Bruun Wyller continues to surprise. Recently the CBT proponent called for more research into Epstein Barr virus. Now his latest study suggests that neither the neurological, immune nor the endocrine systems alone cause ME/CFS but that the three working together may have a powerful impact on the fatigue present – and possibly on the EBV that triggered the illness in so many.
Find out more in a Simmaron Research Foundation sponsored blog
I’ve had M.E. now for over 37 years! Ime exhausted ? from it all! It’s totally ruined my lovely life I have nothing to show for it!
It stopped me having a relationship children a Job a car money etc etc and of course energy!
Is there anything or any one out there who could help me clean out the illness in my blood cells etc!!
I can only relate personal experience. I began having physical problems as a teen when I came down with the Asian flu in the Fifties. Every decade brought a new issue: adrenal problems in my 20s, FM in my 30s, thyroid deficiency and menopausal issues in my 40s, CFS and osteoporosis in my 50s along with post-exertional malaise, and SIBO in my 60s. I visited many doctors and tried many different therapies, conventional and far out. I felt bad most of the time but was able to function so long as I took many supplements. But it seemed that I just kept going downhill gradually. When I was 66 I was diagnosed with Lyme disease via the Western blot test. That was a huge shock as I had been a medical writer and therefore had been reading the literature on FM/CFS for decades, and none of it ever mentioned Lyme disease. Over the past eight years I have very gradually recovered a modicum of health using a multitude of approaches as I went from one phase to another. My only suggestion is to make sure you don’t have Lyme disease or one of the other nasty infections that can cause similar symptoms. I am still left with neurological complications and am not sure that I don’t still have Lyme. And the impact of age is setting in. But I feel much better than I have in decades.
Jackie-Great comment. Sounds like me. Alot of us have been involved in Medical -or Dental fields. I was a Dental Hygienist and everyone in our office came down with Epstein Barr and CMV. This was in 79. Everyone else got over it. I didn’t . I was an Athlete and very active. A wonderful Dr Richard DuBoies here in Atlanta diag nosed me and started me Immediately on Gamma Globulin . in 3 weeks it was like some one turned on a switch. I was taking brand name from Bayer not Generic. Then they sold out to another co and it became Generic and it never worked for me again. I have yet to find anything that helps me as this did. Your Comment is great. As I have gone from one infection to another .
Carole,
I was also a dental hygienist and was diagnosed with mono (Epstein Barr Virus) in Nov. of 1979. As you may remember it was pre-AIDS and we were not routinely wearing gloves, masks, etc. I worked in a periodontal office and loved it. Lots of blood and other exudate though.
I actually think I know which patient I got it from as I ran into her at a support group meeting and we compared notes.
I bounced around with flare ups and all that other stuff we presented with before I went to Dr. Dubois and was finally diagnosed. I was 29 years old when I had the Mono but remained working till 1993, it was torture but I was a single mother and had very little choice. Thankfully I worked in offices with more than one hygienist so had some flexiblity in my schedule.
I was a runner and had a great life. In 1992 I married a wonderful man, had good disability insurance so I had to walk away from a job I was very good at and loved alot.
I am now 67 years old, I am not so angry as I was in my 30’s and 40’s mostly because my friends have gotten old enough to retire, etc. I did not keep many friends but the ones I have mean the world to me.
Thanks for your letter. We should get in touch and discuss any mutual history since we were in the same field in the same era and geographical area.
Carole,
I wrote you a long and detailed response because we have almost the same history of this illness. Same time period, ocupation, Dr. Dubois and I lived in Atlanta.
It went somewhere and I do not have the energy to write it again. Love the brain fog!!!
Contact me please as I need support.
I have fibromyalgia and chronic fatigue and I never worked in the medical field. But as far as I remember, I lived in fear of something, I never felt adequate no where, this has put me in a situation of eternal stress inside and feeling weak. Then I was challenging myself with stuff way to difficult for me. Either in work, name it. As if my brain wasn’t suitable to my body. Took way too much on my shoulder then I could, this has create in me an effect of emergency, living on the edge internally and it create externally the fibro that I am affect of. Been into car accident, bad relationships, lost of jobs etc. life hasn’t been easy on me as far as I remember.