The Great Chronic Fatigue Syndrome (ME/CFS) Gene Project

by | Sep 16, 2016 | Genetics, Research | 4 comments

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genetic-engineering“Little data” hasn’t come close to solving ME/CFS but “big data” might. We have Ron Davis, the OMF and Robert Naviaux digging away at the metabolome, Ian Lipkin and Mady Hornig probing into the microbiome, and now Dr. Nancy Klimas is filling in one of the missing pieces with her Great ME/CFS Gene Project (my title 🙂 that aims to crack the genetic code underlying this illness.

Find out more about this huge project and how you can participate in

The Great Chronic Fatigue Syndrome (ME/CFS) Gene Project

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  1. Mary Ann Dubas
    Mary Ann Dubas on September 18, 2016 at 11:45 pm

    As a sufferer of Fibromyalgia, I was very pleased and hopeful of the findings in these studies. I didn’t know anything was being studied in these areas. Please keep me updated on any ongoing research. I have an M.A. And did research studies in college so I understand the statistics of the studies.

    Reply
  2. Betsy Kemp
    Betsy Kemp on September 20, 2016 at 12:30 pm

    Hi Cort, I don’t understand why there’s only one comment here – can’t find the one with many comments, but saw this and wanted to alert anyone in NV that they can get the 23andMe free if they enroll in a study – you can post it in a more ubiquitous place if you think it’d be helpful.

    https://www.engadget.com/2016/09/15/23andme-study-needs-5-000-nevada-volunteers/

    Reply
  3. LondonPots
    LondonPots on September 23, 2016 at 6:45 am

    I wish I could afford it! Three, maybe four people in my close family have ME/CFS or similar. Three generations – it’s got to mean something. Any researchers interested?

    Reply
    • Cort Johnson
      Cort Johnson on September 23, 2016 at 10:03 am

      There’s a genetic study going at the Bateman Horne Center. Even if you can’t be in it I’m sure it will pick up things that apply to you

      Reply
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