The biggest and most rigorous virus study ever just wrapped up. Find out what Dr. Lipkin found at Simmaron Rising
Dr. Ian Lipkin surprised everyone on the CDC’s Conference call yesterday when he presented many of the results from the two major pathogen studies involving the Chronic Fatigue Syndrome Initiative and Dr. Montoya at Stanford.
These studies, easily the most rigorous of their type ever attempted in ME/CFS, will forever alter the debate on the role pathogens play in this disorder.
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Please support Health Rising during our quickie summer donation drive. Our goal is to raise $15,000.
Great stuff, good quality research. I am really encouraged by this work and the Microbiome work and research here in NZ Cort. They all seem to tie in so well together too.Its very heartening and no flash in the pan stuff!! Thank you.
Business as usual. Nothing has been found. Sound familiar to me. I think the cause of this disease will never been found. It is to complicated. Sorry. There is only one thing left: the gut. It would make sense because the gut microbe produces neurotoxines. If the problem is not in the gut i believe the only thing left is: autopsy!
Autopsy! The news is disappointing and I’m not ruling viruses out my any means. Finding them is obviously going to be more difficult than anticipated, though…The gut does present alot of possibilities. Time will tell.
The testing for enteroviruses in plasma was a colossal waste of money, Enteros can really only be accurately detected in blood during the first few weeks of infection. This has been in the medical literature since the polio outbreaks in the 40’s and 50’s. Tissue biopsy is really the only accurate method.
I won’t take any study seriously from any lab that doesn’t branch out into lymph and gut samples
“The gut microbiome is were the action is”…I think Mr. Lipkin should get in touch with Prof. De Meirleir… He’s been saying this for over 10 years but somehow the one person who has more experience in this field than anyone else is always overlooked!
I think a lot of time (and money) could be saved if all these “big star researchers” would start studying De Meirleir’s findings/theories!
The smaller researchers are often on the cutting-edge. De Meirleir was the first MD that I remember to really focus in on the gut area. Maybe he will be vindicated in the long run.
There are many paths open by Drs Chia in reference to enteroviruses and KDM on the gut and the role of various bacterias so I wonder if Lipkin have taken them into consideration.
Do not get me wrong , I dont know many details regarding techniques and procedures, also the language is a barrier for me to understand it well.
Search active viruses and propose alterations in cytokines as biomarkers is a good purpose , but what about the Linfos ( T4/T8 – CD57 …) and the Elispot LTT for Borrelia ( wich teorically is the best way to find it in blood) or the stomach biopsies? Others nk cells..etc?
I also think that searching for the shadows of past infections is a good idea. I hope that with time, money and prospects they can find more solid and useful evidence to justify the great inversion of money that on the other side is really needed.
I’ve maintained for a long time that active viruses are not causing CFS. In most cases viruses might have triggered it. I favour the hit and run theory. It’s way past time to move on from looking for the “magical virus’ – its a waste of time, money and effort.
The study’s findings of allergic sensitivity in the first 3 years is interesting. I’ve had a milder form of CFS for 22 years, within the first 5 years I had lots of food allergies develop, but from about year 6 or 7 of the condition the allergies started to go away.
I’m 41. I had bad hay fever from the age of 9. About 4-5 years ago my hay fever diminished significantly. What used to be a curse for me in Spring / summer is no longer a curse. Curious.
What are other people’s experiences?
Btw earlier in my CFS I used lots of herbal immune activators. I reckon they made me worse, and exacerbated the allergies.
Has anyone used the probiotic infantis? A recent study showed it reduced inflammatory markers in CFS. If the problem is in the gut, and a probiotic has shown to reduce inflammatory markers on CFS, then my next question is does the probiotic reduce symptoms? If the answer is yes then this may be more evidence for the gut.
One last point. Lipkin’s talk mentions B cells. This gets back to a possible autoimmune aspect (maybe an autoimmune condition triggered by an initially severe viral infection – the hit and run theory). Really will be interesting to see how the rituximab trials go.
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Sounds like progress. Now what? Organize a letter writing campaign?
YAAAAAAAAAY!!!!!
Great stuff, good quality research. I am really encouraged by this work and the Microbiome work and research here in NZ Cort. They all seem to tie in so well together too.Its very heartening and no flash in the pan stuff!! Thank you.
Thanks Amy, Glad to hear they’re doing that work in NZ as well. It’s nice to have top researchers focusing on ME/CFS (whatever ther results))
For those interested in the details there’s a pretty good transcription here :
http://www.mecfsforums.com/wiki/Lipkin_presentation,_CDC_Conference_Call_9/10/2013
Thanks Marco
Business as usual. Nothing has been found. Sound familiar to me. I think the cause of this disease will never been found. It is to complicated. Sorry. There is only one thing left: the gut. It would make sense because the gut microbe produces neurotoxines. If the problem is not in the gut i believe the only thing left is: autopsy!
Autopsy! The news is disappointing and I’m not ruling viruses out my any means. Finding them is obviously going to be more difficult than anticipated, though…The gut does present alot of possibilities. Time will tell.
The testing for enteroviruses in plasma was a colossal waste of money, Enteros can really only be accurately detected in blood during the first few weeks of infection. This has been in the medical literature since the polio outbreaks in the 40’s and 50’s. Tissue biopsy is really the only accurate method.
I won’t take any study seriously from any lab that doesn’t branch out into lymph and gut samples
“The gut microbiome is were the action is”…I think Mr. Lipkin should get in touch with Prof. De Meirleir… He’s been saying this for over 10 years but somehow the one person who has more experience in this field than anyone else is always overlooked!
I think a lot of time (and money) could be saved if all these “big star researchers” would start studying De Meirleir’s findings/theories!
Just my humble opinion!
Greetz from Antwerp!
The smaller researchers are often on the cutting-edge. De Meirleir was the first MD that I remember to really focus in on the gut area. Maybe he will be vindicated in the long run.
I agree with the last comments.
There are many paths open by Drs Chia in reference to enteroviruses and KDM on the gut and the role of various bacterias so I wonder if Lipkin have taken them into consideration.
Do not get me wrong , I dont know many details regarding techniques and procedures, also the language is a barrier for me to understand it well.
Search active viruses and propose alterations in cytokines as biomarkers is a good purpose , but what about the Linfos ( T4/T8 – CD57 …) and the Elispot LTT for Borrelia ( wich teorically is the best way to find it in blood) or the stomach biopsies? Others nk cells..etc?
I also think that searching for the shadows of past infections is a good idea. I hope that with time, money and prospects they can find more solid and useful evidence to justify the great inversion of money that on the other side is really needed.
Regards!
I’ve maintained for a long time that active viruses are not causing CFS. In most cases viruses might have triggered it. I favour the hit and run theory. It’s way past time to move on from looking for the “magical virus’ – its a waste of time, money and effort.
The study’s findings of allergic sensitivity in the first 3 years is interesting. I’ve had a milder form of CFS for 22 years, within the first 5 years I had lots of food allergies develop, but from about year 6 or 7 of the condition the allergies started to go away.
I’m 41. I had bad hay fever from the age of 9. About 4-5 years ago my hay fever diminished significantly. What used to be a curse for me in Spring / summer is no longer a curse. Curious.
What are other people’s experiences?
Btw earlier in my CFS I used lots of herbal immune activators. I reckon they made me worse, and exacerbated the allergies.
Has anyone used the probiotic infantis? A recent study showed it reduced inflammatory markers in CFS. If the problem is in the gut, and a probiotic has shown to reduce inflammatory markers on CFS, then my next question is does the probiotic reduce symptoms? If the answer is yes then this may be more evidence for the gut.
One last point. Lipkin’s talk mentions B cells. This gets back to a possible autoimmune aspect (maybe an autoimmune condition triggered by an initially severe viral infection – the hit and run theory). Really will be interesting to see how the rituximab trials go.
Matthias