Leonard Jason, ME/CFS’s foremost epidemiologist and researcher/advocate requests that you tell him what the heck happens when you engage in physical and cognitive exertion.
The survey grew out of extensive discussions with the patient community during the public comment period on NIH’s common data elements. During those discussions Jason saw the need for a better understanding of PEM.
The study that will come out of this will help to underline the seriousness of this disease and the limitations it imposes.
You must be over 18. The front page of the survey does not mention any country restrictions. This is a long survey – Jason is known for his attention to detail – but you can stop the survey in the middle and then resume later. All ME/CFS patients – please take this survey..