When the collapse came, I had to see this for what it was: a long battle with an uncertain outcome.
Jen Brea describes her agonizing course of ME/CFS from it’s beginnings as chronic fatigue syndrome (weakness, sore throats, dizziness) and her depression diagnosis, to a complete collapse and full-blown ME (and her somatoform diagnosis) to a remission (hope reigns at last) followed by a depressing collapse in this interview by Erica Verillo at Prohealth.
We hear about doctors dashing documents on ME/CFS to the floor in disgust, her battle with depression after she realized her debility was not going to go away and her moment of decision to give up or to fight back politically and artistically. The Canary in a Coal Mine film project is the result of taking a stand to fight back and communicate.
Check out a thoughtful and bold interview with Jen Brea on Prohealth: Jennifer Brea Talks About Obstacles, Adjustments, and Inspiration
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A Run For His Son: An ME/CFS Parent Steps Out
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I relate to EVERY single word of this. My illness followed the exact same course.
Well Done Jen. xx