Harry_Reid_official_portrai220px-Kathleen_Sebelius_official_portraitWe thank Senate Majority Leader Harry Reid for his longtime work and support for the ME/CFS community, and especially for his recent efforts with the Secretary of Health to stress the serious unmet need in the ME/CFS community and the drastic implications of the FDA’s denial of the only medicine in clinical trial for patients.

Secretary of Health Kathleen Sebelius responded to Senator Reid’s inquiries with the letter below. The Secretary’s letter outlines increased coordination by federal health agencies on ME/CFS. The proof of whether federal agencies take ME/CFS more seriously will be reflected in whether they fund more scientific studies, promote clinical trials and approve medicines and treatments for ME/CFS patients in the immediate term.

All eyes are on the FDA scientific and stakeholder workshop in April which will provide the first test of this increased coordination.

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A Run For His Son: An ME/CFS Parent Steps Out

alex ribaroff chronic fatigue syndrome

Learn how a 67 year old retiree and his wife felt compelled to lace up his running shoes and get into action to support their son – and everyone else with this disease in A Run For His Son…and Everyone

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