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  1. ShyestofFlies

    Genetic Testing, Should i do the 23andme or Ancestry testing?

    I wasn't even aware ancestry did anything for medical related genes, they don't advertise it very well if they provide that, they make it sound like you only get to know about your racial/ethnic history, but I haven't read the fine print just their little section on their website for it. I have...
  2. ShyestofFlies

    Anti-seizure/epilepsy/neurontin drugs and mitochondrial toxicity

    Well I'm on gabapentin too, though a low dose- 300-400/day - which is very small. So far it hasn't done anything for me that I can notice. I'm on some meds to repair mito too, but no proven mito issues that I know of yet (can they even test for that? I forget). CMP is something I have been...
  3. ShyestofFlies

    Lemon Skunk - Cannabis Goes High Tech: DNA Certified POT Now Available

    Make sure your MJ is a purebred, certified, and able to compete in international marijuana showing and events. No one wants mixed breed hemp variants. News at 11: local woman starts shelter for hemp/marijuana hybrid plants and provides them for adoption.
  4. ShyestofFlies

    Resource The 13-Item Pain Catastrophizing Scale

    My pain actually got worse when I was in denial about pain. I don't know how much I buy this, if you have a temporary injury that's one thing, but when you've been in a flare for 7+ years with pain averaging 6-7/10 a day, why should you believe it will end? That seems much more hopeless, and...
  5. ShyestofFlies

    DEA to list kratom as a Schedule 1 controlled substance

    I had only heard about this plant a month ago, and all of a sudden it's being banned and a giant seizure of imports of it were reported two times since. I know I can't know everything, but given some things about our government I am a little shocked they knew about this and moved on it before I...
  6. ShyestofFlies

    Refractory depression metabolomics study involving RK Naviaux

    Thanks for the resource! I've been reading about MTHFR lately, should probably do more. :)
  7. ShyestofFlies

    Post Lyme Disease and Chronic Fatigue Syndrome (ME/CFS) - Are They The Same?

    That's really interesting your fibro symptoms improved from valcyte was it? Do you happen to know how long it took? I am on valcyte for the hhv6 reoccuring infection (pardon I'm not super up on correct terminology), and I was told it would take 6-12 months and I should expect major improvements...
  8. ShyestofFlies

    Chronic Fatigue Syndrome (ME/CFS) Video Game

    I actually have a degree in video game creation, I am interested on a lot of levels- but I do not have the energy to sit at my computer to play games, ha. PACE X-rated edition
  9. ShyestofFlies

    Fibromyalgia Doctor Touts Ketamine for Pain and Depression

    I have read there is some debates as to whether oral or nasal ketamine have the theraputic benefits that iv ketamine does. I am skeptical, I will admit. People say: Ketamine has no money in it as a drug by itself, and the money you fork over at those clinics are to be monitored and infused...
  10. ShyestofFlies

    Post Lyme Disease and Chronic Fatigue Syndrome (ME/CFS) - Are They The Same?

    I am super glad thst PTLDS/CLD are getting some focus, they deserve treatment and I feel terrible for them. I cannot speak for anyone else, but I know for a fact I do not have PTLDS, but do have CFS/ME- I got an acute lyme infection recently. Now I can see how the lyme and coinfections could...
  11. ShyestofFlies

    Refractory depression metabolomics study involving RK Naviaux

    Wow super relevent to me. I have MDD with long episodes (in partial remission, last episode was about 7 years long) and have been on 6+ treatments or combos, nothing really makes a substantial difference and the one time it did there were significant side effects and I could not continue. I am...
  12. ShyestofFlies

    How about a piece of gum, a mint or maybe some soy milk - aspartame and glutamate

    Plenty of people can eat MSG, commonly found in chinese food where MSG is considered a flavoring, but also found in other foods, and have no reaction. But many of us with migraines over the years have narrowed it down as one of the triggers. If you have a migraine all you know is that you would...
  13. ShyestofFlies

    milk protein intolerance

    Interestingly a lot of people outside the "west" - particularly in East Asia are very commonly dairy intolerant - offhand not sure if it is primarily lactose or casein or both. Dairy is a very common thing in food and a very common intolerance in the US at least. I determined it was related to...
  14. ShyestofFlies

    Poll The Reverse Bucket List for ME/CFS: If You Were Well.....What Would You Do?

    I actually have chronic treatment resistent major depression disorder that I think cycles into dysthemia when the major episodes have remissed... Official dx is only MDD though, plus an additional 5-6 anxiety type disorders. Yup. In addition to cfs, fms, and everything else. However despite my...
  15. ShyestofFlies

    Are You A Morning Or Evening Person? An ME/CFS and Fibromylagia Poll

    I have been a night owl since I became a teenager, before then no clue. But sometime around my teens if given the opertunity through lack of schedule my sleep schedule is almost guarenteed to flip. Like this past week. I have had no schedule since before getting CFS and had been doing the best...
  16. ShyestofFlies

    The Blood Volume Paradox in Chronic Fatigue Syndrome (ME/CFS) and POTS

    At some point POTS was called "Mitral Valve Prolapse Syndrome" I think, encountered it a while back trying to connect the dots, my mom and maternal grandmother had Mitral Valve Prolapse and I was monitored as a child incase I also had it, though not very closely haha.
  17. ShyestofFlies

    The Blood Volume Paradox in Chronic Fatigue Syndrome (ME/CFS) and POTS

    Wasn't Dr. Lerner really into the heart's relation to CFS, or at least those who now continue his research? Ah had this page bookmarked http://www.treatmentcenterforcfs.com/FAQ/index.html Interesting what they said about veins, aren't thin/poor toned veins a part of EDS symptoms too?
  18. ShyestofFlies

    Yummy Kevita Apple Cider Tonic with Probiotics Scores

    I am a huge fan of the Kevita lemon ginger probiotic drink. Easy on the stomach, makes me feel a little better. Also tastes delicious
  19. ShyestofFlies

    Air hunger / mild breathing issues

    For a while I have noticed non emergency issues with my breathing- holding my breath unconsciously, usually from pain or stress- won't breath unless I make myself manually, takes a long time to go away I breathe slower and deeper when I breathe manually, I take less breaths per minute than I...
  20. ShyestofFlies

    Strange 'Atypical' Symptoms - Any Idea What's Going On?

    I wonder given some of the symptoms, any possitive ANA, sjogrens antibodies, or tests for vascular eds to rule that out?

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