Walking can be a real problem for people with ME/CFS but when researchers asked them to walk and think at the same time the problems really started to show up.
Find out what happened in (and take the poll – how is your walking going?) in
Like This Blog?
Make Sure You Don’t Miss Another One!
Register for our free ME/CFS, fibromyalgia, and long COVID blogs here.
The Fibro Summit - Natural Ways to Get Better Sleep, Heal the Gut, Reduce Pain
The online Fibro Summit offers natural ways to get better sleep, heal the gut, reduce pain, etc. Register to watch the talks on the day they’re presented or buy the package and download them and watch them at your leisure.
Find out more about the Summit here or register here.
I have fm and in the past I had a great deal of difficulty walking and thinking. At its worst I could not walk and talk at the same time. All of my movements were slowed and I used a walker. It would take a prohibitively long time just to get up to go to the bathroom. I had mild dementia and incontinence. I saw many docs and no one knew how to address it. In my case I was held back by the fact that docs were trying to pin it to fibromyalgia. I was unbelievably fortunate to see a neurologist who had the answer. He diagnosed it as “normal pressure hydrocephalus” ie “water on the brain”. The diagnosis was arrived at through a thorough interview and testing. I had all 3 of the classic symptoms of NP hydrocephalus: gait disturbance, mild dementia and incontinence. Further studies through a CT scan and then a spinal tap confirmed the diagnosis. The CT scan showed enlarged ventricles. Removal of even a small amount of spinal fluid at the time of the spinal tap relieved the symptoms but only for an hour or so. I then had brain surgery for the insertion of a permanent shunt to drain the excess fluid. The results were immediate and nothing short of miraculous. I now walk normally, no longer am I incontinent and the dementia has cleared. I still have FM and am pretty compromised by that, but I do have my life back. I write this in some detail in hopes that it helps someone. I just cringe when I read the comments here about walking and thinking difficulties because I know what it is like, holding onto walls and using a walker and trying to remember from one moment to the next what I was doing. This will not be an answer for everyone, but I pray that some others can be helped as I was. I call myself the “Miracle Baby”. My friends and family are thrilled to have me back.