/3 of people with my dx progress to a specific defined CTD) - to sjogrens or lupus most likely (with scleroderma or mixed as a possible alternative- I think they feel RA is unlikely- but can't be sure). I wonder if this is more...

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