Merida

Well-Known Member
Gee, I have returned from my coma to this very interesting discussion.
@Victor Maalouf
Much of what you say is documented in detail in a brilliant volume: Chiropractic : Anatomy and Physiology of SacroOccipital Technique, by Jonathan MP Howat, DC, DICS, etc. found at the SORSI site. That is, the Sacro Occipital chiropractors. I worked for years with Dr. C. Curtis Buddingh - a master of this chiro technique - trained with DeJarnette, the founder.

Dr. Buddingh initially restored my sleep, mood, energy, got much better. But I didn't hold. Why? I think it is the scoliosis and very unstable pelvis. SacroOccipital does not know how to adjust the pelvis - and neither does most everyone else.

When thinking about structure, we must look at the whole system - from the pelvis to the cranial bones, and the dural tube which holds the Spinal fluid. The shoulder problem is a secondary ( but important) problem. One quote:
Page 37, " Bilateral sacro-iliac fixation results in dural tube torque changes in hydrostatic pressure of the cerebrospinal fluid, as the spinal dura and cranial reciprocal tension membranes ( in the brain!) torque in response to the sacroiliac fixations. "

The whole lining of the CNS is attached and anchored in the pelvis - to the sacrum and tailbone. The sacrum (pelvis) reciprocates with the occiput bone ( back base of skull). The motion is reciprocal and critical in the pumping of spinal fluid from the sacrum back to the brain. More, page 37, " Side bending at the occiput will affect the jugular foramen which contains cranial nerve 9 . . . CRANIAL NERVE 10 - . . ." ie : the vagus nerve.

My son got CFS /ME following a carefully lab documented EBV at age 5/1986. Very sick - many neuro symptoms. He had 2 preschool friends that were sick but got better in a few weeks. My son wasn't well for years. He still has symptoms. Did not understand this until I had the injury that started my CFS/ME/FMS 13 years later. ( a chiropractor twisted my neck and pelvis to adjust for a sore hip from yoga class) I remembered that he was delivered by suction. They hurt his upper neck. I observed things that support this.

So, yes, I think the viruses are often taking advantage of a possible inherited structural issue, often compounded by some injury that affects spinal fluid and/or blood flow to the dura meningeal system.

I must look at all you have printed more carefully. So debilitated here. Hard for me.

Thanks, Cort, for alerting me.
 

Who Me?

Well-Known Member
Magical powers will not cure virus, infections, dysfunctional immune systems and whatever else is wrong with me and many other people

And as far as I can tell you have zero proof aka studies that backup what you are saying, that everyone's problems stem from a frozen shoulder which, btw I never had.

All you are saying is your opinion. No scientist or researcher would be listened to if they just said "hey I know someone who had a frozen shoulder and that causes shingles so therefore every person with shingles should listen to me"

You think the medical medium is a charlatan but we should believe you, someone no one knows but who was been banned from multiple forums.

People here are sick. Really sick. I don't know what your end game is I am very suspicious and with good reason.

i believe dried rat poo is a cure. That doesn't make it so.
 

Victor Maalouf

Active Member
Gee, I have returned from my coma to this very interesting discussion.
@Victor Maalouf
Much of what you say is documented in detail in a brilliant volume: Chiropractic : Anatomy and Physiology of SacroOccipital Technique, by Jonathan MP Howat, DC, DICS, etc. found at the SORSI site. That is, the Sacro Occipital chiropractors. I worked for years with Dr. C. Curtis Buddingh - a master of this chiro technique - trained with DeJarnette, the founder.

Dr. Buddingh initially restored my sleep, mood, energy, got much better. But I didn't hold. Why? I think it is the scoliosis and very unstable pelvis. SacroOccipital does not know how to adjust the pelvis - and neither does most everyone else.

When thinking about structure, we must look at the whole system - from the pelvis to the cranial bones, and the dural tube which holds the Spinal fluid. The shoulder problem is a secondary ( but important) problem. One quote:
Page 37, " Bilateral sacro-iliac fixation results in dural tube torque changes in hydrostatic pressure of the cerebrospinal fluid, as the spinal dura and cranial reciprocal tension membranes ( in the brain!) torque in response to the sacroiliac fixations. "

The whole lining of the CNS is attached and anchored in the pelvis - to the sacrum and tailbone. The sacrum (pelvis) reciprocates with the occiput bone ( back base of skull). The motion is reciprocal and critical in the pumping of spinal fluid from the sacrum back to the brain. More, page 37, " Side bending at the occiput will affect the jugular foramen which contains cranial nerve 9 . . . CRANIAL NERVE 10 - . . ." ie : the vagus nerve.
I haven't worked on how to explain this enough yet...

That's why I don't really like standard chiropractic, or chiropractic in general. Spinal mechanics are not as important as chiropractors tend to think. It's just an easy intervention, with possibly quick but usually temporary benefits, like you experienced. It's because the shoulders play the greatest part. My analogy in CFS/ME/FM is that the shoulders collapsing in different directions become like wringing out a towel or tearing a piece of paper with your fingers, radiating compression and tension up and down the body.

Shoulder intervention is much more difficult. Shoulders are the most complicated joints in the body with the greatest range of motion and potential for injury. Simple physics, the shoulders have a greater fulcrum on the spine than any joint in the body.

No one knows how to adjust the pelvis because shoulder dysfunction plays a big part in driving and maintaining pelvic dysfunction. I had major pelvic dysfunction, incredible pain and fatigue whenever my injuries around my right SI joint, glutes, and around to the front of my hip were aggravated. When I walked it felt like my hip was popping out, though the hip specialist I saw assured me it wasn't. I had an x-ray done and I clearly had a major twisting in my pelvis. The x-ray is in my paper. But the doctor said it wasn't a reliable x-ray to determine if anything was wrong (in summary, I was thoroughly disillusioned of the assumed skill and reliability of most doctors).

What DID finally start fixing my pelvis was correcting my shoulders. The shoulders being stuck in a collapsing position have a twisting effect that spirals down the spine into the hips, generating my pelvic tilt and rotation, and the reason why its injuries occurred. It was the major thing that alleviated the pain and fatigue. A large point of my entire project is that the shoulders are not secondary. In many many cases, they are primary.
 

Victor Maalouf

Active Member
Magical powers will not cure virus, infections, dysfunctional immune systems and whatever else is wrong with me and many other people

And as far as I can tell you have zero proof aka studies that backup what you are saying, that everyone's problems stem from a frozen shoulder which, btw I never had.

All you are saying is your opinion. No scientist or researcher would be listened to if they just said "hey I know someone who had a frozen shoulder and that causes shingles so therefore every person with shingles should listen to me"

You think the medical medium is a charlatan but we should believe you, someone no one knows but who was been banned from multiple forums.

People here are sick. Really sick. I don't know what your end game is I am very suspicious and with good reason.

i believe dried rat poo is a cure. That doesn't make it so.
@Who Me?, You really know how to misrepresent what a person says don't you? Sorry not trying to be mean or anything. I make long, complicated, nuanced messages with odd points I don't always explain well enough.

I probably shouldn't have brought up Anthony Williams. Was just trying to relate a bit to Tammy7, but it just confused people. I'll delete that post.

I've only said "frozen shoulder" is common. However, everyone with CFS/ME will have some pain and restricted range of motion in at least one shoulder.

I've only been banned from one forum, and seeing you read my post on it, know that I took some pride in my banning in exchange for pointing out PR moderators' censorship practices.

The purpose of my video compilation of people with these syndromes is to make it so anyone can see this high rate of dysfunction. Then, I layer on my experience of recovering from symptoms by correcting my own dysfunction, and share my story. I don't expect people to just believe me or take my word for it.

I am suspicious of your rat poo cure.
 

Who Me?

Well-Known Member
You really know how to misrepresent what a person says don't you? Sorry not trying to be mean or anything. I make long, complicated, nuanced messages with odd points I don't always explain well enough.

I probably shouldn't have brought up Anthony Williams. Was just trying to relate a bit to Tammy7, but it just confused people. I'll delete that post.

I've only said "frozen shoulder" is common. However, everyone with CFS/ME will have some pain and restricted range of motion in at least one shoulder.

I've only been banned from one forum, and seeing you read my post on it, know that I took some pride in my banning in exchange for pointing out PR moderators' censorship practices.

The purpose of my video compilation of people with these syndromes is to make it so anyone can see this high rate of dysfunction. Then, I layer on my experience of recovering from symptoms by correcting my own dysfunction, and share my story. I don't expect people to just believe me or take my word for it.

I am suspicious of your rat poo cure.
I commented on what I read and how I interpreted it. It is not misrepresenting anything.

If, as you said yourself, you are making long, complicated nuanced statements to a community of people who have cognitive and neuro impairments then it shows you don't understand the people you are talking to.

And deleting the original post prevents others from commenting and seeing where my interpretation came from.
 
Last edited:

Who Me?

Well-Known Member
People cant sit through 9 hours of videos.

Many of us are here because of censorship on PR. Anyone who tells kina to F off gets points. That's doesn't mean I buy into what you're selling.

Anyone who pushes their own agenda and dismisses everyone else's to me sounds like the same bs on PR.

There is room for everyone's theories. Rat poo makes as much sense to help me as aligning my spine does to you
 
Last edited:

Victor Maalouf

Active Member
People cant sit through 9 hours of videos.

Many of us are here because of censorship on PR. Anyone who tells kina to F off gets points. That's doesn't mean I buy into what you're selling.

Anyone who pushes their own agenda and dismisses everyone else's to me sounds like the same bs on PR.

There is room for everyone's theories. Rat poo makes as much sense to help me as aligning my spine does to you
Some people can sit through less than 7 hours of videos. Don't have to do it all at once.

I don't expect everyone to "buy my agenda" immediately. This is the 4th paragraph of my paper;

"The purpose of this paper and accompanying video presentation is to describe preliminary evidence and research for a hypothesis of a common cause to the majority of these syndrome cases, and explain how they work. What I present is a hypothesis unless it’s convincing enough that you choose to believe it before it is more thoroughly researched, tested, and verified. To me, however, this is knowledge. I know these syndromes are caused by destabilized muscle and skeletal structure because I experienced most of the symptoms and sensations associated with these syndromes, repeatedly discovered them to be musculoskeletally driven, improved/resolved them in myself, and have observed the same or similar musculoskeletal dysfunction in others with these symptoms. I compiled a video portraying recurring patterns of abnormal mechanics in over 150 people labeled with these syndromes. This paper expands more upon my experience, observations, and theory."

What's wrong with having an agenda? I'm arguing against other agendas, certainly. What is your agenda @Who Me?
 

Who Me?

Well-Known Member
[Some people can sit through less than 7 hours of videos. Don't have to do it all at once.

I don't expect everyone to "buy my agenda" immediately. This is the 4th paragraph of my paper;/QUOTE]


I have no agenda. Unless disagreeing with you about your agenda (vs valid treament plan) is an agenda.

No one can or wants to sit through 7 hours of video whether they have MECFS or not. It shouldn't take 9 hours to make a point.
 

IrisRV

Well-Known Member
I think the big problem here is stating opinion as fact. If we can refrain from presenting our own personal hypotheses as the one and ony explanation/treatment/cure for ME/CFS, discussions will go a lot more smoothly.

I don't have to agree with the rat poo treatment to have an interesting and useful discussion about it with someone who thinks it's the greatest thing yet. If that person insists that I accept the rat poo treatment as The Treatment for ME/CFS, we're going to butt heads, guaranteed.

How about we discuss anecdotal evidence as anectdotal evidence, not fact, and opinion as opinion, not established truth? We can accept that something worked somehow for someone, no matter how bizarre it seems to us, without accepting that it will work for anyone else. We arent' denying that person's experience when we say that the treatment/explanation is unlikely to apply to all PWME.

There are, at present, no well-documented absolutes in ME/CFS. Research is finding some 'highly likelies', but even they are not absolutes. So, let's drop the absolutes from our discussions, please, for the sake of having civil discussion on diverse and interesting topics.
 

Victor Maalouf

Active Member
There are, at present, no well-documented absolutes in ME/CFS. Research is finding some 'highly likelies', but even they are not absolutes.
Except, there are absolutes.


That's the point of my 4 1/2 hour video. Every single person with CFS/ME, Fibromyalgia, and "chronic Lyme" have indications of the same general physical pattern that is clearly observable.

The main reason it's all so long is because I talk about 5 different syndrome labels. If I just did CFS/ME it would probably be ~2 hours total.

I put together the 4 1/2 hour compilation so that anyone can see it. You just need to know what to look for.

I don't fully agree with Dr. Perrin's theory, but his observations are the most accurate I've seen.

I tell it like it is.
 
Last edited:

Lissa

Well-Known Member
Most people here won't be able to watch a 4 hour long video.
Would you care giving a preview, a simple summary of what you believe is the cause, and the cure?

Thanks :)

Wow... Anyone else try to watch the original intro from the beginning of this post? It gave me motion sickness almost immediately because the pictures change too fast before you can focus on anything.

And the audio doesn't seem to have anything to do in relation to the pictures - as in -- its just a rapid slideshow with none of the pictures being explained. The speaker talks so fast that half the words cascaded off before my brain could make sense of it.

Clearly not geared towards anyone with cognitive difficulties. In this short clip of a preview I felt pummeled with words as well as visually scrambled trying to make sense of things.

I for one am not up for even 2 more seconds of it, let alone 4 hours! Sorry --- it only made me feel stressed and ill trying to make sense of it. But at least I tried to have an open mind!

I find it interesting that there may be structural commonalities amongst some of us.... Whatever that could mean? (Devil's advocate--- and what perhaps, is the percentage of people who DON'T have ME/CFS (or the other diseases mentioned) but have the same structural problems?)
 

Merida

Well-Known Member
I have limited "tune in time" too. But Victor is making some very important points, which are correct. Most people do not appreciate that our structure is critical to function of the musculoskeletal and central nervous systems. Example: the Chiari people. It was determined that the main problem was a small posterior fossa - ie the space inside the lower back part of the skull. But, other structural issues at the skull/neck junction have been found too.

The consistent structural findings in Fibro are detailed in The Fibromyalgia Syndrome: A Clinical Case Definition for Practitioners. ( editor in chief - I. Jon Russell, MD, Ph.D - a pioneer in this field) Fibro is way more than pain -
" there is general loss of internal homeostatis and adaptation involving dysfunction of the autonomic system." Pg.
14.

So here is what a panel of 14 experts wrote : " In thorough and comprehensive examinations of the musculoskeletal systems of approximately 2,000 FMS patients, Siebel found that not only do virtually all FMS patients exhibit many of these muscular and postural changes, but he also identified numerous other changes and clinical signs associated with the musculoskeletal system." Pg. 16.

More: "The shoulders are elevated and adducted forward with tight levator scapulae, upper trapezii, pectoral muscles, serratus anterior, and scalenii." " The altered axis of the glenohumeral joint, and over stressed shoulder joint, in turn over stress the cervical-cranial junction, the C4/ C5 segment, and the T-4 segment. "

There is much more to this. I suggest you all read what the experts have to say about structure and function. I think Victor is owed an apology.
 
Last edited:

IrisRV

Well-Known Member
Except, there are absolutes.
Then do a sound double-bind placebo controlled study to prove it. Prove you have a legitimate ME cohort. Prove you have a representative sample of the ME population. Prove that it works for all people with ME, not just a subset. Prove you've elminated all confounding factors. Prove it's not a placebo effect. Prove that it corrects all ME symptoms. Prove the effect is lasting, which it must be if it's The Cure. Then prove it for fibro, chronic Lyme, and anything else you claim this is the The Cause and The Cure for.

Write a good research paper, get it properly reviewed, and published in a reputable journal. Let it be discussed by medical professionals with an understanding of related topics -- ME specialists, immune specialists, specialists in structural abnormalities (what are they called?).

Then we'll discuss it and decide if we think your research was sound or whether, like PACE, it's a lot of hype dressed up in fancy clothes.

Until then, this idea is not in the least bit an absolute. It's the hypothesis of some guy on the internet with no solid proof. I'm fine talking about this as a hypothesis. I'm fine talking about it as something that might help some people with mecfs, fibro, or chronic Lyme. It's not an absolute truth for all of us. Not even close.

Every single person with CFS/ME, Fibromyalgia, and "chronic Lyme" have indications of the same general physical pattern that is clearly observable.
There you go again. You don't know that. At best, it's your opinion. You cannot say every single person with those three conditions has this pattern if you haven't seen every single person with those conditions. I know 5 people personally who have mecfs and I am certain you haven't seen them. I know several more with chronic Lyme. I know you haven't seen them, either. So how can you say absolutely that every single person with those conditions has this pattern if you haven't seen them all? You're just guessing.

I'll bet you haven't even seen a significant number of people here at HR in order to assess them for your structural abnormality. Yet you claim as an absolute that every single person with mecfs, fibro, and chronic Lyme has it. The claim simply doesn't fly.

It could be true that some people with those conditions have the structural abnormality is question. It could be that some of them will get relief when having that abnormality corrected. Great. Let's talk about that. Let's not demand that everyone accept this hypothesis as The Cause and The Cure for every single person with mecfs, fibro, and chronic Lyme.
I suggest you all read what the experts have to say about structure and function. I think Victor is owed an apology.
No, he isn't. I don't see anyone saying that it's not possible that some people with mecfs, fibro, or chronic Lyme have this structural abnormality, or that the hypothesis has no validity of any kind for anyone. We are saying is that there is no evidence whatsoever that this is true of all mecfs, fibro, and chronic Lyme patients. There is no evidence that correcting this abnormality completely cures those conditions. There is no evidence that this is The Cause, much less The Cure for all those conditions. We don't owe him an apology for pointing that out.

We are allowed to disagree here. That's one of the things we love about HR. We don't have to apologize for disagreeing with someone. It's a matter of civil discourse to point out unfounded claims. All the more so if they are claims on a health board of having The Cure for multiple serious chronic medical conditions. Disagreement is not criticism and does not require an apology.

It's the speaking in absolutes that is the problem, not the general idea that structural abnormalities may play some part in the condition of some people with these conditions.

Talk on about how correcting certain stuctural abnormalities can help some people with mecfs, fibro, or chronic Lyme, but if the discussion continues along the lines of The Cause, The Cure, and "Every single person with CFS/ME, Fibromyalgia, and chronic Lyme...", there is going to be push back -- and correctly so.
 
Last edited:

lisaadele

Active Member
I have to admit that I didn't even attempt to watch the videos..... way too long to contemplate.

Anyhow, I personally find this structural connection interesting because when I was a kid my leg lengths were different. For years a specialist monitored my growth for leg length and spine issues. So I didn't develop scoliosis (my cousin did have this) and when I finished growing my leg length difference is minor....

I have never thought about structural issues and ME/CFS before reading this, it is interesting.
 

Victor Maalouf

Active Member
@Merida Look at you whipping out the literature at the drop of a hat!
I think Victor is owed an apology.
Nah. I fully expected extremely harsh criticism. If my post on PR was allowed to stay up I would have gotten constant floods and floods of it. I appreciate the opportunity to address people's concerns, criticisms, and suspicions.

Then do a sound double-bind placebo controlled study to prove it. Prove you have a legitimate ME cohort. Prove you have a representative sample of the ME population. Prove that it works for all people with ME, not just a subset. Prove you've elminated all confounding factors. Prove it's not a placebo effect. Prove that it corrects all ME symptoms. Prove the effect is lasting, which it must be if it's The Cure. Then prove it for fibro, chronic Lyme, and anything else you claim this is the The Cause and The Cure for.
That's exactly what I want to do.

There you go again. You don't know that. At best, it's your opinion. You cannot say every single person with those three conditions has this pattern if you haven't seen every single person with those conditions.
Did you watch the clip of Dr. Perrin's talk? Every person he's seen with CFS/ME has physical indications along those patterns. So statistically, you can make a claim with some inherent uncertainty that everyone else he or I haven't seen has some physical indications. Really it's just a matter of semantics.

As I said in my original post, I'm purposefully being brazen. Because for whatever reason, Perrin and others who have noticed these physical abnormalities haven't been able to convince everyone they are the true identifying characteristics and root cause of these syndromes. "Mainstream medicine" continues to fail us, and these LLMD quacks have been enabled to thrive because people are left without answers.
 

Victor Maalouf

Active Member
Wow... Anyone else try to watch the original intro from the beginning of this post? It gave me motion sickness almost immediately because the pictures change too fast before you can focus on anything.
lisaadele said:
I have to admit that I didn't even attempt to watch the videos..... way too long to contemplate.
Yeah sorry. I made these videos with a wide audience in mind. From patients to professionals and people who do have adequate focus and attention. I think I'll make a short "sensory friendly" video sometime.

It used to be extremely difficult for me to even look at a screen. However, these videos are just one tool available to me to get my ideas across.

My paper is posted for those who can still endure reading on screen.
 
Last edited:

IrisRV

Well-Known Member
Did you watch the clip of Dr. Perrin's talk? Every person he's seen with CFS/ME has physical indications along those patterns. So statistically, you can make a claim with some inherent uncertainty that everyone else he or I haven't seen has some physical indications. Really it's just a matter of semantics.
Nope, it's not sematics. It's about statistics and logic. Extrapolation from a small sample set requires that tremendous care be taken to ensure that the sample is representative. Even then, the extrapolation is clearly stated as an approximation not an absolute truth because extrapolation beyond the data can easily be incorrect. There's plenty of room for assumptions made in sample selection to be wrong.

The bigger the carefuly selected represenative sample set, the more likely the extrapolation is to be close to the truth. It still cannot be said to be the absolute truth about all cases. You hardly have a large or carefully selected representative sample set, so you are miles from an absolute conclusion.

Dr Perrin cannot be said to see a perfect cross-section or a large fraction of mecfs patients. He is an osteopath in the UK with a very specific practice, so right there we have selection bias. There's also the possibility of a "to the guy with a hammer, everything is a nail" situation there. What criteria does he use for diagnosis? Oxford, which is the supposed standard in the UK?

Oh wait, I found it. He has is very own way of diagnosing cfs/me and we can't know what it is without buying his DVD :rolleyes:, but it appears to involve identifying the pattern you are claiming he finds in every single patient. Well duh, of course he finds the patterns in all the people he sees with cfs/me if the pattern is part of his diagnosis.
For more detailed information about how to use The Perrin Technique for diagnosing CFS/ME and showing how the treatment can possibly help your patients return to normal life you can buy the DVD or the video of the film The Perrin Technique™ a guide for the Health Care Practitioner through our link to the website of The Fund for Osteopathic Research into M.E.
[my bolding]


Every person Dr Perrin sees with his personal version of cfs/me is very, very far from a representative sample of PWME worldwide.

Look at that, even Dr Perrin doesn't claim he has The Cure. What he offers is that the treatment can possibly help, which is a reasonable claim.

Dr Perrin may be a fine man with a technique for improving the quality of life of many people. That's great. I hope he continues to help people. No doubt structural abnormalities can cause all kinds of grief and correcting them can bring some relief. I don't have a problem with Dr Perrin's treatment for those for whom it is appropriate.


...these LLMD quacks have been enabled to thrive because people are left without answers.
They are no more quacks than you are. If you're not a quack, neither are they. They have more clinical evidence than you do, bur both of you have a lot of work to do before your hypotheses are proven.

At least LLMDs don't claim they have The Cause and The Cure for every single person with mecfs, fibro, chronic Lyme, and whatever the other three conditions are that you claim to be able to cure.

It's rude to call other patients' doctors quacks. That's not honest disagreement, that's a straight-up, unambiguous insult. Now you owe somebody an apology, because your statement was a blatant and unsupported criticism of someone else's treatment and an insult to the doctors they feel are helping improve their QOL.
 

Lissa

Well-Known Member
I have to admit that I didn't even attempt to watch the videos..... way too long to contemplate.

Anyhow, I personally find this structural connection interesting because when I was a kid my leg lengths were different. For years a specialist monitored my growth for leg length and spine issues. So I didn't develop scoliosis (my cousin did have this) and when I finished growing my leg length difference is minor....

I have never thought about structural issues and ME/CFS before reading this, it is interesting.

I think I posted on another thread regarding scoliosis... Time for a poll! But then I poked around this afternoon and couldn't figure out how to start a poll. Doh!

Anyone, anyone....?

Seems worthy of questions about injuries, posture, scoliosis -- possibly zeroing in on sections of the body: neck vs shoulder vs thoracic etc.

Also maybe structural issues in relation to illness progress?

And of course including an option that it was sickness only with zero structural abnormalities whatsoever.

Could be very interesting....
 

IrisRV

Well-Known Member
That's exactly what I want to do.
Great! Do it. Just so you know -- it's poor research to go into your study claiming your hypothesis is the absolute truth. Actually, it's not even poor research, it's not scientific research at all if you set out to prove your hypothesis. That's not the way it works. You're supposed to test the hypothesis, not set out to confirm it. Going in "knowing" your hypothesis is the absolute truth is very, very bad scientific practice.

Your hypothesis, which you continue to state as a conclusion, is at lease falsifiable and easily so. Your statement that every single person with mecfs, fibro, and chronic Lyme have these structural patterns is easily proved false by showing a single person with one of those conditions who does not have the pattern.

Your statement that this is The Cure for all these conditions is also easily falsifiable by finding a single person with one of those conditions who gets the treatment and is not completely cured.

That should make any valid scientific research you do fairly simple. It takes only one case to prove your hypothesis wrong and you're done.

Unfortunately for you,
...by the problem of induction, no number of confirming observations can verify a universal generalization, such as All swans are white, since it is logically possible to falsify it by observing a single black swan.
https://en.wikipedia.org/wiki/Falsifiability

You can find all the confirming observations you want, they don't prove your absolute statements. No amount of research can prove that structural abnormalities are the single cause, that correcting that abnormality is the single cure, or that every single PWC has the abnormality. Unless you look at every single case, there's always the possibility that one of the cases you have not looked at disproves your universal generalization.

On the other hand, if you (as several of us have suggested) take a more moderate approach, such as "Treating such and such an abnormality in PWCs leads to relief of such and such symptoms in a majority of patients", that would be a more sensible hypothesis. You identify an unbiased sample set of sufficient size. You treat them. You record and report the degree of success. If the majority of patients get relief from the specified symptoms, then your hypothesis is proved. If a majority do not, your hypothesis is disproved.
 
Last edited:

Get Our Free ME/CFS and FM Blog!



New Threads

Forum Tips

Support Our Work

DO IT MONTHLY

HEALTH RISING IS NOT A 501 (c) 3 NON-PROFIT

Shopping on Amazon.com For HR

Latest Resources

Top