by Bob and Courtney Miller | Jun 22, 2016 | Advocacy, Research, Treatment
NIH is asking the ME/CFS community what future research should be done. We are submitting a request to have NIH fund clinical trials for ME/CFS starting with Ampligen, as the only medication close to approval in the FDA pipeline. If you want to add your name to this...
by Bob and Courtney Miller | Mar 2, 2016 | Homepage
We worked together with a group of ME/CFS advocates to submit a set of recommendations to NINDS as it ramps-up research into our disease. The recommendations, shown below, were prepared by the NIH Working Subgroup and endorsed by many of the organizations and...
by Bob and Courtney Miller | Feb 15, 2016 | Homepage
Several #MECFS advocates and I received an email this afternoon from Dr. Walter Koroshetz, NINDS Director, providing written clarification of enrollment criteria for the NIH Clinical Center Study: Dear colleagues, Thank you for communicating your concerns. Having...
by Bob and Courtney Miller | Aug 7, 2015 | Advocacy, Homepage
ALERT: Senate Cuts CDC’s funding for CFS to Zero, gutting 50% of federal research funding for ME/CFS NO Funding Cuts: One Clear, Consistent Demand for Equal Funding By Robert and Courtney Miller and Cort Johnson While patients advocate for Equal Funding for...
by Bob and Courtney Miller | May 10, 2015 | Homepage
Emails Seek Equal NIH Funding for ME/CFS: 213 so far! Patients have kicked off the email campaign for Equal Funding at NIH with a bang! At least 213 emails have been sent to Secretary of Health Sylvia Burwell and Dr. Francis Collins, Director of National Institutes...
