Secretary of Health Kathleen Sebelius responded to Senator Reid’s inquiries with the letter below. The Secretary’s letter outlines increased coordination by federal health agencies on ME/CFS. The proof of whether federal agencies take ME/CFS more seriously will be reflected in whether they fund more scientific studies, promote clinical trials and approve medicines and treatments for ME/CFS patients in the immediate term.
All eyes are on the FDA scientific and stakeholder workshop in April which will provide the first test of this increased coordination.
Tell us how your coronavirus vaccination went and find out how other people with ME/CFS and/or FM fared with their coronavirus vaccination in Health Rising’s Coronavirus Vaccine Side Effects Poll.