A HUGE thanks to the 383 people who provided $41,902.55 to Health Rising during our year end (and a bit past year end :)) fundraising drive. More people supported Health Rising with more funding than we have ever had before.
Besides the donors, a major thanks goes to Stavya, whose programming expertise seems to grow by leaps and bounds every year, to another programmer who’s done a ton of volunteer work on one of our projects, to Marilyn for her timely editing of hundreds of posts, to another editor who wishes to remain anonymous, to Ethica.io for their free hosting, our sponsors (Simmaron, ProHealth, OMF, HHV-6 Foundation) and to my partner for her support in all things. Thanks to everyone for their supportive comments and ideas, as well.
The support was gratifying and it was good, too, because Health Rising has a lot on tap for the next year. We’d hoped to launch our multidimensional Big Map project during the fundraising drive but ran into some roadblocks we couldn’t control. That project, which has been in the works for years, should, however – (crossed fingers) – be launched soon. Plus, we have another major project which we expect to launch this year as well. I’ll let you know more about that as it gets closer.
I strongly believe that the more eyes we have on ME/CFS/FM, the better chance we have of creating breakthroughs. Whether they involve a new idea, having a major donor step up to the plate and take a big swing, having a legislator or a head of industry step forward, or just having more and more of us work together to solve this mystery – sharing and getting the information out is vital. If we continue to do that, the opportunities are almost endless. You never know who it might touch and what they might do.
Part of the sharing process includes an ongoing effort at Health Rising to make the blogs and the website more organized, and easier to access and understand. To that end, a website redesign is due. Our emphasis on getting the word out also means having the information on Health Rising be as available as possible on the web itself. To that end, next year Health Rising will (finally) focus on search engine optimization (SEO) – which basically means finding a way to buddy up to Google and having it like us :).
For me, I going to take a few days to recharge after a month of full-on pushing well beyond my ME energy envelope 🙂
Lastly, for a little boost, you might check out an excellent article that just came out: “Patients push limits for clues to chronic fatigue syndrome”, in the Minneapolis Star Tribune. It gives the NIH too much credit (see my comment) but focuses on a superb representative of the ME/CFS community: a father in excellent shape, who’d been training for a half-marathon when he got ill! He’s now in the NIH intramural study.
Freedom from Fibro Summit Encore Weekend – Watch Any Presentation
Watch any of the 40-plus presentations from Dr. Murphree’s Freedom from Fibro Summit for free this encore weekend. If exploring alternative health options is something for you – or if you just want to explore what’s out there – Dr. Murphree’s Summits provide a great overview of the possibilities this large field of medicine presents.
The Summit provides simple techniques to reduce pain and anxiety, provides updates on the latest research, diet options (one of which has helped me greatly), ways to boost energy, the latest on fibromyalgia research (my presentation), etc.
Click here to check out the encore weekend and here to see a prior blog on it.
No energy today, but thank you to everyone who volunteers and supports, including Court’s other half! ?❤️
I’m happy to help in my small way Cort. You do a great job of translating all the research into readable elements for us and keep up to date in what hopefully (fingers crossed) will be a decade of significant breakthrough in ME/CFS research
Yes, indeed. How about the end of ME/CFS by 2030?
$42k looks pretty darn good Cort. Congratulations! Here’s to $50k in 2021!
I meant 2020. Yipes!
Woo woo! Thanks Jiki!
Because your info is read by many Canadians, I wonder if it would be worth becoming a Charitable Canadian Organization to receive donations from us which contributors can claim on our income tax. We do claim a disability on our forms, and contribution can be claimed as a deduction in Canada, and could be a benefit for you as well.
Thanks for the idea Joan. That’s something to look into. We’re not a registered non-profit in the U.S. because the problems I had with Phoenix Rising, which I ended up leaving but perhaps Canada has a different system. 🙂
Great work Cort and hope you recharge well over the next month, as your efforts are invaluable at not just promoting awareness but keeping us all abreast of the latest research and developments in ME/CFS/FM in a most readable fashion. Cheers Angus NZ.
Thanks Angus for thanks for sending the news my way 🙂
thank you cort for everything! I will miss you this month. you are my lifeline in verry severe illness and the situation in wich I live. Although I often can only read a few sentences. But withought the hope of research you give (to few money for research that indeed), I think I would have long made an end at my life. So thank you!
Konijn I think you read Cort’s comment incorrectly – he’s taking a few days off, not a month ?
I’m so happy to see it too – I can hardly keep up with reading and processing the constant stream of excellent blogs.
I can’t even imagine putting the whole thing together ?
Thanks to the whole HR team, Cort, Stavya, Marilyn and all the others … ?
thank you for correcting me! totally ill! read indeed a month…
Sorry about the miscommunication, the blogs should be coming back soon. 🙂
Thank you so much Cort for your excellent work. Plus thank you also to your HR team.
Thanks – for me thanks to the team as well most of whom are volunteers 🙂
Thanks for ALL you do, Cort! It is greatly appreciated. 🙂
Amazing wirk you all do!
Could you remind me please,
what $$$$$ value was the goal for this fundraising please?
Curious what percentage of goal was met.
Found interesting info on Madison Area Lyme Support group
#255: Lyme Mind 2019 – Drs. Leigner & Horowitz
Our goal was 45K and we received just over 42K 🙂
Thanks for the tip on the Lyme treatments. Lyme funding is due to get a big boost at the NIH. How cool it would be if both ME/CFS and Lyme achieved that.
I do not know if I have any airmikes as i buy so little, but if you would put instructions either here or to my pm I will add any I have right niw to you.
my post should say:
*** airmiles **** instead of airmikes