As Dr. Peterson watched the coronavirus bear down on his community it was like deja vu. Thirty-six years ago Peterson was at the heart of one of the most infamous ME/CFS outbreaks in history – the 1984 Incline Village outbreak.
It was like deja vu for Dr. Peterson but this time it was different
Poor testing then had contributed to the psychosomatic interpretation of that post-viral illness Now, with few test kits available poor testing was prevailing again. Peterson and his team, vowed, though, that this time it was going to be different.
This time sick patients were going to know what they had. This time if they had trouble recovering they weren’t going to be denied. This time post-infectious illness was finally going to get its shot.
Dr. Peterson and Gunnar Gottschalk, the Simmaron Foundation’s Clinical Research Director, teamed up with Coppe Labs, and got to work. Find out what happened in:
From the Tahoe Outbreak to COVID-19 Dr. Peterson and Simmaron Take on the Coronavirus – and ME/CFS
Dr Peterson and Dr Meirleir both claim Ampligen dramatically helped many sever ME patients. How come Ampligen has never been used in the UK then? It is supposed to help people with an abnormal RNaseL. But mine was normal so it was suggested by Meirleir I did not have a viral onset ME. But I did have a virus before ME. It is an extraordinarily expensive drug and the UK would never pay for it. Not for ME/CFS anyway since ME/CFS is treated as a psychiatric condition in the UK. But then nobody has ever proven so far that ME/CFS isn’t a psychiatric condition anyway. If they have, please send the link.
Jeez Martin do you live a bubble? Many treatments available in the US aren’t available in the UK. Until Ampligen proves itself in some big trials it will not be approved here either. No one but you, apparently, considers ME/CFS to be a psychiatric disorder anymore.
https://www.healthrising.org/blog/2014/04/26/prove-doctor-youve-got-chronic-fatigue-syndrome-mecfs-just-depressed/
“But then nobody has ever proven so far that ME/CFS isn’t a psychiatric condition anyway.” What?
MECFS is not listed with psychiatric conditions.
Thanks to Suzy Chapman, we know WHO’s 192 Member States, including the USA, and the UK all bill MECFS as a medical disease. MECFS is in with ALS, Parkinson’s, MS, etc as diseases of the brain.
https://www.icd10data.com/ICD10CM/Codes/G00-G99/G89-G99/G93-/G93.3
https://icdlist.com/icd-10/G93.3
https://icdlist.com/icd-10/R53.82
https://dxrevisionwatch.com/icd-11-me-cfs/
Maybe you should take your own advice, open your eyes and smell the coffee.
ALso U have not seen in 28 years any newspaper story (in the UK anyway) where anyone who was treated with Ampligen (if they were in the UK ever) was dramatically cured with Ampligen. It is all just CLAIMS by two doctors in the world. Where are the RNaseL testing labs gone? 😉
Why would you expect a UK newspaper to report on a treatment that’s not done in the UK. And why this emphasis on recovery? Some people have recovered on Ampligen but improvement is good enough.
Here’s an idea – if you’re interested in finding out about Ampligen – search this website instead of your UK rags.
A study is underway to see if and how Ampligen is effective when it is.
I don’t know if anyone has improved on Ampligen at all since I have not heard about it in any newspapers as I said. Most UK doctors believe ME/CFS is not a disease entity, I will put it that way then. And I believe a lot of US doctors feel exactly the same way. In fact, the only doctors both in the UK and the US who believe it is a serious disease (rather than a serious illness), are the private doctors in the UK and the US specialist ME/CFS doctors. They make tonnes of money out of treating ME/CFS.
Also, I have just written to the private clinic today who diagnosed me with PVFS years ago. I asked them if ME is the same as PVFS and if it is the same as CFS. You see, ME was a disease written up by Ramsey during the 1955 ME epidemic but Colin McEvedy, a psychiatrist, found no evidence of ME, so he called it Mass Hysteria (which I do not believe). SO I wrote to them and Michael SHarpe to ask them if ME still exists or existed or is now defunct. I said why keep this name ME, a horrible name, if it does not happen. That is what I said and I am waiting for their reply. The UK knows ME/CFS is not depression since it is on Simon Wessely’s website, simonwessely.com I don’t know why you suggest I think ME/CFS is psychiatric? I did not say it was, I just said SImon Wessely did a lot of research on ME/CFS and did not come up with a biomarker. My RNaseL was normal so it was not a biomarker for my PVFS. Open your eyes everyone and smell the coffee. Can you not see that people in ME/CFS like making huge money out of claims. That is why Ampligen is not approved anywhere in the world except Argentina probably.
I’m in the uk. There are NHS doctors here who dont see ME/CFS as a psychiatric condition, although not enough of them. There has also been research here showing that many people are misdiagnosed and that some have treatable medical problems.
You are being very rude, Martin, and sound more like a troll than a genuine ME patient.
I agree with tatt. As I was thinking the same thing, Martin sounds like a troll. What is his purpose beyond antagonizing people. Very, very strange place to find this kind of talk. The fact that he searches for scientific reports in “newspapers” is a dead giveaway. Actually, he got me! Why am I wasting my time??
🙂