Search results

Search the forum Search Health Rising Blog
  1. ShyestofFlies

    Can Valtrex make fatigue worse?

    Well I've been on minocycline for a few weeks now- antibiotic in this case rather than antiviral. Well recognized it can cause dizziness, etc. Make sure with anything that "flushes the system of 'bugs'" you do it as your doctor directs, especially with extra fluids. Sometimes it just takes a...
  2. ShyestofFlies

    Poll Do you want to get better? The question unbelievers never seem to ask people with ME/CFS.

    Sorry for disappearing after posting this, but anyway I feel like this is an obvious "duh, of course I do?" and yet the "unbelievers" seem to think we obviously enjoy this? (Probably because their position is more about false beliefs that we are faking/malingering than fact.) I will always...
  3. ShyestofFlies

    Poll Do you want to get better? The question unbelievers never seem to ask people with ME/CFS.

    After yet another accusatory paper or article sometimes I wonder about this question. I know what our answer will be as a whole community, but I'd like to see it put to a vote. It is much easier to accuse a group of people with an illness of not wanting to get better if you never ask them and...
  4. ShyestofFlies

    Align for ME/CFS or Fibromyalgia to Reduce Inflammation?

    I've heard probiotics aren't as useful without pre-biotics. Unfortunately many people when first uncovering them (jerusalem artichokes) tend to "overdose" and end up with bad stomach problems. Might be worth looking into if you're going that route, what is safest, etc
  5. ShyestofFlies

    Survey Suggests High rates of post HPV Vaccination Problems Present

    There's now posters in my PCPs office recommending all younger (10ish? 12?) pre-pubescent kids (boys and girls) get this one. I'm not an anti-vax personally, but this vaccine was particularly expensive, required 3 separate dose visits, and seemed unnecessary to me personally. I understand...
  6. ShyestofFlies

    Dental problems related to Fibro

    Bruxism (spelling?) is very common w/fibro. It's a pretty common condition all around, made worse by stress for some and it can contribute to TMJD also- which also seems to be common in the fibro + all other co-morbidities you find around here Seems to come and go for me You can sort of train...
  7. ShyestofFlies

    Drug Has anyone tried Plaquenil?

    I hope you find something that works! The blindness as I mentioned is quite rare- most often the vision effects are caught rather early and degeneration can be stopped. The only lady I know who went blind is on the Sjogren's association (?) website and she reminds people to get their eyes...
  8. ShyestofFlies

    My 2 day CPET tests results from 2010 Ithaca College

    That is the facility I was hoping to go to if I do one (I am not sure given how ill I have been lately if my docs would even let me at this point- but they don't seem to necessarily "get" how bad it is). How was your experience with them? Did they treat you compassionately? Did they have...
  9. ShyestofFlies

    8-year-old protests mistreatment by medical authorities

    Sadly many illnesses go through this- it's often "Blame the parents" or at the very least "blame the mother." For a long time that was the thinking with autism, and there's still work by the community decades later to remove references to this thinking in literature/doctor advice/community...
  10. ShyestofFlies

    Drug Has anyone tried Plaquenil?

    Hmm I can't tell you for sure about inflammation- my body has inflammatory symptoms but never seems to show anything on related tests both before/after this med. However, I have been on plaquenil 2 a day at 200mg for a few years now. It helped some with my autoimmune condition, but as I was on...
  11. ShyestofFlies

    8-year-old protests mistreatment by medical authorities

    Patient abuse is always disgusting, but child patient abuse is a particular category of awful. Those biomarkers can't come fast enough. Hard to call something a mental illness/phobia, etc when the body can prove to you it's ill. I don't think there's a mental illness with a biomarker at this...
  12. ShyestofFlies

    Eye problems

    I'm screened almost every doctor I see for a disease that causes dry eyes and other symptoms called Sjogren's Syndrome (or Sicca Syndrome). It is an autoimmune disease where the body attacks your moisture producing glands, saliva, tear, sweat?, vaginal, etc. Due to my symptoms (joint pain...
  13. ShyestofFlies

    Walitt + Wolfe: fibromyalgia is overdiagnosed, psychosocial, pharmaceutical scam & quote Shorter

    Note: I copied this from C-C's list. The title is not a quote, but a summary of what I take away from the paper (bolding mine) --- http://headache.imedpub.com/fibromyalgia-a-short-commentary.pdf Journal of Headache & Pain Management Fibromyalgia: A Short Commentary Frederick Wolfe and...
  14. ShyestofFlies

    Teal Swan- CFS abuse

    Ah @Empty I didn't mean to imply you were to blame for all the views on that video! I think I was a lil pissed at the time I commented last because of it (not at you), but I just mean for myself to ignore it. I don't need anything else making my heart do somersaults I seem to get worked up and...
  15. ShyestofFlies

    Medscape Gets it Right About PEM and ME/CFS

    So today I accidentally stumbled upon the fact that WebMD owns medscape. It's odd one seems to do pretty poor for ME/CFS info and one seems to do better? Maybe its a sign of good things to come...
  16. ShyestofFlies

    The Dark North: Canada Denies ME/CFS Grant Because Disease is Not Real

    Here we are again? 4 hours ago via Co-Cure listserv... National ME/FM Action Network
  17. ShyestofFlies

    Procrastination: Is it Necessarily Worse with Chronic Fatigue Syndrome and Fibromyalgia?

    I feel stuck in this one way... If I push myself now, I will pay for it tomorrow. But even if I don't push myself, I may feel worse tomorrow too. Every day is potentially going to be followed by a worse day, and I potentially could lose all the independence I have to do basic tasks I...
  18. ShyestofFlies

    Need help: Finding a HR monitor

    @Remy @voner thanks to you both, really appreciate it
  19. ShyestofFlies

    Teal Swan- CFS abuse

    Like many televangelist personality people she thinks she knows the answer, and like most of them they're ableist and out to make a quick buck and get attention. Mmm. My personal stance: Ignore it, don't spread it around, don't give it the views or credibility.
  20. ShyestofFlies

    Need help: Finding a HR monitor

    What features did you look for in yours? What should one expect to pay Or what did you pay? What accessories do I need? Chest strap? Best place to buy? Health sites? Amazon? In person store? Any resources which cover this? I've looked and I'm mostly finding stuff for runners and...

Support Our Work

HEALTH RISING IS NOT A 501 (c) 3 NON-PROFIT

Get Our Free ME/CFS and FM Blog!

New Threads

Forum Tips

Next tip

Shopping on Amazon.com For HR

Latest Resources

Latest Videos

Mast Cell Diseases
Tom Camenzind's Story. ME/CFS Alert Episode 93 - YouTube
The Science of Sleep: Melatonin to Neural Pathways - YouTube
ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube
Simple But Effective Tools for Management of ME/CFS and FM - Lucinda Bateman, MD
Ginevra Liptan - Segment 1: The Pros and Cons of medical Marijuana Use of Fibromyalgia Patients - YouTube
Cognition & CFS: What Do We Know? - YouTube
Understanding Mast Cell Activation Disorders - YouTube
"Bodywork: Tai Chi, Qui Gong, Yoga" Colin Gates - YouTube
How The Gut Microbiota Affects Our Health with Dr. Erica & Dr. Justin Sonnenburg - YouTube
Wellness Wednesday: How to Heal Your Gut Bacteria with The Sonnenburgs - YouTube
Dr. Justin Sonnenburg: Gut inflammatory trajectories and treatment of chronic disease - YouTube

Sponsors

Share this page

Top