Dennis shook up the NIH big time when he was there…and then he was gone – but his commitment to ME/CFS remained. Find out what he’s been up to in the interview


Dennis Mangan was like a whirlwind at the NIH in the two years he was in charge of the ME/CFS program at the Office of Research For Women’s Health (ORWH). First he created a listerv to better communicate with the patients, then he changed the website, then he changed the name to ME/CFS, then, in collaboration with patients he created the ‘State of the Knowledge’ Workshop –  the first major NIH workshop on chronic fatigue syndrome in almost ten years.

Under Dennis, the Chronic Fatigue Syndrome Working group, which hadn’t met in a year, was enlarged and revitalized.  Throughout, Dennis  communicated and communicated and communicated….and then, he was gone in late 2011 – taking early retirement to deal with a family situation.

Dennis promised to stay involved with chronic fatigue syndrome (ME/CFS) and he has. Now, as he joins the Board of the Simmaron Research Foundation, I asked about his time at the NIH, what changed since he first came on board there, why he’s still heavily involved with ME/CFS, the IOM controversy and more.

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