Get live updates from IACFS/ME conference
I am tweeting the IACFS/ME conference on chronic fatigue syndrome for the next four days….and tweeted Dr. Klimas’ preconference meeting yesterday. Expect big news from Fluge/Mella later in the conference, plus lots of information on exercise, the Unger updates on the multi-site study and much, more more.
While CFS is receiving funding, I have FM..Lyrica no longer effective, adv.react to the other two. My pain medication was discontinued she said because it is only helping about 30%. Thirty percent is better than none. My pain is so bad. I need help. I do everything I am supposed to do. Please help me.
Frances, if at all possible go to Dr. William Pridgen. I’ve had
severe fibromyalgia
for 15+ years. Watch these 2 videos: go to
Dr. Pridgen’ office site at:
http://www.tuscaloosasurgery.com
and scroll down to the video “Testimonials,
Treatment of Fibromyalgia,Chronic Fatigue
then go watch the second one at:
http://www.innovativemedconcepts.com and scroll down the homepage and click on “see the science” and watch that video. I traveled to him so that
nothing was lost in
communication, however he
will relay his protocol to your Dr. I did not want anyone to talk me out of staying on the
Pridgen Protocol for the
full 6 months, although relief is felt in most slowly and by 14 weeks.
I was desperate and in
severe pain everyday.Get
to Dr. Pridgen.He can help you.
DeborahRNBSN
Try magnesium, it will take the edge off the pain. Tablets if you can tolerate them (can cause diarrhoea), epsom salts baths or magnesium oil spray if not
Many thanks for all these updates, Cort.
Thanks Christian and thanks for your support.
Thanks for the tweeting, Cort – much appreciated!
Thanks Sasha!
Thank you so much Cort!
Thank you Cort!
An excellent job Cort, thanks. I noticed Hemispherx isn’t really on the docket other than maybe a poster(?), which is surprising considering their Argentine approval and pending new phase III.
Will there be any panel discussion about responder groups for Ampligen like there was for Rituximab?
No – just a poster. I talked to Hemispherx guy – Strayer – yesterday – their study found that shorter duration patients (2-8 years in) showed much better results on exercise test (!)…He thinks it may because it’s helping with immune activation that occurs early.
Thanks guys = thanks to IACFS/ME for their support and Adria and Karen for allowing me to stay at their houses 🙂
Thank you Cort for your sterling work these 4 days. Don’t know how you do it!
You are doing a fabulous job, Cort! Thank you for being there and working so hard to share what you are hearing with us. You’re a good man, Cort. Congratulations on the award, you deserve it!
Thanks!
I just go on automatic :). Brain is drained but fingers keep typing (lol)
I bet! So amazing, though. We can’t wait to read fuller debrief, but thank you, thank you, thank you!
Were any videos taken of the events?
Will a DVD of the conference be made available sometime?
You are a tweeting machine, Cort! Thanks, again. Rest well.
So much appreciated Cort! Thank you! And BTW, in reference to your tweet on long term ME & brain function – seems to me your brain is functioning pretty darn well! You’re an inspiration to me!
Thanks Helen 🙂
Thank you for all the tweets, Cort!