Jennie Spotila has stopped the publication of the Pathways to Prevention report on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (!)
Actually she’s just paused it. During her sleuthing (which included filing a Freedom of Information Act) Jennie found that many of the public comments were never forwarded to the P2P committee! Among those may have been the comments from the federal advisory panel for ME/CFS (CFSAC).
This was a major oversight and the NIH has agreed to pause the process so the committee can review all the public comments before the publication of the final report.
The draft report was very promising. It called for vastly increased research funding, state of art technology brought to bear on ME/CFS, Center’s of Excellence, International networks, and international conference, an organized effort to produce validated outcome measures, career paths for ME/CFS researchers, ways to bring new researchers into the field early and more.
Hopefully the addition of all the public comments will help them further strengthen what was already a very strong report.
Find out more at P2P Mistrial on OccupyCFS
Learn how a 67 year old retiree and his wife felt compelled to lace up his running shoes and get into action to support their son – and everyone else with this disease in A Run For His Son…and Everyone