Health Rising’s 2024 BIG (little) End of the Year Donation Drive

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Tom Hennessy and International Advocacy/Awareness Day

Tom Hennessy created International ME/CFS/FM Advocacy day over 30 years ago. A fierce and creative fighter, Tom’s advocacy career was unfortunately curtailed by a tremendously difficult case of ME/CFS. To this day I wonder how much further we would have been along if only Tom had remained healthier. Tom died in 2013. Read a tribute to him on the day he started.

‘My Brother By Choice’ – A Good-bye to Tom Hennessy – Fierce Advocate: Memorial Tomorrow

Participate with #MEAction 

#MEAction, as always, has a full list of things to do to celebrate ME/CFS, spread awareness and make a difference.

Participate in the Bateman Horne Center’s Hour of Hope (11 am MDT)

  • Welcome and ME/CFS and FM Status Update
  • Poem reading: “Sometimes Fibromyalgia Feels Like”
  • Moderated Discussion with Drs. Bateman, Yellman, and Vernon
  • Messages of Hope Video
  • Live Interactive Messages of Hope (Bring Your Sign and Shoes!)
  • Message to the Community
  • Believing the Patient/Loved One, by Meredith Mehner
  • Poem reading: “It Takes Courage”
  • BHC’s Messages of Hope to You

Register here

Check out Rivka Solomon’s “Brief But Spectacular Take”

Rivka’s “Brief But Spectacular Take” on ME/CFS has been picked up by major media outlets.

Rivka followed that up with a moving editorial in the Washington Post:

Check out Whitney Dafoe’s Stuff

You could very fruitfully spend Awareness Day by simply checking out what Whitney Dafoe has done since his re-emergence after taking Abilify. He has been on a tear, writing trenchant Facebook posts, creating inspiring protest playlists, and telling his story in intimate fashion in a published journal. Plus, check out Tracie White’s book on Ron Davis’s search for a cure for Whitney – see below.

  • Facebook Posts – the overriding theme is to come together and support each other. Check out his trenchant and provocative posts including: What to call ME/CFS (April 12th), The Naked Self (March 31st), New Romantic Adventures (March 11th, March 25th) and others.
  • Extremely Severe ME/CFS—A Personal Account (mdpi.com) – Whitney’s intimate, and I think important, portrayal of the experience of being severely ill, published in a medical journal.

Check out Whitney’s Story

Invisible Illness – Stories of Chronic Fatigue Syndrome – YouTube

Whitney’s ME/CFS Protest Playlist! – is “meant to take you on a journey from suffering, to protest, to resolve. Enjoy and get fired up!”
Keep the information flowing! Support Health Rising during our end of the year fundraising drive. Click here for more.

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